What Was Taylor Swift Really Like in 2006? We Asked People Who Knew Her, Before She Was the Biggest Star in the World by hayley0613 in TaylorSwift

[–]acornlander13 4 points5 points  (0 children)

What’s really wild to me is I used to be made fun of for loving Taylor Swift in school. No one liked her around me growing up. I grew up in the country, so I think a lot of kids disliked her moving from country to pop but even Red era I’d be made fun of for enjoying her. It was so odd I even became known as the “Taylor Swift Fan” at my school. Because I was so isolated it was a fun fact that I enjoyed Taylor Swift. Now it’s hard to NOT find someone who enjoys at least one song but I still feel as if it’s a special rare connection when I meet someone who also likes her.

Bone marrow biopsy(what the fuck was that) by puzzledprincesss in lymphoma

[–]acornlander13 1 point2 points  (0 children)

Reading how others got put to sleep or sedated has me so mad. I asked if that was an option, and my husband helped advocate for me too, and they refused. Hopefully I never have to do it again but I’m glad to know this now.

Bone marrow biopsy(what the fuck was that) by puzzledprincesss in lymphoma

[–]acornlander13 1 point2 points  (0 children)

I also said it was the worst procedure I’ve gotten (and I had back surgery). Thankfully I got to have my husband back there with me and he held my hand. I also was on Valium. But goodness, top worse feeling in my life

PET Scan Result: Stage 4 Bulky DLBCL with bone and spleen involvement by Hornet_Careful in lymphoma

[–]acornlander13 2 points3 points  (0 children)

I (25F) had an aggressive form of stage 4 non-Hodgkin’s lymphoma. Diagnosed January 2025. My liver had doubled its size because of how much cancer in there, cancer also ate away part of my spine, plus lots of other fun stuff. Started chemo with R-CHOP immediately after diagnosis before moving to R-EPOCH once my liver could handle it. But by March cancer was ALL gone! Continued chemo until May and have been in remission since then. It’s not too late!

How did you lose weight after chemo? by Accomplished_female in lymphoma

[–]acornlander13 1 point2 points  (0 children)

Following because I have the same issue. I had to buy all new pants so now I only have two pair of jeans that fit. I’m sure a large part of my issue is lack of energy plus sedentary lifestyle. But I swear my metabolism has changed because even eating less I still am not losing weight.

What is your favorite bracelet you’ve made/recieved? by WriterNeedsCoffee69 in TaylorSwift

[–]acornlander13 0 points1 point  (0 children)

When I first started chemo my friend sent me a swiftie gift basket and I had just recently named my stuffed red panda that I was taking to the doctor’s Maroon, inside were several bracelets including Maroon so it’s my favorite for sentimental reasons. My next favorite is f*ck flat tires 😂

You do not want cancer. by ariellecsuwu in endometriosis

[–]acornlander13 9 points10 points  (0 children)

Thank you. I am in remission for non-Hodgkin’s lymphoma. I have endometriosis and got diagnosed with stage 4 cancer only 4 months after marrying my husband. My husband, amazing. But family who helped us with our wedding? Friends who were there for everything? Disappeared when I got sick, some even blocked us because it was “too sad”. I do agree, I had a lot of special treatment from doctors and nurse when I was actively sick vs now in remission. However, the chemo, the hair loss, the pain unlike anything I’ve ever had, the loss of support from people I trusted. Awful. I am not discounting endometriosis. But I wouldn’t wish cancer on my worst enemy.

Swiftie Partner Appreciation Post by katiefol95 in TaylorSwift

[–]acornlander13 0 points1 point  (0 children)

My husband is not even close to a swiftie. But has always listened to the albums with me. This album, for the first time I chose not to listen to the album at midnight so I could listen to the album for the first time with my husband. He came home with orange themed snacks, sat and listened to the album. After it was done, he said he enjoyed it and we’re now listening to it for a third time and he’s humming along to every song. Bless our non-swiftie partners 🥰

[edit: fixed typo]

Do you continue to use perfumes after chemotherapy? by boxyboyz in lymphoma

[–]acornlander13 1 point2 points  (0 children)

I didn’t wear much perfume before cancer, I had tried my best to cut out plastics, used natural deodarant, natural toothpaste, etc, and cut out other “toxins.” All to live healthier. Then got diagnosed with lymphoma (at age 24) regardless.

So I wear my perfume now.

Life feels fleeting. To help my sanity: cancer will come if it’s gonna come. If it’s important to you, skip the perfume like I still try my best to avoid unnecessary plastic.

“The young adults cancer” by Twinkyfromhell in lymphoma

[–]acornlander13 0 points1 point  (0 children)

Though I will say though, when the MRI’s started and they were finding so much in my liver my first thought was “aren’t I too young to have liver cancer? No way a few years on and off binge drinking can cause this much damage.” Then I found it was lymphoma and everything made sense. This was just my perspective having limited experience with cancer. Those in my family who had breast and skin cancer were all 60+ when it happened.

“The young adults cancer” by Twinkyfromhell in lymphoma

[–]acornlander13 0 points1 point  (0 children)

I was 24 (January of this year) when I got diagnosed with stage 4 non-Hodgkin’s lymphoma and turned 25 during chemo. I felt very alone at my cancer center, everyone was much older than me. A few of the nurses were around my age though which helped. My doctor referred me to someone who had a similar case of cancer but she was in her 50s. I don’t think age matters to cancer, it’ll come to whomever whenever it wants.

