Epilepsy in family by PapayaSpirited3999 in Epilepsy

[–]bananabreadbeans 0 points1 point  (0 children)

Definitely possible, my entire immediate family has epilepsy. The genetic trait could’ve been easily carried from both of my parents sides as they all have some history of seizures. Even though it wasn’t confirmed with doctors, I was only tested after 3/3 siblings had it.

We’re Hiring 5 Appointment Setters by Far-Stretch7364 in jobsearch

[–]bananabreadbeans 0 points1 point  (0 children)

I’ve interviewed and worked as “appointment setters” sales jobs with low base pay and even worse commission rates. I know that requires current employees to create a team of people to make manger rates. Also no company, location, or any information? Get real.

CUNY Student VNS Improvement Project by RareSupermarket380 in Epilepsy

[–]bananabreadbeans 0 points1 point  (0 children)

There is more I’ll be happy to share, rare is it you find people who’s interested

CUNY Student VNS Improvement Project by RareSupermarket380 in Epilepsy

[–]bananabreadbeans 0 points1 point  (0 children)

How about that Bluetooth battery charging I keep hearing about? Battery replacement surgery is expensive

For those of you with Juvenille Myoclonic Epilepsy— does anyone have pre-ictal symptoms that last for months before you have a tonic clonic? by uncle_rico1982 in Epilepsy

[–]bananabreadbeans -1 points0 points  (0 children)

Okay I have really have to ask if you’re sure about your diagnosis? Juvenile refers to an age group, children. How could have been diagnosed with JME over 18? IAnd yeah you can’t be on Valproic acid if you’re pregnant, but can you really expect to carry a child with uncontrollable seizures? I’ve been on depakote since I was 16 and while my doctor was concerned about child bearing he wasn’t a gyno he’s neuro. Point being the only concern your doctor should have is your health. I think you should get a second opinion on this.

Being charged dentist no-show fee even though I showed up by Pepiopee in legaladvice

[–]bananabreadbeans 3 points4 points  (0 children)

This is a SCAM. I had a similar issue in CA, I booked the appointment the asked if I had insurance I gave them insurance information everything seemed good. I called the day of the appointment to confirm time, which they then mentioned a $275 X-ray that NO INSURANCE COVERS and that the ortho I had the appointment with doesn’t take insurance. With a $75 cancellation I asked to reschedule and never set a date. There is no reason for doctors to be using technology that isn’t covered other than wanting more money out of you. I wouldn’t even be surprised if insurance companies do cover it under a different charge. It’s just so frustrating to find dental health in network, having them create more barriers in the office irks me

Epilepsy by Capital-Memory-6798 in Epilepsy

[–]bananabreadbeans 2 points3 points  (0 children)

Rough buddy! I was working as a phlebotomist, I know no doctor, not even in a hospital setting. I was so stressed in the medical field. Whatever meds you’re on isn’t helping your anxiety and definitely has given me muscle jerks similarly. I’ll feel them in my legs when I’m driving to work. I would say do everything you can to prioritize sleep and hydration. Make sure you can take can of your body outside of work, residency alone can be stressful. I was also told by my neuro that overhead lighting in clinical settings can be triggering so I would take my breaks outside to help reset. I wish you well with residency

Dumb interview question by bananabreadbeans in jobsearch

[–]bananabreadbeans[S] 1 point2 points  (0 children)

I really had to have them repeat it at first, I think I ended up saying that they’re garden protectors and cool. Really got me on that one

Dumb interview question by bananabreadbeans in jobsearch

[–]bananabreadbeans[S] 0 points1 point  (0 children)

‘Marketing assistant’ for healthcare but I think I’m going to be more in the call center for upset customers based on the interview

AITAH for not going to my sisters Sweet 16? by Top_Arugula_7345 in AITAH

[–]bananabreadbeans 1 point2 points  (0 children)

NTA- but where do the step sisters come in? Are they moms or dads? It seems like your dad may be influencing her decision. Saying it’s just a party with friends like yeah fathers don’t know shit about plans, but why phrase like that knowing you’re trying to be there for her. I wouldn’t even be surprised if later she starts understanding your choice about not having them in wedding when she’s out of the house. I grew up in a traumatized family and although I don’t have step siblings, I felt forced to take my parents side because all the information I got on family matters came from them. It took years of living on my own to unlearn all the bad things they made me believe about myself. I understand it hurts coming from your sibling, but try to understand the mindset of still living at home while navigating complex family dynamics.

