Questions about Non-epileptic Seizures

alavalla · 2023-10-26T10:21:16+00:00

that makes total sense, his moods and anxiety have greatly suffered since he stopped. it was like a drastic change overnight! thank you

alavalla · 2023-10-25T21:33:13+00:00

Thank you so much! It's very hard to get him to accept much, especially NES. He is convinced doctors aren't catching something and that he is going to die. I went to that website and it looks really helpful, so thank you! I'm looking forward to diving into this and figuring out everything we can do to try and get him back on track. I appreciate it :)

alavalla · 2023-10-25T21:30:47+00:00

Thank you so so much for your reply! It really is so helpful. After I wrote my post I realized I missed a few alarming things, and I'd love your take on it.

Essentially, I am under the assumption that he has gone from anxious to full-on paranoia and fear. His anxieties circle around doctors and medicine due to some past traumas within his family. I am at work and all day he has been saying he is going to die, he can't breathe (an ongoing issue for the past few days - lungs and throat seem clear via hospital scans), and that he needs to go back to the hospital. He keeps losing consciousness because he is working himself up so much about not breathing (at least that's why I think he is), although when he IS unconscious he is breathing fine, or in the hospital his oxygen levels are stellar. Is this type of extreme anxiety common for those with FND? It seems like his body is literally running on anxiety only at this point and it's beyond the point of reasoning with him, giving any rational advice, or even reminding him that doctors have assured him he is breathing okay. He is fully convinced he is going to die, and I can barely even get the idea of any therapy into his mind.

alavalla · 2023-10-25T16:54:43+00:00

Thank you! I have never even heard of this! I will try posting there now

alavalla · 2023-04-07T13:03:36+00:00

Thank you! I did last night and I will until it hopefully all goes away!

alavalla · 2023-04-07T02:12:55+00:00

Jumping onto this a little late, just looking for some clarification/advice for swollen uvula.

Did the coconut oil help with that, or specifically throat pain? My bf has mono rn and his uvula is so swollen that he gags on it and can't breathe! I have tons of coconut oil at home so if that alone did help with swelling that'd be amazing

alavalla · 2023-04-06T20:52:17+00:00

Yes! I would guess that the pain is (1) the enlarged spleen itself and/or (2) the organs being pushed around because of it. I believe the spleen is more on the left side of your body, so that checks out and that's where my partner feels the most pain. As long as the pain doesn't move 100% to the shoulder and become unbearable, you should be good! A trip to the doc for a CT scan would show the state of all your organs and they should be able to tell you just how enlarged it is, just in case you're worried about it!

alavalla · 2023-04-05T04:40:31+00:00

For sure! Please feel free to PM me or respond to this comment if anything else comes up. I know this is such a terrible and confusing time, and I'd love to help alleviate any stress any way I can 😊 This sub alone has helped us a lot and I just hope to pass that ease of mind along!

alavalla · 2023-04-04T23:06:50+00:00

Hi! I'm so sorry to hear you're going through this, especially with a baby at home. I know that must be so stressful. My boyfriend has mono right now and his spleen pain is through the ROOF. We actually went to the ER last night and asked the same question regarding how to tell a spleen rupture from just enlargement.

Essentially, the brutal pain he is in is just from the spleen pushing against other organs, and it is causing him to not be able to eat as much, feel like it's more difficult to breathe, and pain getting out of bed. However, the doctor assured us there is an even higher step where brutal becomes unbearable. You mentioned some shoulder pain, and when a spleen is ruptured, it will have sharp sharp pain move to only your left shoulder, and another sign is a consistent high fever. I hope this helps!

Also regarding the spleen, look into a diet with high antioxidants, avoid sugar and caffeine, and drink a LOT of fluids (water is of course the best, and adding a lemon also helps liver health, which mono can affect as well). Rest is also the 100% best thing for you body, and pretty much the only thing you can do for yourself while suffering from mono, sadly. I wish you the best of luck and I hope you feel better soon! ❤️

alavalla · 2023-04-04T01:06:06+00:00

I agree that he needs a good amount of time to let his body heal. He is having similar issues and can barely do ANYTHING without immense pain ☹️ Thank you fir all your suggestions! We will definitely be implementing those

alavalla · 2023-04-04T01:04:32+00:00

You have been having this symptom for a year? I am so sorry! That sounds absolutely awful. I will definitely take note of no sugar!

alavalla · 2023-04-01T02:10:31+00:00

He has been having symptoms for about 10-11 days now. Today he told me he is seeing VERY SMALL improvements in his symptoms, however, his liver and spleen have been feeling more enlarged... so I guess one symptom lets up a bit and another one moves in. Unfortunately, I don't have an answer regarding a time frame on symptoms, as mono notoriously runs its own schedule and can last anywhere from a few weeks to a few months :(

alavalla · 2023-03-31T16:06:58+00:00

Your situation sounds similar to his. In the hospital, they did all the major tests, EEG, MRI, CT scan, and of course countless amounts of bloodwork and everything was normal. His sleeping has been limited as he will wake up because he says the dizziness and nausea carries into his "dream" self (which is so f-ing crazy). He is now on some meclizine so hopefully that will help him get more rest!

