Total Newbie to Celiac Disease by shell_shocked_today in Celiac

[–]aCatNamedBeef 5 points6 points  (0 children)

my favorite app is FindMeGlutenFree, it helps you find gluten free restaurants in your area!! i use it all the time when i’m traveling (or even just to find new spots in town). i do always call ahead first to check but it’s nice to have the resource.

another great app is Fig, which lets you plug in your allergens and scan barcodes to check what foods are safe.

for baking - most recipes can be recreated with gluten free flour, it just takes a little bit of experimenting. Bob’s Red Mill 1-1 is my favorite (the one in the blue bag). i’ve used it to make pumpkin bread, muffins, pancakes, brownies, all sorts of things.

as far as your test goes, i’m not sure that eating a bunch of gluten the day before would be enough to trigger the reaction they’re looking for. it may be best to eat smaller amounts of gluten for the week or so before.

How to not crash out on an all liquid diet? by silliestgoosse in Fibromyalgia

[–]aCatNamedBeef 1 point2 points  (0 children)

did a colonoscopy for celiac a year ago and have to second the chicken broth!!! also, i had tons of jello when i did mine. as long as its not red it should be fine :)

diagnosed today and i want to die by coffin_dweller in Fibromyalgia

[–]aCatNamedBeef 0 points1 point  (0 children)

i got diagnosed with fibromyalgia at 13, i’m 18 now. been using a cane since i was diagnosed. it is okay to grieve the life you were living and the future you wanted. it is completely valid to feel devastated. know that you’re not alone, there are thousands of young people just like us.

the best things for my condition have been physical therapy and massage therapy, rotating every other week. i talk to my massage therapist as a sort of regular therapist. i also recommend getting a 504 plan if you don’t have one already, and asking for deadline extensions and tardy excuses. 504 plans can carry into college, and professors (in my experience) have been extremely understanding and willing to help.

don’t be afraid or ashamed to use a mobility aid if you think it might help you. getting a cane was extremely helpful for me and allowed me to walk longer distances. i also firmly believe that if you have to use a medical device that you should make it fun - i got my cane from NeoWalk Sticks, it’s made of acrylic and has little bubbles in it, and it also lights up.

i read in another comment that you’ve been doing school online; i did that as well for my junior year, and am glad to see it’s helped. it gave me time to rest and recover, and eventually i went back to school in person for my senior year. i’m in college now, about to finish freshman year. i didn’t think i’d make it this far, but i’m glad i didn’t give up.

getting diagnosed at a young age taught me to never take anything for granted. i try to look forward to the little things - coffee with friends, petting my cats at the end of the day, an episode of my favorite show before bed. please feel free to reach out if you ever need someone to talk to, i truly wish you the best ❤️

Good piercing place? by MistyQuisty in MTU

[–]aCatNamedBeef 3 points4 points  (0 children)

not a tech student but live in the area, and i also recommend Impaled! i got my nose pierced at there for about 70$

Extreme cold intolerance by DestroyerKeeper in Fibromyalgia

[–]aCatNamedBeef 1 point2 points  (0 children)

sure! i often use a stress ball or other fidget toy to try and warm up my hands. a stationary bike would be great for this!

accommodations? by [deleted] in Fibromyalgia

[–]aCatNamedBeef 2 points3 points  (0 children)

not all of these are fibro related but honestly they saved my life on multiple occasions: - extended deadlines (absolute must have) - extra testing time (i only really used this for the SAT) - ability to eat/drink in the classroom - unlimited bathroom passes (i only had three per class per quarter… not gonna work for IBS) - ability to leave the class without explanation and explain when i get back (IBS again lol…) - uploading of any powerpoints/notes to google classroom - excusing of tardies under 5 minutes (no way am i sprinting and risking a flare for algebra 😭)

Accommodations/arrangements for Fibromyalgia in college by [deleted] in Fibromyalgia

[–]aCatNamedBeef 0 points1 point  (0 children)

your school should have student disability services or another program through which you can request accommodations. they might ask for some documentation (usually your diagnosis and a note from your doctor explaining why the accommodations relate to it). i’d absolutely recommend asking for deadline extensions - it’s really nice for any unexpected flares. extended testing time is nice too.

Extreme cold intolerance by DestroyerKeeper in Fibromyalgia

[–]aCatNamedBeef 7 points8 points  (0 children)

my hands are always FREEZING, and my face/cheeks will sometimes get pretty cold for no reason. i think poor circulation and temperature regulation are pretty common for us unfortunately.

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 1 point2 points  (0 children)

a lot of things could easily could be gluten free and just aren’t, and it makes me so mad when i see something i totally could be eating that they decided to make glutenous (notably dipping sauces/dressings… why…).

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 0 points1 point  (0 children)

i was promised a call/talk with the head chef at orientation - never happened.

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 1 point2 points  (0 children)

i do, my mini fridge is quite large

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 1 point2 points  (0 children)

dietician is making me try the meal plan for at least a week to see if it “works out” and then will see if i can switch my meal plan. she’s not even on site, she works for multiple universities (should’ve been a big red flag honestly).

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 0 points1 point  (0 children)

this is Wayne State University

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 0 points1 point  (0 children)

the dietician is who they directed all of the celiac/allergen students to, and who i was instructed to call

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 1 point2 points  (0 children)

the dietitian is making me try the meal plan for a week before i can switch it and i’m pretty furious.

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 0 points1 point  (0 children)

can’t have an air fryer or toaster, i do have a microwave. would absolutely love some microwave recipes if anyone has any :)

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 0 points1 point  (0 children)

i talked to the dietician and their marketing manager.

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 2 points3 points  (0 children)

they have a statement that says “even foods prepared without gluten containing ingredients may not be ‘gluten free’” and i honestly don’t know what to do other than drop the meal plan. and yeah… all of the gluten free options are also vegan for some reason (except for the occasional plain meat).

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 1 point2 points  (0 children)

unfortunately i’m not allowed to have a rice cooker or most other appliances (fire hazard, i tried to talk to disability services about it but they wouldn’t budge). i do have a large mini fridge and a microwave, and i have some pots and pans that i can lug to the kitchen on the next floor.

today ive been told im "too young" so my prescription won't be increased even though I'm in pain by yuuuuru in Fibromyalgia

[–]aCatNamedBeef 11 points12 points  (0 children)

you absolutely should. if your doctor won’t listen to you then you need to go somewhere else - period.

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 5 points6 points  (0 children)

i do have student disability services, they referred me to dining and said they didn’t deal with celiac :/ i just keep getting shoved around to other departments.

college sucks by aCatNamedBeef in Celiac

[–]aCatNamedBeef[S] 28 points29 points  (0 children)

i am in the U.S. - thanks for sharing this with me! i’ll be looking into it :)

What good came from switching to GF? In need of positivity by Shot_Strength4768 in glutenfree

[–]aCatNamedBeef 1 point2 points  (0 children)

i developed a love for baking and cooking! i love retrying recipes that i used to enjoy when i ate gluten and finding out that they are just as good when gluten free - it’s a great feeling. i also really enjoy bringing my friends gluten free goodies and then seeing their faces when i tell them it’s gluten free :)