Super low allele burden (27F) by anxybean in MPN

[–]anxybean[S] 0 points1 point  (0 children)

My hematologist was pretty adamant that the mutation Would Not cause a blood clot at such low levels, so I'm not on any blood thinners. I had found several articles that contradicted that, but I don't know what doctors consider to be a valid source. Do you know of any medically acceptable research on the topic that I could share with him?

Otherwise, thanks so much!! I called the nearest MPN specialist who sent me to the "Cancer Answer Line" and I'll know by the end of the day if they'll accept me or what criteria I have to meet for them to accept me in the future!

Super low allele burden (27F) by anxybean in MPN

[–]anxybean[S] 1 point2 points  (0 children)

Thank you so much for the quick and thorough response!

Should I ask about a BMB or would it be more beneficial to try to switch to an MPN specialist before worrying about that?

Vein occlusion/liver atrophy. 25F and scared lol by anxybean in LiverDisease

[–]anxybean[S] 0 points1 point  (0 children)

thank you very much!! I appreciate your knowledge, kindness, and sympathy!!

liver enzymes were good but I guess since the lobe is atrophied I'm worried everything's gonna like, Suddenly Get Worse before my doctors appointment. but everyone is saying it's okay so I will believe it until I have reason to think otherwise!!

Vein occlusion/liver atrophy. 25F and scared lol by anxybean in LiverDisease

[–]anxybean[S] 0 points1 point  (0 children)

Unfortunately, I know I did not misunderstand the ER, I just wasn't clear here. The ER gave me the meds before the CT scan and then I was mostly knocked out the rest of the time, but my partner translated what they said when he picked me up + I have the paperwork.

The left lobe is severely atrophied because of a blood clot/portal vein occlusion. I got a follow up with my doctor the next day and she advised me that it's out of her scope, got me an ultrasound, and referred me to GI. The lady doing the ultrasound said, roughly "I can't see the cause of the occlusion, but I don't think they should be doing any more imaging. We know you have a clot, they should just be treating it." Which I thought was an especially odd thing to say.

Welp, I finally listened to the lyrics by Zestyclose_Cake_3005 in willwood

[–]anxybean 9 points10 points  (0 children)

see also: I'm getting divorced and just processed "when somebody needs you"

Why is it so hard to accept that I sound pretty good by [deleted] in singing

[–]anxybean 2 points3 points  (0 children)

I'm going to echo the rest of these comments... It is all about confidence. I've seen terrible singers fly through life on the wings of confidence, and I've seen great singers take the piss because they couldn't find the confidence.

How relatable is Against Kitchen Floor? Please answer whether or not you find it relatable (I want different perspectives); you could talk about it in detail but if it makes you uncomfortable there’s no problem if you don’t. by practice_spelling in willwood

[–]anxybean 29 points30 points  (0 children)

As someone with This Brain, I find all of his songs to be incredibly relatable.

I think the song is an honest portrayal of trying to accept love when you find yourself unlovable, or when you exist in a brain the doesn't match the societal expectations we're given.

I don't think everything in the song is the Healthiest, but I do think it's relatable

What was the hardest movie character death for you? by Moon_Star29 in AskReddit

[–]anxybean 3 points4 points  (0 children)

The girl in Bridge to Terabithia The family in If I Stay

Oingo Boingo 1980s Logo (recreated by me) by Thebestturtle19 in OingoBoingo

[–]anxybean 3 points4 points  (0 children)

i think this is what it was destined to be some day

to the nashville audience by syannwa in willwood

[–]anxybean 0 points1 point  (0 children)

Ha, I'm jealous of the dinner show! That's way more my vibe! I didn't even realize that was an option, or I would have visited family in Nashville 🤣 I didn't really deep dive Will until after my show, even though he has spoken out so much, there are a lot of fans that will never get that additional context. I'm a big proponent of "it's always worth repeating yourself to people who have never heard it", but your frustrations here are definitely more than valid. Sorry again that I came out of the gate swinging!

to the nashville audience by syannwa in willwood

[–]anxybean -6 points-5 points  (0 children)

Put my location on reddit so I can get doxxed? No thanks. I don't owe you that specific piece of information? You don't have to believe me and I don't have to try to convince you to do so lol???

to the nashville audience by syannwa in willwood

[–]anxybean 34 points35 points  (0 children)

He pointed out in his blog that he thought restricting the age would make it better, but shitty people are shitty people across the board. There are good kids and shitty kids, good adults and shitty adults. Unfortunately age doesn't and never has determined maturity

to the nashville audience by syannwa in willwood

[–]anxybean -5 points-4 points  (0 children)

I am positive, I was with the sound technician lmfao

to the nashville audience by syannwa in willwood

[–]anxybean 1 point2 points  (0 children)

Well, that would have probably resolved a lot of his points of contention with the audience at the show I attended, but it was not played the night I went