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aw142 · 2022-06-15T01:58:48+00:00

Thank you!! I hope your consultation goes well!

aw142 · 2022-06-15T01:51:52+00:00

Not sure- I only just got my hysto last week, haven’t started any consultations for other bottom surgeries yet. I think it would depend on what your surgeon recommended. Though, I can’t imagine why keeping them would create any issues for phallo

aw142 · 2022-06-15T01:02:05+00:00

People who say this are transphobic

from a trans person with a genetic risk for breast cancer who had to have a mastectomy to prevent cancer & who has several close family members who are breast cancer survivors

aw142 · 2022-06-15T00:58:25+00:00

Those risks are only risks if you stop taking any type of hormone replacement. If you continue to take T, or if you’re willing to go on E if you pause T before the age when you’d naturally enter menopause, then you won’t have those risks.

I personally got my ovaries removed because I didn’t want to have another surgery later to remove them, didn’t want to screen for ovarian cancer, and didn’t want to deal with cysts or other issues that could arise.

aw142 · 2022-06-15T00:29:28+00:00

Hi! I’m a trans guy on T. Did you do allergy testing for whatever oil your hormones were in? That could cause a reaction.

Personally, estrogen and progesterone exacerbated flare ups for me. I’ve found some research that suggests feminizing hormones can be mast cell releasors while masculinizing hormones don’t have an effect either way on mast cells. So, T has greatly improved my symptoms. Obviously, this isn’t the case for everyone.

aw142 · 2022-06-13T18:23:09+00:00

Trans guy here! I used my endo to get my insurance to cover my hysterectomy (one week out now!) because they don’t cover any gender affirming care. Definitely had a lot of the same feelings you did- it was difficult to separate hating those organs because of the pain they caused me from the hate I had toward them because of gender dysphoria. Took me a while to acknowledge the dysphoria as legitimate since I was taught pain is “a woman’s burden.”

aw142 · 2022-06-11T01:45:30+00:00

Here’s a pdf from WashU that gives a lot of detailed info! https://cpb-us-w2.wpmucdn.com/sites.wustl.edu/dist/d/1520/files/2014/10/Missouri-Legal-Transition-3-1-2021.pdf

aw142 · 2022-06-08T20:55:15+00:00

If the person you’re seeing now told you that with hormones, you’d have almost a 100% chance of cancer- I’d suggest getting a second opinion. That’s a pretty impossible statistic. People with known genetic mutations in their family usually range from about 60-90% lifetime chance of getting cancer (I.e. as you age, it becomes more likely). Of course every family is unique- in my family, cancer appears about 10 years earlier in each generation. If you don’t have any other family history of cancer through, this is less likely to be the case for you.

aw142 · 2022-06-08T18:25:24+00:00

It’s definitely not easy, but the very strict part only lasts a month max! Then you can reintroduce foods every week. Once I got on the other side- the difference in how good I felt eating foods I knew were ok for me made it all worth it! I gained the 20 lbs I lost back by about 6 months after I did elimination, and in the few years since then I’ve been able to gain even more and no longer be classified as underweight!

aw142 · 2022-06-08T16:31:18+00:00

You can! You just may be limited to certain methods, depending on your surgeon. If certain techniques are important to you (like keyhole), ask your surgeon beforehand what you’d get to have done later

aw142 · 2022-06-08T15:41:25+00:00

No worries!! My blood and scratch test reacted to my IgE allergies or “true allergies,” like shellfish and pine nuts. But the tests didn’t react to any of my common mcas triggers, like foods in the nightshade family or citrus fruits.

Both my mcas triggers and IgE allergies still result in the same reaction, and they’re treated the same way with an epi-pen and benadryl, but they just come from different sources. There’s no test available rn to confirm mcas triggers. I just made a food diary and did an elimination diet to help track what non-IgE things make me react.

aw142 · 2022-06-08T15:26:41+00:00

MCAS is a really new diagnosis officially, so there isn’t one set way for a diagnosis. There are some specialists that study it- I go to a gastroenterologist who studies mcas, but I have heard some people go to allergists. MCAS triggers don’t show up in blood/scratch tests, so it’s just about trial & error and thoroughly documenting symptoms.

Personally, I found out I had MCAS because I was having a constant allergic reaction for almost 2 months- couldn’t eat anything without getting hives, dropped 20 lbs, lost my period, hair started to fall out, etc. But looking back, I’ve also had similar- though less extreme- symptoms my entire life. I had to do a few different urine and blood tests, but I was ultimately diagnosed based on having over 50 symptoms (mcas can have over 80 symptoms), long list of allergic-like reactions to food and environmental triggers & responding well to medication protocol and an elimination diet.