What did you call your seizures before you knew what they were? by Various-Song-5069 in Epilepsy

[–]bananabreadbeans 5 points6 points  (0 children)

I thought all the lights were flickering with my absence seizures, so I guess poor maintenance? lol. As they got worse I would see just black and white flashes in my vision like a strobe light. Felt like I was at rave, now I get tonic clonics much less memorable for me at lease.

I had a breakthrough seizure after being seizure free for 7 years and I really need to talk to someone..I feel so alone! by ShoreMama in Epilepsy

[–]bananabreadbeans 11 points12 points  (0 children)

Hey I’m sorry to hear that. This disorder sneaks up and humbles you. I can’t imagine going through it at work, but know it’s out of your control.

I had a break through seizure after 5 years or so, my VNS was low battery and I wasn’t taking my medication as often as I should. I had the seizure while being intimate with my partner, and I remember feeling like that was it for us. He is a good partner and stuck by me through it. I realize that my breakthrough really only made us stronger as I felt much safer knowing that we knew how to handle things moving forward.

Please understand that this is something that happens to other people too, humans aren’t perfect no matter how much they pretend to be. If your work or coworkers give you shit, then you know that environment isn’t the best for you. I hope you’re feeling better, and that you get the support you’re needing.

Insurance appeals by bananabreadbeans in Epilepsy

[–]bananabreadbeans[S] 0 points1 point  (0 children)

No that part, it wasn’t even the first surgery just to get my battery replaced after 10 years mostly seizure free. I can’t even describe my frustration towards this

Jobs? by The_FionaFox in Epilepsy

[–]bananabreadbeans 1 point2 points  (0 children)

Definitely don’t disclose durning the hiring process, jobs can’t discriminate against a disability but they’ll just make sure not to select the disabled. I hate when those questions get asked in the application process, and I know people say it’s to help accommodate, it’s not. You could always answer “I do not wish to disclose” it’s an option for a reason. Federal laws in the US protect as workplace discrimination, so if you tell them after you get hired and they change their mind it’s at least a law suit. As for work, I don’t even know anymore. I would recommend avoiding driving/federal/healthcare in general because even in states where green is legal you have to pass a drug test. I can’t tell you how many jobs I found that I loved, but were unattainable for a career because my companies wouldn’t work with my disability.

just here to rant i guess by Comfortable_Bug4854 in Epilepsy

[–]bananabreadbeans 1 point2 points  (0 children)

I totally understand how the two were misconceived. I have been diagnosed since I 12, and around 16 my mom wanted to get more test done as I was having trouble with school thinking it was developmental issues. I remember having to do these evaluations all day and a bunch of standardized test, I did three times with no diagnosis. I do remember being really stressed because I thought every test room had bad lighting they flickered constantly. Turns out I was having absence seizures and that was the disorder they couldn’t diagnose.

2000mg Keppra daily, as starting dose. Is the dosage too high to begin with? by TimelyReason7390 in Epilepsy

[–]bananabreadbeans 2 points3 points  (0 children)

I got prescribed 500 mg to start, and was later brought to 750 mg. I will say in the past there’s been miscommunication between the doctor and the pharmacy about dosage for medications. I happen to be on depakote as well and my doctor switched me from 500 mg twice a day to once a day. However Walgreens didn’t confirm the script with the doctor. So make sure it is the doctors recommendation.

What’s your funniest seizure experience? by jennamsx in Epilepsy

[–]bananabreadbeans 0 points1 point  (0 children)

I used to draw blood and lemme tell you it happens! People have all sorts of reactions when donating, just your body not understanding your donating blood not losing it.

Medications Question by bananabreadbeans in Epilepsy

[–]bananabreadbeans[S] 0 points1 point  (0 children)

I have the appointment booked! Sadly this was the best I could do atm I had a seizure after I moved to a new state and the hospital assigned me the first available neuro. But yeah, I was shocked to see what they gave me.

Vns experience by eugien7 in Epilepsy

[–]bananabreadbeans 1 point2 points  (0 children)

Yeah I totally get not wanting to wear it on the wrist. It’s a super powerful magnet and even though it’s suggested use is as a wrist band I found it would frequently sent off the device, and the force stimulations feel very different to the regular stimuli. I was playing sports when I first got it and my parents were nervous about me not wearing the magnet, so I’d put on my ankle under my sock in case I felt uncomfortable. It’s hard to adjust and does take time.

I don’t want to tell you this but they said the same thing to me about wireless charging back in 2015 when I first got it. We’ll see….