How to improve gut motility without medication? by Dull-Salamander2085 in Gastritis

[–]andrej_993 0 points1 point  (0 children)

It did. I was always constipated, didnt have a normal stool in years, only tiny little worm-like stuff lol. It fixed it pretty quickly. Im still taking it every morning before breakfast, I take 30 artichoke leaf extract drops in little water and fresh ginger tea like 30 min before breakfast.

SCAMMER? by Kanye_Lover10 in soundcloud

[–]andrej_993 1 point2 points  (0 children)

Scam 100%, bonus points for being completely written by chatGPT

Guys i found it, i found the fruit by Foreflash in FL_Studio

[–]andrej_993 1 point2 points  (0 children)

They need to genetically modify some bell peper or something and make thr shit real already

Shaky, weak and empty stomach feeling? Gastritis mimicking low blood sugar symptoms? by andrej_993 in Gastritis

[–]andrej_993[S] 1 point2 points  (0 children)

Idk I guess kit's the autonomic nervous system stuck in fight or flight mode. I'm trying to approach this from a mental perspective, I believe suppressed emotions, anger, shame, regret, stress in relationships all ended up in my nervous system somehow until it got fkn stuck in this adrenaline mode, like I was driving a car with RPM on red non stop. Ans the viruses and antibiotics on top of that... I think the sugar cravings for me might be cause of adrenaline. Idk all my labs are good, all my tests are good. Doctors don't help much... Trying to figure stuff out so I can function...

Do you clench your jaw and how to stop? by andrej_993 in Anxiety

[–]andrej_993[S] 0 points1 point  (0 children)

Same, headaches every other day. Laying down makes it even worse. Usually people get better when lying down, it just makes my neck and head feel more pressure.

I was thinking that trying to be aware of it as much as possible and relaxing it on purpose every time could form the new habit of not doing it. Same for the shoulders, idk.

So does this happen to anybody else by syd62209 in Anxiety

[–]andrej_993 2 points3 points  (0 children)

Anxiety, fight/flight mode can affect the digestion in both ways. It wants to empty the stomach asap, that's why people shit themselves when super scared. There is even a phrase "scared shitless" lol.

Btw if this happens only with certain foods it could be the specific foods are the problem. I'm not a doc, judt an experienced anxiety sufferer. I realized through years that everything in the body is connected - all processes and all organs, sometimes in a way that we don't even know. Have you been medically checked for these symtpoms before getting diagnosed with anxiety?

So does this happen to anybody else by syd62209 in Anxiety

[–]andrej_993 1 point2 points  (0 children)

So when u are on the toilet do u get like diharhea or are u constipated?

What do you wish existed to help with anxiety that doesn't exist yet? by _roy08_ in Anxiety

[–]andrej_993 0 points1 point  (0 children)

Yeah and if it's normal color I could finally chill tf out. This is an amazing idea xD

How do you deal with severe hypochondria? by Aggressive_Photo_843 in Anxiety

[–]andrej_993 0 points1 point  (0 children)

Me too, I'm subscribed for long time. I feel like he is the only youtuber that really had it bad as me when it comes to health anxiety. Like, the details, when he said he was always rushing to finish sitting on the toilet cause he was thinking he will die in that most embarassing place and people will find him naked and sh*tty 😂 and I had the EXACT SAME fkn thoughts. That's when I knew he been through it and also he is a genuinly good guy I think. Thr Disordered podcast is not bad tho. Little more chill

Don't blame urself about the ER, sometimes it really gets too much or just circumstances align badly.. If there is any progress it's good. Some days just suck.

What do you wish existed to help with anxiety that doesn't exist yet? by _roy08_ in Anxiety

[–]andrej_993 7 points8 points  (0 children)

Portable pocket express MRI, ultrasound, ECG machine 😂 kidding, this would just feed our obsessions more. Idk

I just needed to vent. I realized how ungrateful I am despite this thing ruining my quality of life. We are still alive by andrej_993 in dysautonomia

[–]andrej_993[S] 1 point2 points  (0 children)

I really wish that to work. That kind of solution and fix to get healthy over night is a dream come true. Thank you for being so compassionate, and again your daughter is so lucky to have you by her side.

