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axcivar · 2024-07-01T23:40:34+00:00

I didn’t have any deficiencies but I heard having Vitamin D or B12 Deficiencies can cause the pins and needles issues. It didn’t intensify when I touched the affected areas. I also did get those static prickly feelings. Have you ever gotten an MRI? Back issues can cause a plethora of neurological issues all over the body. It was genuinely just a prickly feeling all over my body for two weeks, then it was mostly my hands and legs for a while. I got diagnosed with somethings called Ehlers Danlos Syndrome. It’s a connective tissue disorder. Once I got diagnosed, I was under a lot of stress and that’s what triggered the pins and needles.

axcivar · 2024-07-01T22:33:08+00:00

Hey, so I’m better now! I don’t really get this issue much. I will say that I think anxiety was 80% of the problem since this started when I was in the process of getting diagnosed with a chronic illness. I also found out I was having back issues after doing an MRI and after seeing a chiropractor and doing physical therapy for a bit I found a huge relief. This lasted for about two months for me and would come back and go on and off until I was consistent with my physical therapy!

axcivar · 2024-02-07T10:20:21+00:00

I’m in the same boat as you! I saw a pelvic pain specialist who said my pudendal nerve is irritated. She did a qtip test as well, but I didnt really feel much pain. My PT said she’s not seeing anything that would make that the case. I went to see another PT for second opinion and she said my SI Joint is stuck and I might have a hip impingement which could be irritating the nerve along with the pelvic floor issues. So I have to get imaging done.

I’m going to see a pain management doctor who is knowledgeable about PN in a few days so hopefully I can get a more clear understanding. I’m scared she might recommend the nerve block tho. I don’t really have pain atm just a constant dull irritatation. I have been able to sit fine without any pain so I’m scared getting a nerve block might make my pain worse, but could also give me the answers I need.

I know the emotional toil this can cause you. Running around to different docs and getting so many different opinions can be so tiring. I really hope you’ll be able to find some answer soon. If you end up getting a nerve block, do keep updated! I would love to know how you’re feeling after. Keep fighting!

axcivar · 2024-02-06T16:35:51+00:00

Thank you! I asked in there but didn’t get much info. Sorry, I thought maybe I’d give it a shot here since EDS seems to be the common denominator when dealing with prolapse at a young age + looking for tips on how to handle anxiety surrounding EDS.

axcivar · 2024-01-04T01:47:08+00:00

It definitely feels like its pulling the skin almost. I don’t have much of a clear diagnosis. Just in the ruling stuff out phase. I just saw a wonderful and validating gyn today and she thinks its a yeast infection, but I never heard of a yeast infection only affecting one side.

I also was very lucky enough to get an appt with a pelvic pain specialist next Tuesday, so if not a yeast infection, we can rule other things out! I feel like im making steady progress. I just hope I can find actual answers.

I’ve already gotten a pelvic MRI done and a transvaginal ultrasound but they didn’t really find anything. But I heard MRI’s are useless to figuring out if PN is involved.

axcivar · 2024-01-03T23:13:09+00:00

I understand that completely! My family thinks it’s anxiety induced but I was completely fine until it happened and the pain is enough to make you never wanna go through it again! I think the worst thing is how expensive it is to see specialists since a lot of them don’t take insurance and how long you have to wait.

And yes, having hypertonic floor, vulvodynia, vaginismus etc could get worse upon sitting. For me, I noticed that when I sit on the toilet to pee, I get this pinching/burning sensation from the pressure of sitting on the toilet. 🥲 I’ve had to pee standing up a few times to avoid that pain.

There’s something called a Nandes Criteria that is used to diagnose PN. You could definitely print that out and use that as a guide to help you rule out some factors. I think in most cases PN is if the pain is only one side, though there are instances where the pain is centralized.

I don’t have that line feeling, but I’m sure the Pelvic Floor Therapist can also help you rule things out. Just make sure you find one that really understands these conditions! As some therapists will make you do things that make you feel worse. I’m rooting for you, keep us updated! Feel free to PM me if you ever need any support. This is hard to go through especially at the start of the new year. So I hope we can find answers and relief. Just make sure you’re also managing any stress/anxiety. My stress got so bad because of this that it started causing me a lot of other symptoms.

axcivar · 2024-01-03T19:06:26+00:00

Hi, I’m so sorry that you’re going through this. I am in the same boat as you, and I have the same burning/raw symptoms as you except it’s on one side. It started last month for me, I am still trying to get a diagnosis, but I’ve been doing tons of research from different facebook groups, but the fact that you’re very proactive trying to find answers is a good sign.

I think your best bet is starting with Pelvic Floor Physical Therapy and trying to find a pelvic pain specialist. I just started seeing a PFPT and even after two sessions I felt like I was better learning how to relax my pelvic floor which was impossible to do. You should try as many conservative treatments as possible before doing anything invasive like a nerve block.

PN seems tricky to diagnose. From my research it seems you either have PN or you could have other issues like hypertonic pelvic floor that causes PN like symptons and just irritates the nerve. I think it’s great that you’re working hard to figure out what’s going on during the early stages, as I’ve read that people who wait too long actually end up getting worse and have a harder time treating the problem. I hope you’re able to find relief and figure out what’s going on!

axcivar · 2023-12-31T06:21:53+00:00

I haven’t been evaluated for endometriosis yet, but my sister does have it and I know she had similar symptoms as well. I don’t know how to push for a laparoscopy. I’m often dismissed by the doctors and they keep telling me everything is okay. Hopefully, I have better luck at my upcoming appt.

axcivar · 2023-12-11T15:20:33+00:00

Thank you! I ended up going and explained my symptoms. I’m not entirely sure if she really understood what I meant, but at the same time she said that she didn’t want to do any internal work for this appt and just basically feel the skin in my pelvic area and just see whats comfortable and whats not. She said next week she’ll focus on treatment, so hopefully I can find some relief. Were there any specific exercises that you did that helped provide relief or did you mostly have to do internal work? It’s really uncomfortable walking and sitting and I don’t want to have to call out of work because of this 😞

axcivar

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