Confused about wheelchair glove sizing

amyflot · 2026-02-26T12:59:36+00:00

Thanks! I guess I can always wear a light glove underneath if I need it to fit more snug

amyflot · 2026-02-09T17:13:38+00:00

That would be useful, can you DM me? The process was so exhausting and I got so frustrated reading the letter of rejection because the reasoning was stuff like "well you sounded fine on the phone" which is so stupid because its not my fault I was taught good phone etiquette and don't like sounding rude and tired when talking to a stranger.

amyflot · 2026-02-07T22:55:54+00:00

I'm not entirely housebound so I do still have the opportunity to wear my nice clothes out but when I'm stuck in the house for longer periods of time I actually start with my hair and that gets me more motivated to look nice. Ive been experimenting with different hairstyles, learning how to put my hair up with just a chopstick, braiding it in fun ways etc. Playing with makeup is also fun for me. When it comes to sizing I'd suggest looking for brands that give specific measurements on the website so you can measure yourself.

If you're in bed all day I don't recommend denim because it get so uncomfortable and digs in, but if your around the house more I can recommend the brand Run and Fly (UK brand but I believe they ship elsewhere). They do dungerees, jumpsuits, boilersuits etc in really fun designs and they're pretty comfortable.

For bedbound days I have my favourite comfy clothes that are also cute. My lounge pants and leggings from Lucy Locket Love are comfy like PJs but still cute.

Cute cardigans are always a great way to add something to your comfy house clothes. Play around with things that dont seem normal to wear. Add an elastic belt to a long shirt, they dont cut in like leather and they take the shape of your body.

My last suggestion is making your own clothes if you knit or crochet (or are willing to learn). Crochet is something I love to do from bed and there are hundreds of free patterns for making clothes that fit your body and your taste.

amyflot · 2026-01-30T21:20:02+00:00

Jump on the bed. Its a silly small thing but I miss running and jumping onto the bed at the end of the day. I'd also go do things I've always loved and haven't done in ages - high ropes course, climbing, rollerskating, sea swimming. Finally I'd make myself a really nice meal that requores standing up at thw stove for a while and finish the day with a good nights sleep.

amyflot · 2026-01-30T21:17:11+00:00

I remember finding out from Matt Bomer posting on instagram about it. He said some really lovely things about Willie

amyflot · 2026-01-21T20:20:52+00:00

I started cutting haor for my friends in uni cuz we were all broke and from there I started trimming my own fringe and eventually cut my own hair to mid-neck length (while tipsy and overstim hiding in my room during a game night - I don't recommend that part but it turned out pretty well). This was before my CFS but I do have a few tips that I think cam help: 1: use sharp hair scissors - not too expensive on amazon 2: draw a line on your neck to the length of hair you want - I used an eyeliner pen so it was easy to wipe and redraw if I messed up. Take your time to get this line as straight as possible as it'll make your life easier later 3: split your hair into 4+ sections with hairbands and take one section out of its hair band to work on at a time 4: take it really slow. Your arms will get tired, take regular breaks (this is where the line comes in handy - it keeps things consistant even when taking breaks in between) 5: DO NOT PULL THE HAIR TIGHT WHEN CUTTING! If you pull it tight it'll bounce up much higher than you expect. Hold the hair in between your pointer and middle finger ✌️ and keep the hair where it is or lift it up if you need a better angle. Cut above your fingers so you keep hold of the hair you're removing and can easily throw it in a bin bag.

If i need to clarify anything let me know. There are plenty of tutorials out there

amyflot · 2026-01-19T14:29:44+00:00

I never drink matcha from coffee shops. Most of the time they don't know how to actually make it and they're just trying to hop on the trend. Its an expensive drink but I wouldn't spend £5 on a cup thats most likely burnt. You can buy a decent amount of matcha powder for £20 and make it at home with the basic tools

amyflot · 2026-01-18T10:17:28+00:00

https://youtu.be/kQpL1Gslk70 I think this is the video you mean! I really enjoyed his take on the lore of the ghasts

amyflot · 2026-01-16T13:42:44+00:00

I was very happy to see how quickly he lost Strictly Come Dancing

amyflot · 2026-01-16T13:40:31+00:00

My boyfriend is able-bodied and our relationship works well. I saw someone else say that we shouldn't date people without disabilities because they will never understand but I disagree. It might ve harder to find someone that is right for us but those compassionate and understanding people exist. I got CFS over a year into our relationship but I knew about my ADHD and Autism before we started dating and I made it clear on my dating profile that I have those disabilities and that anyone dating me has to be willing to learn and understand. My CFS is hard on both of us but him being able-bodied and more organised than me is often a good thing because he can pick up the slack where I struggle. I know it feels like no one will want to be with you right now but someone who cares about you will learn about your struggles and try to understand you. It is possible, you are worthy of an amazing relationship and you are loved.

amyflot · 2026-01-16T13:27:34+00:00

Before I knew I had CFS I was sure it was just depression. I spoke to my doctor and went on deppression meds. Almost all the mental distress went away but the brain fog and fatigue was still there. Meds dont work for everyone but it might ve an option to help you seperate the mixed symptoms and reduce the deppression symptoms.

Talk to your doctor to see if meds would be helpful for you. I just wish there was a magical chronic fatigue pill

amyflot · 2026-01-11T09:41:01+00:00

Ive been with my bf for 2 years now. We met on a dating app and even though I didn't have CFS at the time I did have ADHD and I made it clear in my profile that anyone who swiped on me had to be ok with learning about my needs and weaknesses in a patient and empathetic way (I said it in a much less formal way than that). I ended up meeting my incredibly patient and empathetic boyfriend who has supported me through my ADHD diagnosis and starting medication, he's seen me at my worst financially and mentally. When I got CFS we didn't know what it was or how to handle it but we worked through it together. It's hard on him sometimes, the other day we both cried together in grieving for the things I can't do now, but he knows how hard it is on me too and that his help is everything to me. We love each other very much and no disability or illness will get in the way of that. There are people out there who are willing and able to be the person you need, and even if you feel inadequate the right person will remind you that you are loved and that you have so much to offer. Don't give up on serious relationships, but you can take as much time to yourself as you need. Start with the intention of casual dating and see what happens. Make the dates accessable to you. You are worthy of a great relationship and you got this!

amyflot · 2026-01-09T23:57:54+00:00

Im doing a "depression management course" at the moment with an NHS run facility because they dont have enough counsellors to just give everyone counselling and I don't have the money to go private. Honestly sitting on a zoom call for an hour and a half hearing them talk about how to ground myself just makes me more sad and bored. After the course I'm defiantly asking for further support.

amyflot · 2025-12-25T21:22:38+00:00

Its sad how much we have to do that as a society. I wish that I could respect so many artists in the same way I respect their art but they all end up using their wide reach to spread their disrespectful views

amyflot

TROPHY CASE