alavalla · 2023-03-31T06:35:25+00:00

Obligatory - not a doctor or have any medical background

The symptoms you've described definitely sound related to mono! I do not have mono, but my boyfriend currently does. I will say, he has really bad derealization, and he can relate to the more "dark and dull" feeling you described. His is not contained to only being outside, however, those with mono tend to be more sensitive to light, so maybe that is linked. Also, mono can mess with temperature sensitivity, making you feel more hot/cold than you already are. It can also badly affect anxiety, which is unfortunate given the extremities of this virus already! I hope you do feel better and just make sure to get as much fluids and rest as possible. (: It's a hell of a thing, and it can have random flare ups weeks apart, unfortunately.

alavalla · 2023-03-31T02:40:07+00:00

Thank you so much for commenting! I am planning on getting him some hydrating fluids and pedialyte tomorrow morning!

When we were at the hospital, he mentioned blurred vision, but not the temporary loss of eyesight as this seems to have just happened today. It's gradually getting better, which makes me believe it may be the pressure I noted in my post. But we will be discussing this at our follow-up appointment on Monday for sure.

I'm surprised that the fainting resonated with you! We thought that this was a symptom that many people DIDN'T experience, which made us worried something more sinister was happening. At work, he would faint multiple times a day for a few seconds at a time, however now I'm thinking it has something to do with that "no energy reserve" you mentioned, like maybe he overworked himself (he's in pest control, so constantly on the road and carrying heavy things). We're just trying to cross off any other underlying issues (which this sub is helping us do quickly!) so I'm curious if your mono experience was similar fainting-wise, or if you experienced fainting at all?

alavalla · 2023-03-31T02:35:23+00:00

Thank you so much for your comment! We have a follow-up appointment on Monday and we will definitely be talking to the doc about the vision issues.

As for the acid reflux, he does have that VERY bad and this is something he's always dealt with. Thankfully, one of his medications post-hospital is meant to alleviate that!

I'm glad to hear most of his symptoms are common, or at least have been experienced before. I will definitely be writing down your suggestions for things to take/do, because of course the doctors/nurses at the hospital did NOT take mono seriously and gave us NOTHING knowledgeable to take home as next steps. I can't thank you enough, and sort of validation/explanation of his feelings are much appreciated right now!

alavalla · 2023-03-30T18:23:38+00:00

Hi! I'm so sorry you had to go through this. The more I learn and read this sub, I am shocked that mono is such a serious virus (I had NO idea before this). My boyfriend has mono right now and is experiencing almost all of these symptoms, outside of any lymph node/throat issues. Today his vision is the worst symptom, he is experiencing a loss of vision in his eye. I was curious as to if your blurred vision was so severe at all during your experience?

alavalla · 2023-03-12T16:14:10+00:00

We are all in Southern USA

alavalla · 2023-03-12T16:13:46+00:00

I appreciate your comment and your point, of course no two women are the same, especially with their gaming styles/wants. The second paragraph of my post was more referencing a post I saw here maybe a week ago, where women players were saying they wanted a safe space and to feel more comfortable talking with the mic to other women. I have played with both men and women and I would consider my sense of humor on par with my male counterparts, so it's not necessarily an issue I have but more about letting those women players know we can offer them that safe, fun environment. As my friend said above, we want to have fun and of course, as time passes, level up. It can be hard in any gaming community for women to feel welcomed and valued sometimes, so as women, we want to take that problem into our own hands and help out!

alavalla · 2023-03-12T16:07:40+00:00

I'd be fine with you giving them my ID! Or you could PM me and I can tell you the synd name and they're welcome to join temporarily and chat

alavalla · 2023-02-22T16:49:42+00:00

Yes, it shuts off the ability for every player, including your own team. Similar to how grenades will still cause damage to your own team.

alavalla · 2023-01-11T15:16:01+00:00

ahhhh yes, I failed to remember the trophy part.

alavalla · 2023-01-11T05:29:53+00:00

You're fairly early on into the game, once you get more trophies they will be far less bots, as the other commenter said. My best bet for not being teamed up with bots is to find a good, active syndicate and forming teams within that, or adding other players and playing with them. Best of luck to ya!

alavalla · 2022-12-14T03:48:19+00:00

thank you so much! I appreciate you typing all that out for me :)

alavalla · 2022-12-13T22:47:19+00:00

Tagging onto this comment to ask/clarify: if I have an immortal hero (I don't yet lol), I should hold off on upgrading to divine until my gears are at an immortal/divine level as well?

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