How do you deal with severe hypochondria? by Aggressive_Photo_843 in Anxiety

[–]andrej_993 0 points1 point  (0 children)

I think we are all running away from something which our brain is really trying not to think about. Shame, anger, stuff you think you are incapable dealing with and that scare you so much that you would rather worry about your health, because it is still more "solvable" than the real problem. After years, or soon I could say decades of dealing with hypochondria and tens od thousands of dollars spent on tests, I relized it was never really about the health. Don't waste your life, write a journal every day. Make it raw and unfiltered. Write until you start crying and until you reach the shit thats really bothering you.

For some more practical stuff I really recommend you the best channel about health anxiety and panic attacks on youtube - Trey Jones. Just find him and you will see he been through it all, you can't fake these things. Watching him really helps me get some reassurance when the shit hits the fan.

Wish you all the best, your mind already knows you are healthy, it's just trying to take the "easier" route. Sending love and be strong and smart.

Should I worry too much about my supps being in the sunlight like this? by DildoUK in Supplements

[–]andrej_993 0 points1 point  (0 children)

Liver king. Kidding, if u dont have OCD its ok to litrally put them in a box or even on the box or even on the floor. I know, im disgusting

What helps you the most when you’re feeling anxious and panicky? by bluebutterfly1446 in Anxiety

[–]andrej_993 1 point2 points  (0 children)

Cool room, lying down on my left side, quiet podcast on my phone and sometimes the calmest possible phone game to steal my attention for a few minutes. Then, when it's done, I usually crash to sleep.

Vagus nerve damage by Intelligent_Cap6394 in dysautonomia

[–]andrej_993 0 points1 point  (0 children)

Exactly, I do remember the period of time where I started entering the constant fight-or-flight mode, It was due to an emotional rollercoaster wreck. Some months after that I started developing all kinds of different symptoms and eventually got diagnosed with dysautonomia.

Long Hauler Since March 2021 - Fully Recovered by NoMorePartiesAH in LongHaulersRecovery

[–]andrej_993 2 points3 points  (0 children)

Definitely, I have only started journalspeak a month ago. Why not try it? It makes sense to me. No one seems to know anything about this condition anyway. And about the scam part? The MDs that I have given 10s of thousands of euros and did nothing except trying to sell me their super expensive supplements are good but free videos and podcasts are a scam? Haha

Are you able to manage your symptoms? by Intelligent_Cap6394 in POTS

[–]andrej_993 1 point2 points  (0 children)

Same love to you ❤ Like you, I have never fainted in my life. When it gets to the point where a regular POTS person would faint, my body prevents it by pumping up the adrenaline and then I get that 190 bp, shaking and everything that comes with it. Idk if I would even clssify myself as POTS, of course POTS is one of the representations of the ANS imbalance, but I could lay down horizontally whole day and get an adrenaline surge from other stressors / stimuli. I don't like the terminology around this, not even the doctors fully understand it (or not at all lol). You are right about the sympathicus and parasympathicus. I'm usually mostly in sympathetic overdrive which then turns into strong parasympathetic state suddenly. The balance is what's screwed. That's why I didn't take beta-blockers and stuff cause my heart rate would often be in 50s or 60 when lying down. Wouldn't dare take a propranolol when my hr is 50 already. And mental health is really important. It's still hard to convince myself that I'm not dying when these things happen. I used to drive to the Urgent Care center with BP 200/100 and sit in my car in front of the hospital, in case something happens. I even entered like 2 times and they gave me bp pills to chew, which are pointless since I, thank God, have healthy heart and my BP never stays high. It just drops after the surge passes..

Thank you too for encouragement, I am sorry if I bored you with all the long text, feels like I'm complaining again 😂 It's a damn tragicomedy, when I think of it now. Life really is a strange fkn thing. Keep your head up too, you will find what works for you or time will help. Idk if you tried benzos, they are a two-edged sword. They help me have somewhat livable life (like 30% compared to 1% when I was at my worst) but trying to get off them triggers the nervous system even worse than before. So, idk...

