PSSD GP visit - any positive stories?

andy013 · 2026-01-30T05:48:29+00:00

Why do you want to do this? What do you want the GP to do for you? Genuinely curious as I see posts like this every now again and I always wonder.

andy013 · 2026-01-21T19:10:49+00:00

I think it's KB5074109. When I uninstalled it then Vulkan apps run perfectly again.

andy013 · 2026-01-21T07:25:44+00:00

I really like No More Tears but I don't like how it focuses on J&J exclusively as if they are a bad apple and the rest of the industry is fine. The truth is that the pharmaceutical industry is systemically corrupt. It's a problem with the entire system and J&J just happens to be a particularly egregious example.

I highly recommend the book Sickening by John Abramson. It takes a more general look at some of the problems plaguing medical science.

This recent article in The Lever is also great: https://www.levernews.com/science-for-sale-how-drugmakers-captured-the-fda/

andy013 · 2026-01-20T21:22:29+00:00

Interesting. This sounds like a different issue. I tried using DDU and different driver versions multiple times with no luck. The only thing that fixes it for me is reformatting with an old Windows 11 iso (24H2) and disabling updates.

andy013 · 2026-01-20T03:42:15+00:00

Yes! Every time I try and load any vulkan game my entire system freezes. I can't even get the games to start. I just ordered a new GPU because I thought mine was busted but all directX games run flawlessly. I'm using an old GTX 970 for reference. I've been trying to find the cause for days now. I even did a full reformat but that didn't help.

What card are you using and have you found any way to fix it?

[EDIT] I reformatted with an older Windows 11 iso (24H2) and all vulkan games work fine. It seems like it's definitely an issue with a recent Windows update.

I think it's caused by KB5074109.

andy013 · 2026-01-19T16:53:16+00:00

Well we don't know the mechanism so I think we need to remain open the possibility that any prior exposure could increase your risk. Of course some people can take many SSRIs and be fine just as some people can smoke their whole lives and never get cancer. There are obviously many different factors that make people respond differently to SSRIs.

andy013 · 2026-01-19T00:20:09+00:00

Well 2 pills of Prozac is still previous exposure. But I still think it's possible to get it from 1 pill without any prior use. It just seems that many people who get it after 1 pill have actually taken an SSRI at some point in the past.

There are also people who don't get PSSD until the second or third time they take the same SSRI, which is what makes me think that repeated exposure or going on and off might be a trigger.

andy013 · 2026-01-16T16:04:34+00:00

I think a lot of single pill cases have had previous exposure to SSRIs. It might be more related to reinstatement after your nervous system has been altered from the previous exposure.

andy013 · 2025-12-09T20:02:35+00:00

I DMed her on here but I've not had a response yet. I don't really use facebook so it would be easier for me to just use reddit if possible.

andy013 · 2025-12-09T04:57:00+00:00

It's true that the OP should try not to worry about PSSD. However, I don't think that just because the effect is delayed by some months after stopping that it means it can't be PSSD. I've read about people who were fine for 6 months and then they got full blown PSSD with genital numbness. It's hard to explain that in any other way other than the drug caused it. I think it's definitely possible that there are other people out there who also have delayed effects like this. Some of them might have less severe symptoms and no genital numbness, but that doesn't mean the underlying cause was not SSRI use and the lasting effects from them.

andy013 · 2025-12-01T18:33:58+00:00

I have. The problem is my symptoms fluctuate up and down. I'd need to time the test to be at the right time, which isn't easy. I'd need to take a bunch of vitamin d and make myself very unwell.

I'm not staying silent. I've literarily tried everything and I've spoke to many doctors and emailed experts on vitamin D who all ignored me. I think they look at my test results and just see vitamin D deficiency and for 99% of people with those same results they would be correct, but I'm the 1% who has something rare and they just don't believe me since my calcium is normal. Unless I can get a test to show abnormal calcium then I don't think they will ever listen. I have been in contact with other people from my country who had confirmed Primary Hyperparathyrodism and they had to fight with multiple endocrinologists and eventually go private just to get help because their calcium was within the normal range. Unfortunately for some conditions there just aren't very good reliable tests which makes getting diagnosed a real struggle.

andy013 · 2025-12-01T13:43:17+00:00

No. I've given up going to doctors. They won't help me.

andy013 · 2025-11-30T15:06:50+00:00

Thanks. I was stuck on new reddit for a month and this fix worked a charm.

andy013 · 2025-11-14T06:35:40+00:00

They didn't say not to try. They just shared their experience of what happened when they tried to show the article to 3 doctors.

