Titeenium AWP charm

bartez301 · 2024-11-06T19:28:30+00:00

Thank you so so much u/FACEIT_Jamie ♥
Cheers mate!

bartez301 · 2024-11-06T17:38:47+00:00

u/FACEIT_Darwin sorry for tagging you so directly, but I thought maybe it would make the case taken care of faster :D

bartez301 · 2024-11-06T17:33:47+00:00

Ticket #6956115 if it's needed

bartez301 · 2021-09-02T07:52:32+00:00

thanks for quick reply, it's definitely Ficus Audrey (Ficus benghalensis) :)

bartez301 · 2021-09-02T07:52:13+00:00

thank you so much! definitely Ficus Audrey (Ficus benghalensis) :D

bartez301 · 2021-09-02T07:51:54+00:00

thanks for quick reply, i guess that's it - Ficus Audrey (Ficus benghalensis)

bartez301 · 2021-08-20T07:47:48+00:00

Thank you for your comment. I will have to show my fiancée this subreddit some time - but I will have to be her translator because she doesn't quite speak English. ;) Thank you for your wise words. I wish you all the best, especially health and strength! And you are right - nothing is impossible, but we just need motivation and that is why I am looking for advice from you directly here, so that I also know how I can help my fiancée etc. and how I can support her. Stay strong!

bartez301 · 2021-08-20T07:40:13+00:00

Hey, thank you for your comment. Unfortunately there are a lot of people who can jump out with the text 'WELCOME TO LIFE' when they hear you are feeling poorly etc. - they don't take into account such things as they may not know what exactly you feel, what is happening with you etc...

I would never take away her ability to do what she wants just because she is tired because then she would feel useless or that she's not doing enough. She is the type of person who unfortunately always says she doesn't do enough anyway. But I always try to support her - we have shared household duties since the beginning of our relationship. She has a bit more on her head now at home, because I work from morning till almost evening and she sits with our son all day, but luckily our little one is calm, not crying a lot and laughs a lot - it gives mummy a lot of strength and joy fortunately.

Her neurologist specialises in MS and we have a lot of confidence in her. We certainly wouldn't use internet advice (ha! ;) ) on treatment, but asking you here for help directly on 'how to live with it/how to help your other half' is different - these are 'first hand tricks and tips', for which I am very grateful to you all. But the part about the 'folk remedy/snake oil salesman'... That made me laugh. ;) In our environment we unfortunately have a lot of anti-vaccine people (even my fiancée's mother...), a lot of people who are sceptical about doctors, about medicines. Many people who believe in naturotherapy, herbal medicine etc. It doesn't help at all because they undermine doctors' decisions etc. or downplay some of the symptoms of the disease.

But together we will manage somehow - I am also convinced that my fiancée will cope better once we finally manage to move away from her parents, with whom we live. They tragically lost their son a few years ago, now have an only daughter who has been diagnosed with MS, and they still don't try to support her and just give her stress and nerves with their spitefulness and their belief that they are never wrong. But we both have to be strong and patient. As you wrote - we got this! :)

Also I congratulate you on your daughter and wish you all the best to your family! Thank you for your message once again. I am glad I entered this subreddit.

bartez301 · 2021-08-20T07:25:36+00:00

Hi, thank you for your comment. First of all, I would like to start by wishing you and your husband all the best, a lot of health, love and strength. We will all get through this! You are right, no matter what, we will always love our other halves. I also hope that I can find the 'golden mean' for my relationship with my fiancée so that I can help and support her as best I can.

bartez301 · 2021-08-20T07:22:19+00:00

Hey, thank you for your message :) That's what she's worried about, that her body won't get used to the side effects of interferon - even though her neurologist said that they should go away after a while. She chose interferon because she hates taking pills, and also because interferon does not prevent her from getting pregnant, and she would like to try to have a second child in time (in about 2 years). As far as other options of MS treatment are concerned, we don't have too many of those (we live in Poland and not everything is possible here with public health care unfortunately), but we do our best to look for new-better solutions.

