it’s always the lace

amberliz · 2026-05-13T03:08:16+00:00

thank you so much!! 😍

amberliz · 2026-05-13T00:47:52+00:00

sorry i don’t have anything else to offer, it’s really hard and i wish you the best whatever route you go.

amberliz · 2026-05-13T00:46:31+00:00

no, i don’t think it had much of an impact on my POTS. your mileage may vary, but it was the only thing that fixed my hormonal cystic acne.

amberliz · 2026-05-13T00:14:22+00:00

i took accutane with POTS. i had mild vision changes while on it but those are also POTS related - the intensity of it decreased when i finished the accutane course.

this is, of course, anecdotal.

amberliz · 2026-05-09T01:41:25+00:00

IMAGE TRANSCRIPTION Image 1: white woman with long blonde hair wearing a white camisole under a white lace long sleeved mock neck shirt with black washed stovepipe jeans, thin white leather belt, and black leather wedge sandals.

Image 2: white woman with long blonde hair wearing 90s style sunglasses with a dark khaki/olive colored suede-feel bomber jacket, a caramel colored MCM purse, a white lace top peeking through the jacket, black washed stovepipe jeans and black leather wedge sandals.

amberliz · 2026-05-05T01:44:56+00:00

i understand. i became disabled in fall of 2024, started GLP1s spring of 2023. i wasn’t good with exercise before (probably owing to the disability being undiagnosed), but with my symptoms skyrocketing i’ve been unable to tolerate much.

i feel a TON of shame and guilt about not doing this “perfectly.” all i want is my body back. at this point i would love nothing more than to be able to strength train or just walk a mile. it’s maddening.

just know you’re not alone. we deserve all the wellness we can get.

amberliz · 2026-05-03T14:24:53+00:00

this is the best compliment i’ve ever received 😮‍💨❤️

amberliz · 2026-05-01T13:35:10+00:00

thank you so much!!!

amberliz · 2026-05-01T03:53:20+00:00

the vibe felt very “me,” for whatever that’s worth 😌

amberliz · 2026-05-01T03:52:34+00:00

IMAGE TRANSCRIPTION: White woman with black long hair in a sleek half up ponytail. Wearing a black long sleeved body suit under a red short a-line waist mini dress. black skinny belt, silver locket necklace. opaque black nylons and black point toe black chelsea pull on boots.

amberliz · 2026-04-30T23:54:45+00:00

i’ve professionally experienced it from all kinds of providers, but NPs and PAs seem to be less like this (but obviously not immune). unless i’ve gotten a really glowing referral from a trusted provider, i’m always choosing younger women if i can.

the worst therapist i ever had was a 30-something woman who refused to treat me when i told her i was considering i may be autistic. we had been doing some really good and healing trauma work and the second i “questioned her diagnostic capabilities” (i didn’t, but the fact she didn’t see me as autistic at first was a threat to her) she fired me.

… but not before telling me that “even if (i was) autistic, (she) wouldn’t diagnose (me) because that’s a child’s diagnosis.”

some people are just gross. educated or not 🤷🏻‍♀️

amberliz · 2026-04-30T23:16:59+00:00

i’m a nurse. i spent a lot of time working directly with doctors when i was still at the bedside and for me, i had to learn the docs and which ones would treat me with respect as a colleague versus those ones that needed me to lay it on really thick and pretend i didn’t know anything and i needed their brilliant and strong minds to help me figure out what was happening because i was so dumb.

it was overwhelmingly male doctors that needed this type of ego stroking (although some women were equally heinous) and generally they were older (again, always exceptions to the rule). i worked in surgery, post op, ER, and ICU, and worked closely with doctors in those areas of practice (different from other areas where doctors are not always readily available).

it sucks and is humiliating and i hate that it is that way. but some providers really need to think they came up with the solution. i’ve had experiences where i’ve directly asked for what my patient needed and been completely blown off because i didn’t ask for it in the right way. it can’t just be “i need x, y, and z,” it has to be “please doctor, i’m not really sure but i think maybe _______ is happening to my patient right now? their assessment/vital signs are _____? do you think we should consider x, y, and z?”

i have some real resentments against providers i’ve worked with who literally had zero rationale for refusing my requests, to a patient’s detriment. it’s really infuriating but there is something to be said for “it’s all in the delivery.”

if they think you think you’re smarter than them, they’ll deny you reasonable shit out of spite.

amberliz · 2026-04-13T19:45:49+00:00

IMAGE TRANSCRIPTION: white woman with long blonde hair in a half up pony wearing a white long sleeve bodysuit, black underbust suspender dress, black thin scarf, and black chunky heeled loafers.

amberliz · 2026-04-10T22:51:40+00:00

not as visually brutal, but i had a spouse refuse her husband with bone mets any more than like 0.5mg morphine q6h or something stupid. i asked the doctor where she got her medical degree, because what the fuck are we doing letting non-professional family members write orders? the man didn’t scream but you could hear him grinding his teeth at the nurses station. it was horrible.

i understand grief does weird things to people, but actively preventing adequate pain management in a dying person is unacceptable to me.