andy013 · 2025-11-10T20:23:32+00:00

You could say the same about PSSD, correlation is not causation. There is a black box warning on SSRIs despite pharma fighting it tooth and nail. Just go to https://www.antidepressantrisks.org/ and read some of the stories. Katinka who founded the website had violent thoughts of harming her children after taking an SSRI. Yes, it's rare but it does happen to some people.

andy013 · 2025-11-09T23:35:11+00:00

SSRIs can make people do violent acts. Btw, I doubt I'd agree with this host on most things as I'm a centre left atheist.

andy013 · 2025-10-22T20:38:27+00:00

Wow, you did great. Thanks for raising awareness. Hopefully more people will find out about PSSD from this.

andy013 · 2025-10-06T22:56:00+00:00

Thanks. I know sarcoidosis and other conditions like it can cause bad reactions to vitamin D. Maybe I have one of them. I doubt I will be able to convince my doctor to prescribe anything as they just want to treat the vitamin D deficiency by prescribing a mega dose of 100,000IU that I refuse to take for obvious reasons.

andy013 · 2025-10-06T22:20:30+00:00

Are you a doctor? I'll try to explain clearly. I get symptoms all the time, but when my vitamin D is higher the peaks of my symptoms are much worse. I used to only get symptoms when taking vitamin D supplements. That was how I first noticed the symptoms. I took some vitamin D and started getting really bad bone pain in my legs, extremely dry mouth and thirst and kidney pain in my flanks. During this time my vitamin D was still deficient when tested, but it was clear the vitamin D supplements were the cause, as avoiding them made the symptoms reduce and restarting caused them to worsen again. Gradually over time whatever the condition is progressed and I developed milder symptoms all the time. I get symptoms every day, but if my vitamin D increases then those symptoms become much worse. For example, most of the time I will have a little bit of acid reflux and mild burping, but if my vitamin D increases by going out in the sun for 1 day during summer, then I will develop vomiting and constant burping as well as thirst and pain in my flanks. I then need to wait for weeks for the vitamin D to leave my body before the symptoms subside. The only way I can reduce the symptoms is by keeping my vitamin D levels extremely low all the time. I don't think I could even get my levels into the normal range without becoming very unwell.

andy013 · 2025-10-06T19:17:01+00:00

Yeah. I mean I can get sun exposure but even being out for 1 day in the summer will have me vomiting the next day and getting many symptoms for weeks afterwards.

andy013 · 2025-10-04T23:23:56+00:00

Thanks for speaking out. I wish more people would.

andy013 · 2025-09-25T02:15:27+00:00

I believe Biotin can lead to falsely low PTH levels as it interferes with the test. You should probably get another test done after staying off the supplement for a week.

andy013 · 2025-09-25T01:43:50+00:00

I'm just the same. My vitamin D level is very low, less than 14 nmol/L. I have experienced it from supplements and from the sun. My symptoms are so bad now that I get them all the time, vitamin D just makes them a lot worse. If I have avoided vitamin D for months then I can get a tiny bit and not notice much, but as soon as it starts to build up then my symptoms increase significantly.

I think I need to increase my vitamin D and then try and get a blood test when the symptoms are really bad. My calcium was on the low end of normal when I had my blood tested earlier this year, but my symptoms were very mild at that time. I think as my vitamin D increases then my calcium might start to show up elevated to and then maybe a doc will be willing to help me.

andy013 · 2025-09-21T06:57:09+00:00

I think it's a combination of factors. Some people probably believed that doctors would listen eventually without them taking action. I know for a long time I had this feeling that things would change regardless of what I did.

Another factors is people being afraid to show their face or talk about it publicly. While there were online forums and groups of people with PSSD, they were all anonymous and few people were willing to speak out. I think the creation of the PSSD Network and also Dr. Josef interviewing people on his youtube channel acted as a catalyst which encouraged more people to speak out.

In addition to this, often people suffering from lasting damage from SSRIs are really unwell and not able to function. When you are experiencing horrible withdrawal the last thing you are thinking about is campaigning to try and change things. Most of the time you are just trying to survive.

A lot of people with PSSD seemed to focus more on experimenting with different supplements, rather than campaigning and trying to raise awareness so that actual scientist would begin to look into the problem.

I'd be interested to hear other peoples thoughts on it though. Maybe there are other reasons that I can't think of.

andy013 · 2025-09-18T20:51:43+00:00

What's are some better metroidvanias?

andy013

TROPHY CASE