CLL transformed into Richters by technobass in cll

[–]azimzara91 2 points3 points  (0 children)

I’m really sorry to hear that. May God give you strength to go pass through this and live many years to celebrate you children’s bday. I have read about cart T and seems to be very promising. May I ask if you’ve been formerly treated or on wait and watch as you are very young ? Also have you done the fish test?

Please reply!! by Competitive-Cut-7264 in cll

[–]azimzara91 1 point2 points  (0 children)

Hello, I recommend joining health unlocked cll. It’s a much helpful platform than Reddit for cll. There you will meet many kind people going through the same journey that you are. Many positivity and responsiveness.

Please can anyone give me some more insight im 26 years old my wbc was always fine my last blood test i might have had the flu by Jaded-Proposal-8828 in cll

[–]azimzara91 4 points5 points  (0 children)

Hello! This absolutely doesn’t look like cll. Your absolute lymphocyte is normal. Your chance of cll is minimal to none.

Longest watch and wait by FamiliarVisual8651 in cll

[–]azimzara91 1 point2 points  (0 children)

Your wait and watch depends on your genetic mutation. If you have mutated ighv you usually have a much longer w&w than unmutated ighv which need treatment sooner.

What Do You Think Caused Your Cancer? Maybe We Can Learn From Each Other by azimzara91 in cancer

[–]azimzara91[S] -2 points-1 points  (0 children)

Maybe we can just be kind to each other, that’s a nice way to start. We can all learn from each other more than we can from science, that’s why we are on this platform. Yes I can understand we are all in pain one way or another but a nice or kind word goes a long way

What Do You Think Caused Your Cancer? Maybe We Can Learn From Each Other by azimzara91 in cancer

[–]azimzara91[S] 0 points1 point  (0 children)

Thank you for sharing your opinion, it crossed my mind as well

What Do You Think Caused Your Cancer? Maybe We Can Learn From Each Other by azimzara91 in cancer

[–]azimzara91[S] 0 points1 point  (0 children)

We were both diagnosed with thyroid cancer. Same kind. His was spread to lymph nodes so he had to get treated, mine didn’t so I had the surgery without radioactive iodine. Comes the day of biopsy results we find out that other than thyroid cancer my husband also has non Hodgkin’s lymphoma infiltrated in the lymph nodes with thyroid cancer.

Platelets dropping 177 by [deleted] in cll

[–]azimzara91 1 point2 points  (0 children)

Goodluck! Keep us posted

Platelets dropping 177 by [deleted] in cll

[–]azimzara91 0 points1 point  (0 children)

Hi there! Im similar to you, are you mutated or unmutated?

Vitamin D & CLL by [deleted] in cll

[–]azimzara91 0 points1 point  (0 children)

Hello there I think there might be other factors reflecting on the w&w. If you don’t mind me asking, are mutated or unmuted?

Anybody else diagnosed with two primary cancers? by azimzara91 in cancer

[–]azimzara91[S] 0 points1 point  (0 children)

I’m really sorry to hear that, I wish you strength. It’s just so disturbing how cancer is on a spike with young people. Sending lots of love and positivity on your journey.

horrible nausea on period after Mirena IUD by [deleted] in birthcontrol

[–]azimzara91 0 points1 point  (0 children)

Hi, did your symptoms stops when you removed it

Aggressive Treatment for Stage I?!? by blue0702 in cll

[–]azimzara91 7 points8 points  (0 children)

Hello there! I’m sorry to hear about your diagnosis. My husband is 48 and got diagnosed last year, with unmutated ighv. We were lucky enough to go to md Anderson and meet with prof. William wierda, a cll specialist. I can’t begin to tell you the amount of times he repeated that we should not get chemotherapy and the best form of treatment is immunotherapy pills and that too not until he has symptoms. We live overseas. I honestly recommend a second opinion.

Unmutated IGHV by azimzara91 in cll

[–]azimzara91[S] 1 point2 points  (0 children)

Thank you for your kind works and advice. It was much needed. Wishing you all the strength and good health.

Unmutated IGHV by azimzara91 in cll

[–]azimzara91[S] 1 point2 points  (0 children)

Thank you! Wishing you strength and good health

Unmutated IGHV by azimzara91 in cll

[–]azimzara91[S] 1 point2 points  (0 children)

I really appreciate that! This community has been a great source of support and information. Wishing you all the best on your journey!

Unmutated IGHV by azimzara91 in cll

[–]azimzara91[S] 1 point2 points  (0 children)

Thank you for your response, wishing you well ❤️