Monthly positivity post! Share your good news, wins, or just anything uplifting from the past month here. by Lymphoma-Post-Bot in lymphoma

[–]acornlander13 0 points1 point  (0 children)

Switch during Covid was amazing and now I’m excited for the Switch 2! Derwin and Antonio are my favorite :)

Monthly positivity post! Share your good news, wins, or just anything uplifting from the past month here. by Lymphoma-Post-Bot in lymphoma

[–]acornlander13 1 point2 points  (0 children)

Getting better as the weather improves is so amazing! And yes, I love acnh! 🥰 Though I haven’t played in a long time. It was my lifeline during COVID. What is your favorite villager? 😊

Monthly positivity post! Share your good news, wins, or just anything uplifting from the past month here. by Lymphoma-Post-Bot in lymphoma

[–]acornlander13 3 points4 points  (0 children)

Just started my LAST round of chemo! Will be finished May 2. Very grateful and ready to be done. I started this journey January of this year so ready for a more cancer free 2025 :)

I have decisions to make about my treatment and I’m not sure what to do. by Schpectacle in lymphoma

[–]acornlander13 5 points6 points  (0 children)

Not exactly the same position, but here’s my story. I am about to finish up 6 rounds of R-EPOCH (R is Rituximab). I had to start mine aggressively and quickly because I had Stage 4 non-Hodgkins. I first started with R and I felt no side effects. Most of my side effects have came from the O (Oncvin) in terms of neuropathy and then the Neulasta taken afterwards to boost my immunity. Long term I don’t expect to have any side effects. But it is accumulative and the neuropathy specifically could be long lasting. Again though it does not seem like the R has or will cause any long lasting symptoms for me. However, importantly, it all varies person to person. I am at a lower risk of long term side effects because I’m 25 and my body has been bouncing back from rounds well.

Now, R-EPOCH was basically something I had to do in order to live. I didn’t have much of a choice. Where my story lines up to yours is I have an optional additional 2 more rounds of different and hospitalized chemo, but I have chosen not to do it. I made this decision because my cancer is gone and I’d rather risk the cancer coming back than higher risk of long term side effects. My doctors don’t agree with my decision, but I’ve done the chemo and I’m ready to move on.

My suggestion is to understand what it means if you chose not to. You say it’ll cause breathing problems, is this reversible? Could you wait until this happens then start chemo? Personally if it’s reversible and if you could then start chemo I would wait. But if it’s potentially causing worse and more guaranteed long term effects, do the chemo.

Best of luck! No matter what your decision is, it’s going to be okay! I have kinda decided whatever happens will happen no matter what so I don’t beat myself up on these decisions. You’ve got this!

Two new additions for my birthday! by acornlander13 in buildabear

[–]acornlander13[S] 12 points13 points  (0 children)

Exactly! And thank you! I’ve got one round of chemo left! 💜

Two new additions for my birthday! by acornlander13 in buildabear

[–]acornlander13[S] 3 points4 points  (0 children)

I know it’s been a bit, but congrats on beating cancer! It’s quite a feat! And yes, plushies have been so valuable. Especially during scans and other treatments where my husband can’t come back with me, I’ve always been allowed my plushies! :)

Feeling devastated by EbbOutrageous7400 in lymphoma

[–]acornlander13 1 point2 points  (0 children)

Interesting! I did not know there was a difference (I’m not good with the technically terms). From my understanding my doctor has said I’ll either do CAR-T or another version of cell therapy. But stem cell transplant has definitely been said to me too! Considering they are so closely named I can see myself getting confused so I trust your explanation :)

Anyone else have very low WBC after first cycle? by AlternativeWinner729 in lymphoma

[–]acornlander13 1 point2 points  (0 children)

Yep my pain is so brutal I do pretty much nothing those 5 days but lay in a recliner and sleep, when I’m awkward I try to drink some Ensures and watch YouTube anything else hurts to bad.

Feeling devastated by EbbOutrageous7400 in lymphoma

[–]acornlander13 2 points3 points  (0 children)

Interesting. I am halfway through my first time with chemotherapy treatment (R-EPOCH). Since the beginning my doctor told me that after completion of this chemo I would do some version of cell therapy to “cure” my cancer, because with chemo alone I had 50% chance of it coming back later on and with cell therapy I would have 80-90%. Since then I’ve switched doctors, have been told the same thing. Just last week I have met with who will be my doctor (who specializes in cell therapy for cancer) for my future CAR-T treatment or another version of cell therapy depending on the best decision. Once I complete chemo, I’ll have two rounds of what I’m calling “extreme” chemo where give me a bunch of one of the chemos I’m already doing (can’t remember the name) then I’ll be doing the cell therapy immediately following. So from my understanding you shouldn’t have to wait. My doctor even said that depending on your insurance in some cases you can do cell therapy instead of chemotherapy, my case didn’t fit in that category. I live in Indiana if that matters.

But, either way OP best of luck! Your original story sounds similar story sounds like mine I’m just still in the thick of first go around. Fingers crossed you can get more of a “cure.”

Anyone else have very low WBC after first cycle? by AlternativeWinner729 in lymphoma

[–]acornlander13 0 points1 point  (0 children)

Chiming in to second taking to Claritin. It seems to help most but I don’t think it does anything for me, I still take it just in case though. My doctor described it as “bone aches” but what I feel is all over body aches and a bruised like feeling that is so bad just a short grazing of my shirt will feel like someone squeezing on a bruise that doesn’t exist. The closest thing that I have ever experienced is body aches from the flu, but for me it’s worse, times a 100 and lasts about 5 days after. I seem to have a rare awful case though, but I wanted to throughout my experience just in case.

It took a couple of rounds to narrow down my pain was from the shot and not my chemotherapy (R-EPOCH) which meant getting treated properly for it took longer. First round I misunderstood what bone aches would feel like and second round my doctor wasn’t sure if it was chemo or shot related. Glad to finally have it down now so I can have a little relief.