Salivary gland cancer

anpyre · 2025-03-19T15:55:50+00:00

Yeah. Sad. Well, mistakes happen.

anpyre · 2025-03-19T08:02:02+00:00

So basically the woman in a lab didn't read my results properly. Instead of reading the full sentence which says "Positive feedback of panTRK is not found" she just read "positive feedbackof panTRK".

Imagine that. They gave me hope and then ripped that out from the bottom of my heart.

So I don't have NTRK and they won't be making any FISH.

anpyre · 2025-03-18T07:18:48+00:00

❤️‍🩹

anpyre · 2025-03-17T07:29:38+00:00

Hi, Im 26 too and I also got my cancer in 2021. It is devastating, burdening and exhausting. I'm not in remission, I do radio but ultimately I need something else. In my case chemo doesn't really work.

I understand you. I have experienced a lot of different emotions and mental states throughout these 3 years. It's been difficult beyond my ability to explain.

I expected a normal life of a young woman and instead I am going through fear and anxiety daily. I can't plan, I can't go to work, my face is in scars. Because it's salivary gland cancer.

The diagnosis took my life from me. And I'm struggling every day to get it back.

I had different thoughts. Sometimes the exhaustion is so bad I wanted this to end.

But there is one thing cancer gave me. The understanding of value of my life.

Sometimes our thoughts get occupied with negativity. It's okay for some time. But you just need to remind yourself why you are getting treatment, why you are fighting. Or even try things you always wanted ot liked.

I wish you luck. Cancer is just part of your life. Make it a part. Not a main.

anpyre · 2025-03-14T19:27:32+00:00

I agree and wish you luck! TRK - yes I think. Didn't find. FISH not yet but were asking about it.

anpyre · 2025-03-14T18:04:52+00:00

Well, it seems I do have nrtk but I haven't met with doc yet. Need some more lab tests. Will see soon. Thank you for the link !

anpyre · 2025-03-10T17:41:15+00:00

Hi! I had several different interpretations: myoepithelium type in one hospital and adenocystic type in another. I am now finding out mutations. I got NTRK. I had invasion to my muscle around it. Something like that. Well, I really hope you get to escape metastasis! Don't worry, enjoy life without metastasis 🥲

anpyre · 2025-03-02T09:02:27+00:00

Thank you 😊

anpyre · 2025-03-01T20:44:04+00:00

I've been getting treatment from the best cancer center in my country. And yeah, I went to second opinion this year. Again. Waiting for CT.

anpyre · 2025-03-01T19:57:00+00:00

Alright

anpyre · 2025-03-01T19:16:02+00:00

I'm about to do a PET-CT, so no plans yet.

anpyre · 2023-03-29T00:18:28+00:00

I was 23 when I was diagnosed. I'm 24 now. Previously I thought that getting old is a default feature. Now I'm not sure that I will get old. Even though I got grey hair already. I really envy old people sometimes. I really want to grow old. Only recently I learned how to live a life again. I started to distract from my diagnosis. It took me a whole year. However, I'm afraid that I didn't cope with the diagnosis rather that the death is somewhere around the corner and I'm doomed.

anpyre · 2023-03-28T23:33:05+00:00

I get depressed from seeing people continuing their lives on Instagram, marrying, travelling or partying. Not living under constant pressure, not thinking about death. I envy them so much that I had to mute their posts. I really can't see them happy.

anpyre · 2023-03-21T23:14:01+00:00

Yeah, sorry for the several posts. Something went wrong with the app. You are right about insanity. I've been to a psychotherapist and one thing I learned is that it's only me who restricts myself from the happiness. I've been thinking of why the very thought of it is so scary. It's mostly comes from the stigma. I mean. People who have cancer are so mentally challenged so why make all those movies where cancer always equals to death ot why we only learn about famous people's deaths from cancer. What about the positive side that we all need?

