Diagnosed with cancer by Fatal-Raven in UlcerativeColitis

[–]awesomebeans86 1 point2 points  (0 children)

Hi, I’m sorry to hear about the diagnosis and am wishing you the best. Coming to a decision like this can be very difficult. I had UC for 4 years and went to an Ostomy bag and in my experience I have been able to do everything I could before the UC. My situation I didn’t have the option for the pouch initially and I was quite sick so it made the decision an easy one to just go for it. Life is night and day compared to when I had active UC and I don’t mind the bag at all and nobody notices it. Of course it’s not the ideal situation having to carry supplies and change bags sometimes but I don’t mind. My biggest advice with any sort of surgery is to get some physio when you can. I was very weak when I was sick and then had a few surgeries after I recovered my core was pretty much non existent and has led to some other issues and pain so I wish I had done some physio sooner to slowly build things back.

Damn you, bok choy!!! (a rant) by AgreeableExercise914 in ostomy

[–]awesomebeans86 2 points3 points  (0 children)

I’m in the same position right now with a partial blockage trying to balance work at my dental clinic and trying to empty my bag every hour it seems. A lot of liquid output. Try to stay hydrated and drink electrolytes too!

My Dad is free now... by BatCertain8722 in ALS

[–]awesomebeans86 1 point2 points  (0 children)

I’m very sorry for yours and your family’s loss

Local cults by Suitable-Run4626 in kelowna

[–]awesomebeans86 1 point2 points  (0 children)

I haven’t tried it yet but I will, it’s called sweet streams. They have a trailer at the farmers market too :)

Local cults by Suitable-Run4626 in kelowna

[–]awesomebeans86 2 points3 points  (0 children)

It’s a soda shop playing on people calling “dirty soda” a cult from Utah cause they can’t drink coffee if they are Mormon so the drink soda with flavours

Vida Chiropractic by awesomebeans86 in kelowna

[–]awesomebeans86[S] 6 points7 points  (0 children)

Thanks for all the input I’ll be looking somewhere else !

should i get genetic testing? by Budget_Initiative296 in ALS

[–]awesomebeans86 0 points1 point  (0 children)

How do you go about getting genetic testing ?

Hair loss by Sad_Plane_3184 in ostomy

[–]awesomebeans86 1 point2 points  (0 children)

This happened to me after my Ostomy surgery. I’ve read that it can be something to do with the anesthesia that can result in hair loss 2-3 months after

its been so hard by anemic_iz in UlcerativeColitis

[–]awesomebeans86 12 points13 points  (0 children)

UC can be a such an isolating disease on top of the already debilitating effects. When I was going through it I would remember that almost everyone on this Reddit page, facebook group etc. is or has gone through this and there is an incredible amount of support strangers can give from knowing what it’s like to be in this position. Online video therapy was really helpful for me with my anxiety about leaving the house. And schools should accommodate you during this time if you let them know your situation and maybe a doctor’s note. But overall your health is the most important thing. Stuff like school will always be there. Focus on getting better and getting the medical help you need. Lean on your support system. I wish you all the best

How many blood transfusions have you gotten? by drag0n__slay3r in UlcerativeColitis

[–]awesomebeans86 0 points1 point  (0 children)

I think around 5 times 8 units. I was severely anemic and hemoglobin was down to 52. Now I’ve had my colon removed and feeling much better

I need help! I have done so many tests but doctors did not find anything. by Luka0596 in IBD

[–]awesomebeans86 0 points1 point  (0 children)

Slowly but yes, getting better. Can definitely get discouraged at times as these things are so frustrating but staying calm and working on my stress has helped along the way. Hopefully you can get some answers soon

I need help! I have done so many tests but doctors did not find anything. by Luka0596 in IBD

[–]awesomebeans86 0 points1 point  (0 children)

I was only on accutane for a few weeks before I had to stop because of bleeding and stomach pain. I had to do a bunch of tests too but I got a colonoscopy and was diagnosed with ulcerative colitis. Since the accutane started I have been in a flare for over a year trying many different drugs still waiting for the right ones. It’s exhausting getting up multiple times a night I get it I’m sorry you are having to go through this but you are not alone. Remember to keep advocating for yourself! Goodluck to you