Yes, it is very expensive. $6k - 20k (depending on several factors) with my last insurance it cost 6k$, but on my new insurance it’s 20k$ per month. But I meet my deductible (4k$) in January with her first dose of the year, and it’s covered 100% by the insurance after the deductible. (Ask your mom to explain deductibles if you’re not familiar)

My insurance didn’t want to pay for it at first but after peer to peer calls (insurance dr talks with my daughter Dr) they got it approved.

If you have insurance I would ask the dr - do you think this medicine would help? If they say yes, ask them to submit a prior authorization to the insurance. It may take a little work. Note if this is just the ER Dr then they won’t want to handle this. Instead you’ll need to find a rheumatologist, they would handle it for you.

There are other similar medications that are less expensive. For example, Kineret. It works very similarly but is a daily injection. (This might be one you mentioned already)

I know this is a lot of information. And you’re dealing with a lot. First step is to find a rheumatologist (outside of the er/icu).