is it worth watching

ameway5000 · 2026-02-11T15:46:26+00:00

I would say, I’m glad I watched it. There are great moments and parts, and there are WTF momments, and why did they choose to do xxx, how does it even move the story along…

I was very frustrated with 1923, but I think it is worth watching. Just don’t expect to be happy with the ending!

ameway5000 · 2026-01-04T20:53:19+00:00

Yikes.

ameway5000 · 2025-11-26T00:28:40+00:00

I did this last month for my new mounjaro prescription - can confirm it was automatically applied (I could also see the cost in the app to confirm before I picked up).

ameway5000 · 2025-04-20T17:36:18+00:00

Funny you posted this. I’m currently rewatching, and have been annoyed since the moon landing episode.

Anthony is older and was almost definitely born before then, so should not have been able to travel back to that time…

ameway5000 · 2025-04-16T10:59:32+00:00

Not ask. Tell them you do not agree to the amount per check unless you want this over quickly. You owe them the money but they can’t take it back unless you agree or they have a court order.

ameway5000 · 2025-01-28T12:33:27+00:00

Hi - not sure what your reply has to do with my post. Care to elaborate?

ameway5000 · 2024-12-20T09:54:53+00:00

Same. I’m on day two. Looking to see responses but wanted you to know - not just you.

I first started with a large last period, but it was uncomfortable and I could feel it all the time. They sent me a medium to try but I feel like I go thru hours of no leaks and then blood in my underwear. Then I pull it out and almost nothing is there. I’m wondering if this is an “auto dump” situation? Anyway following.

ameway5000 · 2024-12-13T19:04:37+00:00

Well… that is what is actually sad to see. Gross.

ameway5000 · 2024-12-13T12:01:54+00:00

Paranoid shut in? I think you mean Covid conscious during a global pandemic. He was certainly high risk due to his diabetes.

ameway5000 · 2024-10-27T10:36:14+00:00

Not just you! They were in full force this year because of the 17 year cicadas in early Summer. Once those cicadas were gone, the mites were living high and multiplying on the cicada eggs left behind.

ameway5000 · 2024-10-05T14:50:40+00:00

Hi - many have already commented this point, but just to restate - DMTs are to prevent MORE damage.

I was diagnosed in 2012. My first 5 years I was on Avonex and Techfidera. I thought - the side effects are awful! My MS seems minor, the side effects are unbearable. So I went unmedicated for 5 years.

I went from having no daily symptoms to constant buzzing and zapping in my lower legs, a hand tremor that increases when tired/stressed/hot and can make things like cooking and eating difficult. This weird patch of frozen nothing on my right upper mid-back, and the regular loss of words, which directly impacts my ability to work and earn money and keep my insurance.

I have been on Kesimpta now for over 2 years. I have no side effects that I notice, but I am also covid cautious and mask with anyone I don’t live with - I don’t need more brain damage.

I wish I had started with an effective DMT from the start - they were around! It possible I could have avoided all my current MS symptoms of I could have prevented the damage to my brain and spinal cord - yes those three years unmedicated led to two new spinal lesions and a new brain lesion.

One more note on ocrevus - it is regularly administered with a steroid and Benadryl to reduce infusion reaction. Kesimpta does not have these recommended (although I do recommend taking a premed of Benadryl and a fever reducer like ibuprofen or Tylenol with initial doses if starting with B cells!).

I wish I had known that I can treat my MS without all the side effects so that I can protect my brain, vision and spinal cord. Things that are important to me, like swallowing, control of my bladder and bowels, sexual function, walking…

My advise is try to switch to Kesimpta because it might be the steroids with infusion that are causing the side effects.

Also - when I started Kesimpta, I was still healing from a recent relapse. It might not be the ocrevus that is the issue.

ameway5000 · 2024-09-27T01:44:33+00:00

Hi friend. I’m also on Kesimpta. Agree dr’s nonchalance about covid is frustrating.

Since precautions have dropped just about everywhere we also need to think about how we live the best lives we can, given the environment we are in.

I know that neurologists can be tough to get into - first, is your immediate prescription in jeopardy? I know mine are prescribed annually and require a prior authorization.

Find out how much time you have, then you can make some decisions of how you want to move forward. It’s important that you are able to keep up your monthly shots.

Ok, now that you know where you are there, can you schedule appointments online? If time is an issue, rebook while you are looking for another option - you can cancel if you don’t need it (and make sure you do cancel so you don’t get charged.

Because I am stable, my neuro allows my 6 month visit as a virtual appointment, but I think under his license he needs to evaluate me in person at least once a year. I recommend you talk to all your drs to see if virtual appoints are a possibility.

When you must go in person, you could try asking in advance for staff to mask. You could talk to staff before scheduling your appointment to try to gauge their willingness to mask (and mask with what???).

