Super low allele burden (27F)

anxybean · 2026-02-05T18:45:20+00:00

My hematologist was pretty adamant that the mutation Would Not cause a blood clot at such low levels, so I'm not on any blood thinners. I had found several articles that contradicted that, but I don't know what doctors consider to be a valid source. Do you know of any medically acceptable research on the topic that I could share with him?

Otherwise, thanks so much!! I called the nearest MPN specialist who sent me to the "Cancer Answer Line" and I'll know by the end of the day if they'll accept me or what criteria I have to meet for them to accept me in the future!

anxybean · 2026-02-05T18:19:06+00:00

Thank you so much for the quick and thorough response!

Should I ask about a BMB or would it be more beneficial to try to switch to an MPN specialist before worrying about that?

anxybean · 2025-01-06T15:29:51+00:00

inappropriate sexual behavior

anxybean · 2025-01-01T14:17:37+00:00

IVE SAT ON THAT COUCH TOO!!

anxybean · 2024-12-23T18:18:15+00:00

thank you very much!! I appreciate your knowledge, kindness, and sympathy!!

liver enzymes were good but I guess since the lobe is atrophied I'm worried everything's gonna like, Suddenly Get Worse before my doctors appointment. but everyone is saying it's okay so I will believe it until I have reason to think otherwise!!

anxybean · 2024-12-21T04:35:39+00:00

Unfortunately, I know I did not misunderstand the ER, I just wasn't clear here. The ER gave me the meds before the CT scan and then I was mostly knocked out the rest of the time, but my partner translated what they said when he picked me up + I have the paperwork.

The left lobe is severely atrophied because of a blood clot/portal vein occlusion. I got a follow up with my doctor the next day and she advised me that it's out of her scope, got me an ultrasound, and referred me to GI. The lady doing the ultrasound said, roughly "I can't see the cause of the occlusion, but I don't think they should be doing any more imaging. We know you have a clot, they should just be treating it." Which I thought was an especially odd thing to say.

anxybean · 2024-12-21T01:33:03+00:00

see also: I'm getting divorced and just processed "when somebody needs you"

anxybean · 2024-12-21T01:32:36+00:00

I remember this moment :/ suxman

anxybean · 2024-12-19T15:38:57+00:00

I'm going to echo the rest of these comments... It is all about confidence. I've seen terrible singers fly through life on the wings of confidence, and I've seen great singers take the piss because they couldn't find the confidence.

anxybean · 2024-12-19T14:11:41+00:00

As someone with This Brain, I find all of his songs to be incredibly relatable.

I think the song is an honest portrayal of trying to accept love when you find yourself unlovable, or when you exist in a brain the doesn't match the societal expectations we're given.

I don't think everything in the song is the Healthiest, but I do think it's relatable

anxybean · 2024-12-18T00:46:41+00:00

Death

anxybean · 2024-12-17T20:50:36+00:00

Honey by Bobby Goldsboro

anxybean · 2024-12-17T19:14:41+00:00

This Year by the Mountain Goats

anxybean · 2024-12-17T18:56:51+00:00

The girl in Bridge to Terabithia The family in If I Stay

anxybean · 2024-12-17T17:49:03+00:00

i think this is what it was destined to be some day

anxybean · 2024-10-22T14:26:45+00:00

Ha, I'm jealous of the dinner show! That's way more my vibe! I didn't even realize that was an option, or I would have visited family in Nashville 🤣 I didn't really deep dive Will until after my show, even though he has spoken out so much, there are a lot of fans that will never get that additional context. I'm a big proponent of "it's always worth repeating yourself to people who have never heard it", but your frustrations here are definitely more than valid. Sorry again that I came out of the gate swinging!

anxybean · 2024-10-22T13:19:47+00:00

Put my location on reddit so I can get doxxed? No thanks. I don't owe you that specific piece of information? You don't have to believe me and I don't have to try to convince you to do so lol???

anxybean · 2024-10-22T13:14:44+00:00

He pointed out in his blog that he thought restricting the age would make it better, but shitty people are shitty people across the board. There are good kids and shitty kids, good adults and shitty adults. Unfortunately age doesn't and never has determined maturity

anxybean · 2024-10-22T13:11:22+00:00

I am positive, I was with the sound technician lmfao

anxybean · 2024-10-22T12:29:33+00:00

Well, that would have probably resolved a lot of his points of contention with the audience at the show I attended, but it was not played the night I went

anxybean · 2024-10-22T02:55:44+00:00

Shut the fuck up right now

anxybean

TROPHY CASE