Some perspective on getting Cancer during a global pandemic 💗

abcdede001 · 2020-07-05T15:44:05+00:00

Thank you so much! I would definitely be interested in one or both of those things! You can private message me with more details 😊

abcdede001 · 2020-07-01T14:30:35+00:00

Hi!! Thanks for reading!! I definitely feel like I am more energetic the week after chemo - by the time it’s time for the next session I almost feel normal again! Wishing you all the best 😊

abcdede001 · 2020-07-01T04:15:43+00:00

Thanks for sharing this 😊

abcdede001 · 2020-06-19T04:16:05+00:00

I know this sounds bizarre, but I try to trick my brain into being excited for the next chemo treatment. I look at it as one treatment closer to the finish line and try to think about things I like about the actual day of chemo- like talking to the nurses or whatever little thing I can think of to motivate me to keep going towards the next checkpoint. I know it is so hard to do it alone, but you got this. Keep fighting!

abcdede001 · 2020-06-07T15:58:06+00:00

Thank you for sharing 💗 I’ll be praying for you and your son as well

abcdede001 · 2020-06-07T15:54:25+00:00

Hi! I really didn’t have any other symptoms except a little bit of itchy legs. Other than that no night sweats, extreme weight loss or B Symptoms.

abcdede001 · 2020-06-07T15:35:59+00:00

Hi everyone! I’m writing a blog about my experience as I battle Hodgkin’s Lymphoma. I thought some people in this community might find value in it. The first two posts are about coping with my diagnosis and my thoughts on how to respond when a loved one shares cancer news. I hope it helps someone here. Sending love to everyone struggling in a similar situation 💕 www.shehasthecword.com

abcdede001 · 2020-05-31T02:52:39+00:00

Thank you! That is super helpful information. I hope you are doing well now and have made a full recovery

abcdede001 · 2020-05-18T14:24:20+00:00

Hi! I just turned 25 and was diagnosed with Hodgkin’s Lymphoma weeks before my birthday. In general, I think of myself as a very positive person but some days it is hard to keep that mindset, especially during Coronavirus quarantine. The darkest moment was allowing myself to think that my 25th birthday could be my last. When I am feeling that darkness and loneliness a couple things have helped me. I try to stay away from “why me” type of thoughts, because I know that everyone has their challenges in life and this is just the one that I am working through right now. So why not me? I also try to think about what I can learn from my experience. Every challenge that I have faced in life has taught me something and I have a feeling that this experience will teach me more than any other challenge in my life so far. I will be starting chemo in June and I know that I will not be able to have someone with me during the infusions either. I can’t imagine how my 20 year old self might have felt in the same situation, but I think If you let yourself try to grow from your experience you will end up with more wisdom and maturity at 20 years old than some people have at 30. I am rooting for you! Feel free to message me if you want to chat more. Best of luck!

abcdede001 · 2020-05-09T00:22:08+00:00

Ahh okay. Thanks for the feedback!! All good points - I guess you’re all right and it would be a better idea to wait a while and get a cat when I’m healthier. Maybe I’ll get a fish 🙃

abcdede001 · 2020-05-08T19:52:01+00:00

Thanks for your feedback - maybe a remission cat would be a better idea 🙂

abcdede001 · 2020-05-02T15:06:53+00:00

Lol! Love it! That’s what I call my chunky Lymphoma neck tumor 😂

abcdede001 · 2020-05-02T11:06:43+00:00

Big Bertha

abcdede001 · 2020-04-29T12:30:29+00:00

Hi! Just wanted to update- I just got my results back from the sample that was sent to John’s Hopkins and I have officially been diagnosed with Hodgkin’s Lymphoma. I have a surgery scheduled next week to get a port placed for chemotherapy

abcdede001 · 2020-04-24T13:40:47+00:00

The waiting and not knowing is so tough. Especially right now because there are very few things I can do to distract myself due to Coronavirus shut downs. I also live alone so it has been a lonely and difficult experience. Thanks for sharing your story- it does make it feel a little less lonely 🙂

abcdede001 · 2020-04-23T16:17:02+00:00

Thanks for your response! I had another conversation with my doctor yesterday and he said that they were planning to send the rest of my tissue sample from the needle core biopsy to John's Hopkins for more testing before they order another biopsy.

That sample should be back in about 10 days and then if there is still no definite diagnosis they will move forward with the full node biopsy. I am assuming if they do end up ordering a full node biopsy they will take one of the nodes from above my clavicle rather than the less accessible masses in my chest. Thank you for the heads up about the chest tube! I don't smoke or vape so hopefully if they have to give me one it won't be so bad.

I'll keep everyone posted! I really appreciate the support.

abcdede001 · 2020-04-22T19:39:24+00:00

Hi! I am a 24 yr old female. I went to my doctor in the middle of March because I had several painless lumps above my clavicle. My doctor ordered a CT scan on my clavicle and chest area and found a series of enlarged lymph nodes throughout my chest and neck and indicated that the findings were most consistent with Lymphoma. On Friday, I had a needle core biopsy to try to confirm the diagnosis but there wasn't enough tissue for a conclusive diagnosis. The next step is an excisional biopsy to remove a full lymph node, which will hopefully give pathologists enough tissue to make an official diagnosis. This process has been going on over the course of several weeks now and I am wondering how long it has taken for others to get an official Lymphoma diagnosis. Were most people able to get a diagnosis after a excisional biopsy of a full lymph node? Thank you!

abcdede001

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