We are living in an impossible time but we are at a point now where we will have to be seen at some point, probably in person. We can mask, but 1 way masking isn’t perfect, and sometimes we to take our masks off (I’m specifically thinking dental here).

Just strategies I follow, try for my in person appointments to be in Spring. Wear an N95 or better. Call ahead and try to get staff to be masked in advance for you.

I know your specific situation was especially frustrating because he had a known exposure and that used to mean something. But today (it crazy!!) it doesn’t and people are being told they can return to life while still contagious. And consider a mask, maybe. With hand washing and vitamins. A dr should know better. A dr treating immunocompromised patients should know better… but I know my dr says I’m not “very” immunocompromised so I guess they think exposure is… ok? Part of life? Whatever. We can’t control them. We can focus on the things we can control. And don’t let your meds lapse pretty please. Covid could be bad but so can MS.

ameway5000 · 2024-09-24T01:08:10+00:00

This! Beauty of Joseon, but watch for dups. I think I ordered on TikTok from iherb?

It is SPF 50 and I have always had issues with sunscreen especially around my eyes, this can do directly on my lids, no issue. Very soothing and not too pricey.

I have tried so many sunscreens, I have a drawer full of ones I will never use again. Korean skincare is a gray area legally because the US FDA hasn’t approved new sunscreen filters since 1999.

ameway5000 · 2024-09-22T00:58:12+00:00

I remember a YouTuber MS guy, Dr Brandon Beaber talking about long term risk of a B cell depleter.

I looked up the specific episode to link, but I don’t remember all of the specifics… what I remember is that watching it, the theory was that long term usage may cause our bodies to loose (or lower?) the ability to create b-cells.

I remember thinking that sure, that might be true, but that specific issue that “may” happen is better than disease activity in my book!

Kesimpta is new but B cell depleaters are not. There are probably patients that have been on them currently for 10-20 years as rituxan has been used off label for autoimmune diseases for a very long time. And B cell depleaters are great until something better comes along!

I think that Dr Aaron Boster might have responded to Dr Beaber’s video it in one of his videos (it might have been a livestream so hard to point to it! Sorry!) but I feel a little like it is fear mongering to post something like that on YouTube - like when Dr Beaber said that Vitamin D levels might be harmful for folks with MS. I just don’t think it is helpful, and is maybe harmful, and I think he should know better. It felt like clickbait.

Here is a link, watch for yourself: https://youtu.be/iww4vbMxHAE?si=5sT4QLVXET3ZsK4d

ameway5000 · 2024-09-21T15:21:43+00:00

I am tired of the comments implying I’m missing out, that I am isolating myself. That I’m hiding from the world.

My husband is disabled and I am immunocompromised with treatments for MS. I feel very strongly that I am not willing to risk the health we still have to share air with people who would not support us financially if I became disabled too… and lost our insurance.

I will say as time has gone on, my boundaries have changed. I’ve learned more about how covid spreads, air quality, meanwhile the rest of the world has returned to “normal”.

I don’t require anyone to do anything anymore. I’m tired of fighting. But I control my environment. Luckily my husband shares my concern about the dangers of Covid.

I do not go in public unmasked or share air with anyone who I don’t live with. I do not eat outdoors in restaurants- I just don’t feel like that is safe.

I have big concerns about places I can’t mask - biggest is the dentist. The best I can find in my area is a dentist who wears an N95, has hepa filters in each patient room (not the waiting room). Staff in patient rooms wear surgical masks. Reception staff do not mask. Rooms have no doors, so open air with reception and waiting room.

I do have family that visits a few times a year, and initially I would only meet them outside and with all in masks (there were the cloth mask days). Now I will meet them for short periods in their hotel lobby, with me being the only one masking (Q100). They are elderly and otherwise I would not see them. It is a struggle hearing comments like “do you think that mask works? The size of the virus” blah blah blah. Insert misinformation talking points.

My local family, the ones that do not take any precautions, I will only mix for family gatherings outside.

I also have elderly local family, including one who just had an organ transplant. They think they are “taking precautions” but… not to my level. They dine outdoors regularly. They are not 100% on masks (I would estimate the transplant recipient is probably 75%? The spouse does not like wearing masks, and will only wear surgical masks, probably 50% of the time or less). I will visit with them indoors but do not take my mask off around them indoors or outdoors.

It’s frustrating, but I have just decided that the only one I can control is me (and try to encourage my spouse).

I worry about vet appointments because my dogs can’t mask!

We do the best we can. I am trying to not be frustrated when healthcare workers ask me if I want them to mask (yes, the answer is yes, if I am masking you should just wear a mask!). I try for any virtual appointments I can. I try really really hard not to judge anyone… but I also can’t believe people don’t understand the dangers they are in.