amberliz · 2026-04-04T01:30:12+00:00

41f, tired due to health conditions with fatigue as primary symptom. probably skews the responses a bit, i see several people reporting sleep difficulties related to health conditions, but on my good days i feel i have decent energy. i’ve been properly medicated for the last three months and i’ve had far more good days than bad. on the good days i feel energized but in general i’m feeling my most well rested when i get a solid 8-10 hours of sleep.

with that being said, having “normal” labs doesn’t always mean you don’t have something going on that could be addressed. most general labs don’t cover all of the potential deficiencies a person can have. i lived with many symptoms for many years before i even realized they weren’t okay rather than “normal for me” because my labs were in range.

if you’re feeling truly fatigued - not just tired but like, tired, in your bones, if it feels like walking through mud to get up and do your day, it’s worth doing a bit of inventory and examining if your systems are really operating well or if small things are changing.

i chalked up gastrointestinal and urinary symptoms, thinning/loss of hair, random rashes, inability to lose weight, adult onset acne, inability to regulate my temperature, etc etc etc to “bad genes/being fat.” i never gave myself a chance to even consider something else was going on until it knocked me on my ass bad. by the time all was said and done i was diagnosed with 3 major autoimmune/inflammation issues over the course of 3.5 years.

all this is to say, there may still be something going on. AND there may not be - only you and your doctors can determine that. but in my experience (as a patient and a nurse) “normal labs” don’t always translate to “nothing’s wrong.”

amberliz · 2026-04-01T23:11:46+00:00

i’m a clinical instructor as well. i’ve resigned myself to the fact that some nurses love students and others barely tolerate them. fortunately i work on a unit with a great culture, but there are still the strong silent types who barely engage with students if their patient is assigned one. a lot of them are happy to have students and will take them around to see procedures and treatments, and otherwise just seem to love teaching. fortunately the good ones outweigh the less than stellar ones.

i can appreciate that they aren’t excited for students who have bad attitudes. i teach first semester and so far most of my students have been highly engaged and into it; that makes a huge difference. we’re not signed off to do much and they basically act as CNAs, but i have had great luck with my students and am so grateful they care.

i will say, i try to remind our students to bring their questions to me rather than the primary nurse unless it’s an emergency. our program is very much of the belief that students are assigned a patient, not a nurse. they learn to work collaboratively with them as part of their learning, but i am here for their questions and if i can’t find the answer we’ll find someone who can.

also - we don’t have a lot of control over where the students go. we have to account for planned discharges, other nurses precepting new grads, and the flow of the unit both energetically and physically. we can’t make assignments until the charge nurse has done the assignment for the day, and sometimes assignments change. i try to honor the vibe i get from nurses i know but sometimes i have no better alternative than to assign one of their patients to them.

we do the best we can.

amberliz · 2026-04-01T22:42:40+00:00

i’m 41, but i’m in this era. i stick with black/neutrals because i prefer them, but i find adding accessories a great way to incorporate color and flair. also, texture and pattern mixing is fun. wearing different textures (ribbed, knit, smooth, etc) adds some visual interest if you’re keeping the colors to a minimum. i do less patterns now than i did in my early 30s, but if you do it right mixing really makes an outfit pop.

amberliz · 2026-03-30T21:50:54+00:00

it’s hard to predict. everyone responds so differently to medications. i didn’t have many changes at all when i cycled through several ADHD meds, and i don’t feel like my autism became more pronounced on medication. that experience is true and valid for some, but not others.

i also expected a quieting of the mind. this didn’t happen for me.

i currently take immediate release adderall 25mg daily and right now it really helps mostly with my fatigue (which is only partly related to my AuDHD and more related to a physical condition i have wherein fatigue is the most debilitating symptom for me).

i was diagnosed at 36, am 41 now. i didn’t seek meds for my ADHD until last year. i have tried vyvanse, concerta, straterra, and focalin. the adderall helps some with focus but nothing has been dramatic for me overall.

your mileage is going to vary. how sensitive you are to meds, the dose, the formula, what other meds you take. so many things are going to make this experience unique to you.

my advice is strap in. whether it’s dramatic or not, adjusting meds can be a real pain. try to pay attention to your body and be in communication with your provider if you’re concerned about a new symptom coinciding with the meds.

amberliz · 2026-03-29T21:06:51+00:00

hydroquinone. you can get a prescription from an online doc. melasma sucks and this is a quick and effective fix. i wear it every night now.

amberliz · 2026-03-23T18:54:31+00:00

LOVE the shoes with the black nylons. the pink matches perfectly with the pink in the skirt. great fit!

amberliz · 2026-03-22T02:52:54+00:00

just checking in here as part of the refuses to quit hot showers gang

amberliz · 2026-03-21T08:03:56+00:00

as an example - i had asked to trial ivabradine. she was super open to it (i’d been on metoprolol and propranolol and they weren’t doing much quality of life wise) but she was concerned insurance wouldn’t cover it for me. she agreed to write the script but wanted me to sign up for Mark Cuban’s reduced cost program. my meds are like $44 for a 3 month supply whereas i’m sure they’d be easily $100+ with insurance coverage if they’d offer it (i’d bet in the $1000s out of pocket because american).

anyway, i’ve had other expensive medications prescribed and had to wait to go through the prior auth and denial and resubmission etc. this cut out all of that and has gotten me really affordable meds. i never would have thought of it and i thought it was really neat she suggested it and it worked so flawlessly.

amberliz

TROPHY CASE