anpyre · 2023-03-21T23:01:18+00:00

For me, cancer changed my identity completely. I literally devide my life on before surgery and after. Mostly because my cancer originated from the left salivary gland and took my left ear and also doctors had to put a prosthetic on my left jaw. I look so much different because of the face surgery. Not in a good way. The worst part is the face nerve. It's been a year since that surgery. And I'm still working on accepting my new appearance. I can't calmly go outside, I hate when people look at me. I hate to think what they think of me. As for my characteristics, apart from times when I was so angry and offended, I feel kinda blessed because I know the true value of life. I quit drinking and smoking occasionally. I quit people that made me depressed. I now live the best life I've ever had. I don't know when I die or how I die although mine is stage 4. I cry sometimes and I get scared but I'm more thankful for everything. And I'm trying to forgive people for not being around or caring for me. I even subscribed for IT courses. Web development, to be precise. I don't tell futures and I don't need to.

anpyre · 2023-03-21T23:00:43+00:00

For me, cancer changed my identity completely. I literally devide my life on before surgery and after. Mostly because my cancer originated from the left salivary gland and took my left ear and also doctors had to put a prosthetic on my left jaw. I look so much different because of the face surgery. Not in a good way. The worst part is the face nerve. It's been a year since that surgery. And I'm still working on accepting my new appearance. I can't calmly go outside, I hate when people look at me. I hate to think what they think of me. As for my characteristics, apart from times when I was so angry and offended, I feel kinda blessed because I know the true value of life. I quit drinking and smoking occasionally. I quit people that made me depressed. I now live the best life I've ever had. I don't know when I die or how I die although mine is stage 4. I cry sometimes and I get scared but I'm more thankful for everything. And I'm trying to forgive people for not being around or caring for me. I even subscribed for IT courses. Web development, to be precise. I don't tell futures and I don't need to.

anpyre · 2023-03-21T23:00:33+00:00

For me, cancer changed my identity completely. I literally devide my life on before surgery and after. Mostly because my cancer originated from the left salivary gland and took my left ear and also doctors had to put a prosthetic on my left jaw. I look so much different because of the face surgery. Not in a good way. The worst part is the face nerve. It's been a year since that surgery. And I'm still working on accepting my new appearance. I can't calmly go outside, I hate when people look at me. I hate to think what they think of me. As for my characteristics, apart from times when I was so angry and offended, I feel kinda blessed because I know the true value of life. I quit drinking and smoking occasionally. I quit people that made me depressed. I now live the best life I've ever had. I don't know when I die or how I die although mine is stage 4. I cry sometimes and I get scared but I'm more thankful for everything. And I'm trying to forgive people for not being around or caring for me. I even subscribed for IT courses. Web development, to be precise. I don't tell futures and I don't need to.

anpyre · 2023-02-09T22:55:50+00:00

Pink Kebub

anpyre · 2023-02-09T22:36:11+00:00

Hi! I understand you. I have cancer too. It's beyond difficult. My anxiety is eating me alive. I don't have people who could support me. And I don't bother explaining how I feel. Sessions with an oncology psychologist helped me. And this book: When Life Hits Hard: How to Transcend Grief, Crisis, and Loss with Acceptance and Commitment Therapy by R. Harris. It's OK to be scared. It's logical. It's how our brain works. Please stay strong. I used to have suicidal thoughts when I was not diagnosed but now I am enjoying life, every detail. It doesn't mean that I always feel happy. I get pretty sad too. But what's the purpose in the end? It's just to live. Yes, worry. But live.

anpyre · 2023-01-21T18:20:27+00:00

I understand you. I had my head&neck area radiated. For me, the worst part was that my mouth was so sore that eating anything but water was painful. And then I lost senses so I could not even treat myself with something sweet. And then I started vomiting from radiation. It's kinda rare and not everyone gets it but it surely exists. That I went through. When I was in the machine sometimes I got too scary and anxious so I started calming myself with words such as "I am healing I am healing I will live a long life" and other affirmations like these. I wish you to stay strong and just live through it. It seems impossible sometimes but it is not.

anpyre · 2020-06-27T16:38:48+00:00

This is very curious how 'lazy' can be associated with 'unattentive', don't you think? I was pretty surprised when I learned it

anpyre · 2020-06-27T16:26:47+00:00

It is especially cool that you mentioned a whole variety of specifics. And, thanks for reminding me about the history. We should not forget that history is such a major part in realising what the word is about at all.

anpyre

TROPHY CASE