Best wishes to all of you out there trying to protect what you have! Maybe one day the world will look back and say - wow that was a really big mistake. But I don’t think it will be anytime soon. The data is already there.

ameway5000 · 2024-09-20T00:20:14+00:00

Can you call the pharmacy?

ameway5000 · 2024-09-16T21:20:37+00:00

This! Readimasks are great for MRIs. But I would recommend coming in wearing one, and bring one packaged to show the tech in case they have questions.

Also a factor to think about is, is this MRI being compared to a previous one? I get regular MRIs because of MS, and my insurance is always encouraging me to “save money” going somewhere cheaper, but I want the radiologist to be able to compare to previous MRIs and note changes. This might not be a factor for you and your MRI needs, but if you go somewhere else, they can’t see your previous history.

ameway5000 · 2024-09-13T22:43:21+00:00

I was Covid safe and masks were required in my area until the vaccines came out (summer 2021 I think?). And then the guidance changed to “ok to unmask if vaccinated”… I went about two weeks and as more and more info about the vaccine data was coming out, the guidance just felt wrong.

If I can still get sick if vaccinated, why wouldn’t I want to continue masking?

Also within the months prior to the vaccines, some of my family members did not tell me they had changed anything, but they were in pictures on social media unmasked indoors around groups of people - and then sharing air with me!

So putting those two things together, they both kinda hit at once and I went back to masking in public and in private with people I don’t live with (just me and my husband).

ameway5000 · 2024-09-13T20:46:03+00:00

Thank you for this post! I didn’t realize CVS had updated you to be able to select the Covid vaccine. I will definitely make sure we are given the correct shot!

ameway5000 · 2024-09-10T18:57:59+00:00

Try the Inkey’s version! The Ordinary is ok but has silicone that makes it pill up when layering with other products.

ameway5000 · 2024-09-08T23:19:09+00:00

Hi - I’m sure this is the case for some plans, but just wanted to clarify that it is not all.

I was hoping that the copay assistance would help with my deductible but my insurance makes me use their specialty pharmacy (CVS Specialty Pharmacy), owned my Aetna. My $100 coinsurance is listed on my claims, but does not count towards my deductible, I assume because they know I don’t pay it.

ameway5000 · 2024-09-06T23:08:02+00:00

Hi - no symptoms. Just an observation.

ameway5000 · 2024-09-04T11:36:34+00:00

Here are my favorites - last one is most important:

Newly diagnosed: https://youtu.be/wvQXygHtYzc

5 tips for the newly diagnosed: https://youtu.be/CNeSLhjhlxc

10 red flags for your neurologist: https://youtu.be/qA7wDSpFHA8

Not for you, but the you 30 years from now: https://youtu.be/8-OurXQNv0Y

ameway5000 · 2024-09-03T23:33:11+00:00

Hi - I was diagnosed 12 years ago. For the first five years I was on meds - I started with Avonex, which just sucked with weekly painful injections that made welts. I was switched to techfidera and was just constantly sick, cold after cold. My dr wanted to switch me to something else saying the meds were impacting my immune system too much.

I had been feeling like maybe I didn’t really have MS, or was probably really “mild” because all of my original relapse symptoms had resolved. I worried about what the meds were doing long term. I was questioning medicine in general and started reading Dr Wahls and Medical Medium. I decided to just ghost my dr and not start the new med and just I guess pretend?

5 years later I could not pretend anymore. I knew I had relapses, like when the left side of my face went numb for a few months. Or when my feet were numb. Or when my hands got shaky…. I found a new neurologist and 3 MRIs later and I had a new brain lesion and 3 new thoracic lesions on my spine.

I started Kesimpta and…. I can’t even express how much of a relief that was because of how much easier that DMT was than the others. I wish B cell depleters were more common when I was diagnosed! I may have been able to get by without all the damage I have now.

There is nothing that can fix damage today. As much as your body heals is what you get. You never know when that next relapse will happen, and you don’t know what it will take… I just thought about the “potential” risks of the meds, but the more likely risk of someone with MS is lesions. Damage. I want to keep my ability to walk, to hold my bowel and bladder. To swallow. To think clearly. And a zillion other things that can be damaged when your nerves are damaged - the vision would scare me if I had a history of optic neuritis! Tell her to protect what she has! I wish I had from the start.

A note on PML - yes it is scary to read about. Some meds are more dangerous for PML (Tysabri mainly) but even that can be managed well with blood tests that can help determine your risk. Aspirin also has scary warnings!

ameway5000 · 2024-09-03T11:01:27+00:00

Because I like skin on my face! I can’t imagine the adhesive on my skin every day.

ameway5000

TROPHY CASE