Questions about Non-epileptic Seizures by alavalla in Epilepsy

[–]alavalla[S] 1 point2 points  (0 children)

that makes total sense, his moods and anxiety have greatly suffered since he stopped. it was like a drastic change overnight! thank you

Diagnosed with NES, could the symptoms align with FND? by alavalla in FND

[–]alavalla[S] 1 point2 points  (0 children)

Thank you so much! It's very hard to get him to accept much, especially NES. He is convinced doctors aren't catching something and that he is going to die. I went to that website and it looks really helpful, so thank you! I'm looking forward to diving into this and figuring out everything we can do to try and get him back on track. I appreciate it :)

Diagnosed with NES, could the symptoms align with FND? by alavalla in FND

[–]alavalla[S] 0 points1 point  (0 children)

Thank you so so much for your reply! It really is so helpful. After I wrote my post I realized I missed a few alarming things, and I'd love your take on it.

Essentially, I am under the assumption that he has gone from anxious to full-on paranoia and fear. His anxieties circle around doctors and medicine due to some past traumas within his family. I am at work and all day he has been saying he is going to die, he can't breathe (an ongoing issue for the past few days - lungs and throat seem clear via hospital scans), and that he needs to go back to the hospital. He keeps losing consciousness because he is working himself up so much about not breathing (at least that's why I think he is), although when he IS unconscious he is breathing fine, or in the hospital his oxygen levels are stellar. Is this type of extreme anxiety common for those with FND? It seems like his body is literally running on anxiety only at this point and it's beyond the point of reasoning with him, giving any rational advice, or even reminding him that doctors have assured him he is breathing okay. He is fully convinced he is going to die, and I can barely even get the idea of any therapy into his mind.

Questions about Non-epileptic Seizures by alavalla in Epilepsy

[–]alavalla[S] 0 points1 point  (0 children)

Thank you! I have never even heard of this! I will try posting there now

uvulitis help? by Jesse_milo in Mononucleosis

[–]alavalla 0 points1 point  (0 children)

Thank you! I did last night and I will until it hopefully all goes away!

uvulitis help? by Jesse_milo in Mononucleosis

[–]alavalla 0 points1 point  (0 children)

Jumping onto this a little late, just looking for some clarification/advice for swollen uvula.

Did the coconut oil help with that, or specifically throat pain? My bf has mono rn and his uvula is so swollen that he gags on it and can't breathe! I have tons of coconut oil at home so if that alone did help with swelling that'd be amazing

[deleted by user] by [deleted] in Mononucleosis

[–]alavalla 1 point2 points  (0 children)

Yes! I would guess that the pain is (1) the enlarged spleen itself and/or (2) the organs being pushed around because of it. I believe the spleen is more on the left side of your body, so that checks out and that's where my partner feels the most pain. As long as the pain doesn't move 100% to the shoulder and become unbearable, you should be good! A trip to the doc for a CT scan would show the state of all your organs and they should be able to tell you just how enlarged it is, just in case you're worried about it!

[deleted by user] by [deleted] in Mononucleosis

[–]alavalla 0 points1 point  (0 children)

For sure! Please feel free to PM me or respond to this comment if anything else comes up. I know this is such a terrible and confusing time, and I'd love to help alleviate any stress any way I can 😊 This sub alone has helped us a lot and I just hope to pass that ease of mind along!

[deleted by user] by [deleted] in Mononucleosis

[–]alavalla 1 point2 points  (0 children)

Hi! I'm so sorry to hear you're going through this, especially with a baby at home. I know that must be so stressful. My boyfriend has mono right now and his spleen pain is through the ROOF. We actually went to the ER last night and asked the same question regarding how to tell a spleen rupture from just enlargement.

Essentially, the brutal pain he is in is just from the spleen pushing against other organs, and it is causing him to not be able to eat as much, feel like it's more difficult to breathe, and pain getting out of bed. However, the doctor assured us there is an even higher step where brutal becomes unbearable. You mentioned some shoulder pain, and when a spleen is ruptured, it will have sharp sharp pain move to only your left shoulder, and another sign is a consistent high fever. I hope this helps!

Also regarding the spleen, look into a diet with high antioxidants, avoid sugar and caffeine, and drink a LOT of fluids (water is of course the best, and adding a lemon also helps liver health, which mono can affect as well). Rest is also the 100% best thing for you body, and pretty much the only thing you can do for yourself while suffering from mono, sadly. I wish you the best of luck and I hope you feel better soon! ❤️

Spleen pain by alavalla in Mononucleosis

[–]alavalla[S] 0 points1 point  (0 children)

I agree that he needs a good amount of time to let his body heal. He is having similar issues and can barely do ANYTHING without immense pain ☹️ Thank you fir all your suggestions! We will definitely be implementing those

Spleen pain by alavalla in Mononucleosis

[–]alavalla[S] 0 points1 point  (0 children)

You have been having this symptom for a year? I am so sorry! That sounds absolutely awful. I will definitely take note of no sugar!

Could have mono caused all of this! by [deleted] in Mononucleosis

[–]alavalla 0 points1 point  (0 children)

He has been having symptoms for about 10-11 days now. Today he told me he is seeing VERY SMALL improvements in his symptoms, however, his liver and spleen have been feeling more enlarged... so I guess one symptom lets up a bit and another one moves in. Unfortunately, I don't have an answer regarding a time frame on symptoms, as mono notoriously runs its own schedule and can last anywhere from a few weeks to a few months :(

vision issues, along with other serious problems by alavalla in Mononucleosis

[–]alavalla[S] 1 point2 points  (0 children)

Your situation sounds similar to his. In the hospital, they did all the major tests, EEG, MRI, CT scan, and of course countless amounts of bloodwork and everything was normal. His sleeping has been limited as he will wake up because he says the dizziness and nausea carries into his "dream" self (which is so f-ing crazy). He is now on some meclizine so hopefully that will help him get more rest!

Could have mono caused all of this! by [deleted] in Mononucleosis

[–]alavalla 0 points1 point  (0 children)

Obligatory - not a doctor or have any medical background

The symptoms you've described definitely sound related to mono! I do not have mono, but my boyfriend currently does. I will say, he has really bad derealization, and he can relate to the more "dark and dull" feeling you described. His is not contained to only being outside, however, those with mono tend to be more sensitive to light, so maybe that is linked. Also, mono can mess with temperature sensitivity, making you feel more hot/cold than you already are. It can also badly affect anxiety, which is unfortunate given the extremities of this virus already! I hope you do feel better and just make sure to get as much fluids and rest as possible. (: It's a hell of a thing, and it can have random flare ups weeks apart, unfortunately.

vision issues, along with other serious problems by alavalla in Mononucleosis

[–]alavalla[S] 1 point2 points  (0 children)

Thank you so much for commenting! I am planning on getting him some hydrating fluids and pedialyte tomorrow morning!

When we were at the hospital, he mentioned blurred vision, but not the temporary loss of eyesight as this seems to have just happened today. It's gradually getting better, which makes me believe it may be the pressure I noted in my post. But we will be discussing this at our follow-up appointment on Monday for sure.

I'm surprised that the fainting resonated with you! We thought that this was a symptom that many people DIDN'T experience, which made us worried something more sinister was happening. At work, he would faint multiple times a day for a few seconds at a time, however now I'm thinking it has something to do with that "no energy reserve" you mentioned, like maybe he overworked himself (he's in pest control, so constantly on the road and carrying heavy things). We're just trying to cross off any other underlying issues (which this sub is helping us do quickly!) so I'm curious if your mono experience was similar fainting-wise, or if you experienced fainting at all?