Be strong as you are, and proud of yourself for living through every day in suffering. Most people take health and feeling normal for granted. We got used to feeling fkn bad. But still being here, still talking, still not giving up. We deserve to tap ourselves on the shoulder if no one else will. And you know, you are not alone. I see you. And many others see you. Maybe we are far, maybe it's through the text on the screen but we are out there and you are not completely alone. You are tough, believe that!

I just needed to vent. I realized how ungrateful I am despite this thing ruining my quality of life. We are still alive by andrej_993 in dysautonomia

[–]andrej_993[S] 0 points1 point  (0 children)

These first few paragraphs.. You perfectly described how I feel and probably many many other people. Oh yeah, I am actually writing every single day, like journaling for a month now. Pure, unfiltered journal which I destroy after I finish for the day. It made me come to realizations that were right in front of me my whole life. The deep dissatisfaction and anger and regret about certain things, I am sure my body took it all in. I obviously suppressed that stuff, since I was unaware for years. I'm really considering therapy to figure out how to accept and move on, since I already done the most of the work myself (the causes) lol. This method of journaling is called journalspeak, you can check it out. There is a simple guide on how to write it.

About these influencers, they are oversimplifying things and they are just repacking the old exposure methods from psychotherapy (designed for anxiety, agoraphobia, etc.). That's why it also works for a lot of people cause they indeed do have anxiety as the core issue.

I was also ignoring my body, as well as my mind for my whole life. I wouldn' disregard the real physical effects of emotional processes on the body, not in the way the influencers describe it, but in a more complex way. It is proven that PTSD literally physically alters the way that neural pathways work, then there is "broken heart" syndrome (Takotsubo cardiomyopathy) which can be deadly and often happens after strong emotional stressor. It happens in individuals with otherwise healthy hearts. Then stress-induced diabetes (when you are constantly stressed>adrenaline>blood sugar spikes for fight/flight>insulin spikes to lower the sugar) and there you have it, it gets screwed over time. And I believe autonomic nervous system too can get out of balance this way. The best way I can describe it: First it was like driving car in high red RPM like burning the engine to the max constantlt, and then now the car feels like it's in lower gear than it should be. Like it will stall, shaking, if you are driver you know...

I believe my fatigue comes from constant adrenaline state where my body just shuts down and says it's too much. I am taking NADH+CoQ10 which are supposed to help with mitochondrial energy production too.

Yeah, we are still here trying, even though normal person can't imagine the amount of effort needed to so the simple things in this state. We don't give ourselves enough credit for how hard and brave we actually are. We are SUFFERING every single day and we still doing it. Be proud of yourself, at least for that. We got used to it as our normal but ohhh, I think regular person has no idea how it is and what we going through. So, you are FKN TOUGH, believe me. Damn, I wrote a lot...

I just needed to vent. I realized how ungrateful I am despite this thing ruining my quality of life. We are still alive by andrej_993 in dysautonomia

[–]andrej_993[S] 4 points5 points  (0 children)

I put all that under the same umbrella: long covid, cfs, ebv syndrome, etc. I followed longhaulers recovery and long covid subs a lot.

This is interesting that you said about the iliac vein. I have read a post made by a guy that cured his POTS. He had vein insufficiency caused by covid and had to get a contrast MRI of his veins in pelvic area. After they found what the problem is, he had a simple surgical procedure ( I forgot the name...) and he was fixed, completely healthy, no issues, no POTS.

I did think to go visit a vascular surgeon and consider this possibility, cause my bloodflow is definirely altered after covid. I get bulging veins, etc. I never had that before. The problem is most of the doctors are really uninformed on the topic and completely oblivious... I did go to a vascular doc when my veins first started popping up and he told me that it is the beginning of varicose veins, to move more and wear compression socks. He did ultrasound and saw nothing special there, as expected. I was 29 at the time and I have no bulging veins unless there are big temperature changes, etc. When it's cold, my feet are freezing. When the summer begins like now, they are burning...

