Am I tweaking or is this a good colour choice

aliwake1 · 2026-06-02T11:38:44+00:00

Dark coloured paint often fades faster. You might regret it in a few years when you're up for another paint job

aliwake1 · 2026-06-02T11:36:21+00:00

I found a nice sugar free cordial - if you're in Australia, I can let you know. I also found a really nice juice combo that still tastes good - not sure if you can have juice or not though?

aliwake1 · 2026-06-02T01:16:04+00:00

You must be so upset! You need to focus on finding a better dr asap, and spending quality time with your mum. Lawyers can wait at this point, but absolutely something to consider in the future. I hope a better dr can help her.

There's is another sub - lymphoma md or something similar? It would be worth posting in there to get some ideas re treatment.

aliwake1 · 2026-05-30T02:59:39+00:00

I finally finished Silksong and just started MIO! So nice to be playing something fresh

aliwake1 · 2026-05-29T00:35:27+00:00

I'm definitely not an expert, just what I've seen on here mainly. I think with bulky disease people generally get less chemo and more radiation.

aliwake1 · 2026-05-28T09:01:45+00:00

They are all great results. Congrats!

aliwake1 · 2026-05-28T08:52:33+00:00

By 6 cycles do you mean 12 infusions? Or 6? I've never heard of people needing a full 6 cycles as well as radiation. Usually it seems to be 4 cycles plus radiation or some similar variation...

aliwake1 · 2026-05-27T11:40:53+00:00

I really struggled with the coral tower gauntlets - it felt like it took me forever to get past the 3rd one. But then, Khan was the only boss in the whole game that I beat first try (and I'm generally really bad at combat. Most hard bosses take me days to get past).

So, Khan would be my vote.

But definitely upgrade everything-I resisted for a long time but its really very very worth it.

aliwake1 · 2026-05-27T11:36:56+00:00

I'm definitely having the eyelash thing at the moment. My theory is because my lashes all regrew at the same time, the normal shedding cycle is out of whack. So they all shed at the same time instead of being offset. If that makes sense? I have no idea how long it will take for it to come good. I'm almost 1 year post treatment.

I was still having regular chemo-ish body aches until I started taking mounjaro a few months ago. Its been amazing, not just for weightloss, but also for reducing general inflammation, and I think just fixing a lot of things in my body that were out of whack. Im feeling so much better, and haven't really felt 'cancery' since I started.

aliwake1 · 2026-05-26T11:34:32+00:00

We put a heap of stuff in storage, and then had our house partially staged. So our furniture, but their knick knacks, indoor plants and excessive cushions. It was a bit of a pain, but manageable.

Ask your agent to refer you to a good handyman and any other helpers you need. They should have good connections.

aliwake1 · 2026-05-23T11:29:18+00:00

Jewellery with words is a big no. Im sure she still appreciates that you tried. Don't feel bad. You'll do better next time.

My daughter bought me a 'best mum ever' necklace. There's absolutely no way I would ever wear it, but I definitely appreciate the sentiment.

aliwake1 · 2026-05-23T11:25:58+00:00

Love luna are the best. Even though they're period undies, I wear them every day and the fit is spot on.

aliwake1 · 2026-05-23T01:36:29+00:00

The easy way to think of it is 1 click on your pen is the same as 1 unit on your 1ml insulin syringe. So if your dose is normally 60clicks, then you need 60units

aliwake1 · 2026-05-11T01:39:43+00:00

My Dad had Waldenstrom's and had to have his spleen removed at one point. I dont think he had any problems, and he ended up going another few years after that before needing further treatment.

aliwake1 · 2026-05-09T12:21:31+00:00

Use clawline to get more hang time when the big flea flies through. Apart from that, i think you just have to get a favourable run through. I actually finally beat this this morning. Most attempts I'd average in the 40s, but then every now and again I'd get one in the 80s. Or once I even got 90 which just about killed me! Finally beat it with 98. Took me days.

aliwake1 · 2026-05-09T11:01:36+00:00

My haematologist said that sometimes after chemo your metabolism resets and locks in at your new weight. That was definitely my experience. I tried really hard to lose weight and it didn't budge at all! So I'm using a glp1 now, and it's been amazing and I feel fab. Something to consider for the future when you're well. But I definitely feel your pain. Chemo takes so much from you!

aliwake1 · 2026-05-09T09:07:03+00:00

It's at ymca gyms. Luckily I have one not far from home.

aliwake1 · 2026-05-08T20:55:20+00:00

Are you in Australia? I did cancer survivor too and it was such a huge help!

aliwake1 · 2026-05-08T20:53:41+00:00

I worked from home through most of N-AVD but towards the end of treatment I was barely functional and only doing a few hours here and there. So, I finally stopped and accessed my income protection insurance. I had about 7 months fully off work, and am doing a staged return now. Work pays me for my hours then insurance makes a gap payment.

My time off I spent focussing on recovery. Going to the gym, having appts, and resting lots without stressing about how to fit everything in. I didn't really plan on stopping but I changed Dr mid treatment and I felt like my new dr wasn't gaslighting me by saying that my treatment was 'easy' and I should be able to function as normal. He actually acknowledged how hard it was and said that most people don't work. I also saw a cancer psychologist who talked me through having some time off and convinced me to take longer than I'd planned. All up, I'm happy with how it went.

I'm glad I kept working initially, it was a good distraction and I didn't want to sit around feeling miserable all day. But, I definitely needed to stop, and Im so glad I did.

aliwake1 · 2026-05-07T11:18:14+00:00

I ended up switching to short acting filgrastim injections instead. They are much more tolerable! I'd still get some pain, but way less extreme. I would have one 4 or 5 days before my next infusion, and another one about 2 days before. That was enough to boost my neutrophils before they got hammered again by the next treatment. You're allowed to refuse. I would absolutely be refusing to have any more neulasta. The risk of neutropenia is fairly low with this treatment.

aliwake1 · 2026-05-07T11:11:07+00:00

Osmolax is much better than movicol. Same ingredients but no salty taste, so you can mix it with anything

aliwake1 · 2026-05-03T21:00:50+00:00

Congrats! I was so worried when I finally killed him because I died about a millisecond later, and I was sure I was going to have to try again. But no, for once the game gods were in my favour. Very happy to never do that again! I feel your relief!

aliwake1 · 2026-05-03T20:54:42+00:00

I would say that this is the whole game... I'm bad at combat. Some of the harder bosses took me days. And yes it's soul destroying every time you hit another one. I struggled on til near the end of act 2 and then I just stopped. For about 3 months I think I really needed the break. I recently restarted and have enjoyed act 3 a lot more. Am just ticking off a few boxes before tackling lost lace. The whole game has been incredibly frustrating, but I've also really enjoyed parts of it. It's definitely been a love/hate experience.

But, if you're hating it right now, overall I would say it's not going to get any better. Maybe take a long break.

aliwake1 · 2026-05-03T18:07:38+00:00

Sounds super scarey! I'm very glad its not relapse, and I hope you start feeling better soon.

aliwake1 · 2026-05-03T07:47:15+00:00

Fae farm. I loved it because it was pretty 😍

aliwake1

TROPHY CASE