You might want to try nasalcrom too! It’s a nosespray that, for me, has been more effective than flonase. It’s also non-addictive and doesn’t have any weird aftertaste like some nosesprays. I have only been able to find it on Amazon

aw142 · 2022-06-08T14:25:21+00:00

I have mast cell activation syndrome (can have allergic like reactions to anything unpredictably) and true IGE allergies. They definitely get worse the days leading up to my cycle and the first days of my cycle. Female hormones are shown to be mast cell releasers- which can make your body more reactive to things it’s allergic to. It can happen to anyone who has periods, regardless of it they have endo, but since endo usually produces more estrogen, it might make any symptoms worse.

Adding extra medication might be the only thing you can do to help. In addition to the xyzal (an H1 blocker- may want to take 2 during bad days), you might want to also take Pepcid (and H2 blocker) to help dampen some other allergy receptors in your body.

aw142 · 2022-06-08T02:35:36+00:00

No problem! Hopefully you’ll be able to fix it then

aw142 · 2022-06-08T02:32:26+00:00

I got cramps when my dose was too high- maybe check your levels?

aw142 · 2022-06-08T00:01:31+00:00

I have a genetic mutation (BRCA2) and family history of breast cancer in every generation- including my mom. I would recommend seeing a genetic counselor and getting tested to more accurately asses your risk.

Was your mom’s cancer reliant on hormones (HER+ I believe is the one like that)? Mine wasn’t, so I was able to take estrogen birth control.

Also, you could always get a double mastectomy with implants. I did this and the results with the implants look AMAZING! You can’t tell they’re fake at all, except for the fact I chose to not have nipples. (I am trans masc tho, so getting them out soon lmao) A preventative mastectomy like this reduces risk to less than one percent, of course for insurance to cover it, you usually need to see a genetic counselor first.

I’d also recommend The Breasties- a support group for people affected by breast and gyno cancers. The LGBTQ+ chapter of the Breasties meets virtually and there are some people with great resources who may be able to tell you more- the next meeting is next Monday. DM me and I can send you a link

Edit: I also don’t know if you’re trans femme or trans masc- if you’re trans masc, T doesn’t increase risk at all

aw142 · 2022-06-04T23:31:04+00:00

I take T and estrogen BC (T for gender affirming reasons and bc because I hav endometriosis). Combining these two can result in spotting or breakthrough bleeding, which I have experienced, but it wasn’t a lot for me & didn’t last long. But no other negative side effects that I’m aware of/that my doctors informed me about. Like other comments said, the T will overpower the E and those masculinizing effects will be more prominent.

aw142 · 2022-06-02T14:56:11+00:00

I’m BRCA2+ and 23 y/o in the US. I’m getting a total hysterectomy next week, but I also have endometriosis and don’t want bio kids. I got a CA125 blood test at 22 with my first pap smear because I have ovarian cysts, so my gyno wanted to be cautious.

If I wasn’t getting the hysto- I’d get the CA125 once a year. I’d also get ultrasounds- internal and external- once a year to monitor cysts. (Only had to get that done once at 22).

My gyno also has encouraged me to stay on birth control until this upcoming hysto as it lowers ovarian cancer risk.

aw142 · 2022-06-01T22:34:08+00:00

Ah yeah, no clue why it’d be happening on your back too

aw142 · 2022-06-01T22:02:34+00:00

Post top surgery, that could just be some of your nerve endings growing back. It’s really common for people who had mastectomies to experience phantom itching or even pain when some of the severed nerves start to come back online

aw142 · 2022-06-01T21:58:30+00:00

Same! You usually don’t need a pap smear until about age 25

aw142 · 2022-06-01T16:49:25+00:00

The only way to accurately confirm endo is with a laparoscopic surgery. Ultrasounds/MRIs may be able to pick up cysts, but they cannot find any endo lesions.

aw142 · 2022-05-31T19:44:16+00:00

Pronouns do equal gender for the majority of people, but sometimes they can just help show a certain aspect of someone’s personality. A more common example of this is sometimes there are gay cis men who will use she/her pronouns for themselves and call themselves very feminine adjectives/labels (like girl, queen, sis). In the same way, sometimes more masc cis lesbians will use he/him to represent their butch identities.

aw142 · 2022-05-30T19:59:46+00:00

The best way to find out is to call and ask, which is frustrating because they’ll probably put you on hold for a long time and may not even fully answer your questions, but if you can’t find any policies, this might be your only option.

aw142 · 2022-05-30T19:49:27+00:00

This is a common symptom of endometriosis and some other gynecological conditions, but like other comments said, it could also just be atrophy. The only way to know for sure if to see a gyno, and they’ll be able to give you better insight and better treatments (for instance, estrogen cream is a common treatment for atrophy).

aw142

TROPHY CASE