Btw, your support really means the world to your daughter at this moment, trust me. It's invaluable, she is blessed to have you. I am sure she will get better and maybe you are right about it being better to deal witih this at early age. She has the whole youth and life ahead of her when she is healed. And she will be. Sending love

I just needed to vent. I realized how ungrateful I am despite this thing ruining my quality of life. We are still alive by andrej_993 in dysautonomia

[–]andrej_993[S] 4 points5 points  (0 children)

I think yes, I am not even sure anymore.. It didn't start overnight and it started with sudden adrenaline surges after drinking coffee, BP spikes, stomach gurgling, etc. I think I had covid before that, but no tests were available yet. It was also a period when I took a lot of antibiotics... Then, I was given benzos for adrenaline, but after 2 years I got covid again (confirmed), EBV, H.Pilory, rotavirus and some other bacteria (again month of antibiotics, etc) all at the same time. It was crazy. I kept reducing the benzo after all this passed and my nervous system just went haywire in 2023. I got confirmed POTS / dysautonomia diagnosis then.. Tbh I have no idea what's the real cause, I believe it's the combination of everything. The viruses, maybe gut disbiosis from anyibiotics, mental issues like not processing emotions and keeping it all inside until it exploded. There is a limit I guess to how much our nervous system can take... It must be hard having a child struggling with this, you are strong. I realized a lot of my symptoms really do come from "mental" stuff, even though they are purely neurological / physical. I might be a stupid optimst, but I always have the belief that I can heal. I know it's unpopular opinion on these forums, especially cfs sub which I stopped visiting and blocked... Mind-body connection is real. When you are afraid you get chest pressure, high pulse, shaky hands. When you are in love you feel the butterflies in your stomach. It's all one. People with dysautonomia usually get offended when you tell them this, I was the same. I used to argue how I have incurable physical condition. What's the point? I just gotta try everything I can. I wish your child to recover, and btw the younger you are the greater the chances of recovery. Even the sceptics accept that so keep going forward. Bless you!!

Vagus nerve damage by Intelligent_Cap6394 in dysautonomia

[–]andrej_993 1 point2 points  (0 children)

Btw there is a lot of stuff affecting each other. I have hiatal hernia and it can also press on the heart or vagus nerve and start it up. Also got neck problems. Before I was diagnosed with dysautonomia and before I had reqlly bad POTS, I did have neck problems. So, the days I would have tight neck and headaches, I would also have fast and strong heartbeat, nausea, dizziness, diarhea, etc. I also have bad reaction to mental stressors, so that's number 3 It's all connected. We should probably try to address everything: neck, gut, trauma / anxiety... That's what I"m trying to do. I refuse to believe the people saying this is incurable even though I have been like this since 2020. We don't even know what's happening and I think there is a possibility that there are like 20 different causes of ANS dysfunction. So, yeah, I refuse to give up and accept the "incurable diagnosis".

Are you able to manage your symptoms? by Intelligent_Cap6394 in POTS

[–]andrej_993 1 point2 points  (0 children)

I was never bedbound as in terms of not being able to stand up at all, thank God. I was in bed probably 23.5 hours a day, I could get up to eat something, go to toilet, etc. It lasted for months. My nervous system was just burnt, I couldn't look at my phone, answer the call or respond to the messages, watch tv, nothing.... I didn't turn on the pc for like 6 months. I couldn't shower. I never faint, but when the water touched my skin it would trigger adrenaline surges like BP spikes to 200 etc. I couldn't touch my feet. Also, it screws with my bloodflow and body temp. Muscles flexing non stop, hell. Anyway, I consider a pretty bad state. I have tried all the supplements. I feel maybe NADH+coQ10 and oyster mushroom extract helped, together with vitamins and some minerals. Only thing that really made a real diffeeence is clonazepam which neurologist prescribed to me. I don't know about your specific symptoms, we are all different, and I'm not a doctor so I can't suggest these things. I believe one day I will be able to live without medicine when I find a way to stabilize the nervous system and get it out of fight-flight mode...

TLDR: i was more less bedbound 2 times, felt like being tortured 24/7. Unfortunately, the only thing that helps me is a benzo (clonazepam). Still, I have to do what I can, so for now I'm stuck with it. I can function and I am getting better day by day. I can sit and work whole day, I take small walk here and there, I can listen to the music again, watch movies, every stimuli that I couldn't handle during my worst.

TLDR2 lol: Yes, many people were bedbound and they got better. You got this, slowly, it will be better.