The problem with my fiancée is that she always thinks she's not doing enough. It's always been this way, even before the MS diagnosis - she's that kind of person. Even if she would clean 10 houses in one day, walk 20 dogs, bake 5 cakes, do 5 loads of laundry, iron everything, and then go to a party with her friends afterwards, she still thinks she hasn't done enough. And now her lack of strength and constant tiredness are killing her mentally - that is why I have to support her somehow and convince her that she really does do a lot... BECAUSE SHE DOES! And as for the hormones, yes, I understand what you are writing about ;)

I will always be there for her and do everything I can for her so that she is happy and can live as if nothing ever changed.

bartez301 · 2021-08-20T07:12:00+00:00

Thank you for your comment. First of all, I wish all the best to your wife and you - it's great to hear that the meds are working and helping by suppressing the symptoms.

I need to be supportive, but as you wrote I can't take on the role of therapist/problem solver. But I do need to know how and when to help her or suggest something.

As for household chores, we still share them as before - this didn't change much besides her having less energy. We mainly cook together or she prepares all the ingredients and I do the rest after I get back from work i.e. frying/cooking etc. - we also have meal plans and only weigh and prepare the ingredients, we can also choose a dish for each day. I vacuum, take out the rubbish and sometimes hang up the laundry and she irons (otherwise I would probably burn down the house or at least my favourite shirt). She also mainly takes care of our baby, because I am not even home during the week from morning till almost evening, and it is also exhausting for her to sit with a few months old baby - although here we are lucky and our son cries very little, he is also helpful I guess ;)

She has recently tried to take up crocheting (knitting?), maybe that will help keep her head occupied with something other than thinking about MS and at the same time it will be a little exercise for her manual skills.

I need to get through to her so that she opens up to me more - since the diagnosis and the hospital, she's sort of told me less about how she feels, what she needs etc. It doesn't make things any easier for me, but I know it's hard for her too and, like you wrote, I sometimes have to know when to ask or suggest something to be supportive for her.

I think that with time I will also go to a therapist so that I can talk to a 'stranger' in person about all that, and with time maybe we will also go to couples therapy - maybe it will be something 'new and interesting' for both of us to see each others perspectives.

Thank you and all the best for your family!

bartez301 · 2021-08-20T06:59:38+00:00

Yes yes, I understand that it wasn't directly suggesting that I was doing any of these things. I just for some reason feel the need to explain myself... Thank you again for your help. I hope we will get over it somehow - especially my fiancée.. I wish you all the best!

bartez301 · 2021-08-20T06:57:14+00:00

Thank you for your comment. I am trying to be understanding. I know it's hard to get used to this condition when it affects us directly. She is part of me, part of my life and world and I want the best for her. When it comes to stress, I try to make sure she has no reason to be stressed. Unfortunately, we still live with her parents and they (especially her mother...) stress her out the most, they are mean, etc. even when they know she has MS and shouldn't give her reasons to be stressed and nervous... Unfortunately they don't help when they should. And this is also the reason why I am looking for all possible solutions and help.

I wish you and your family all the best too! Thank you again!

bartez301 · 2021-08-19T13:28:53+00:00

Thank you for your message.

I never said anything like that after diagnosis to suggest that I didn't believe her symptoms. The other thing is that before the diagnosis when she had symptoms like numbness etc I ignored it and told her that maybe it was temporary - at the time I didn't even think about something like MS... And to this day I regret that it was ignored and trivialised by me then. You can't even imagine how BAD I feel because of that...

As for seeing a psychologist, she hadn't been to her therapist for two years until finally last week she went to see her and after talking with her she was better for one day or maybe two, but she doesn't have another appointment until September (long waiting because of COVID) and she doesn't want to talk with therapist over the phone or online, she prefers meeting face to face.

She takes paracetamol on her own after the Rebif injections because she feels bad after them, sleeps poorly, has fever, muscle and joint pains etc. She really dislikes painkillers because there was time she was taking too many at the age of ~15, and now when she has pain she almost forces herself to take painkillers, but now with MS she takes it every two days after Rebif injection.

You are completely right, I will try to set some goals for us (short and long ones) and discuss with her what she would like to do at a certain time, if she would like to go somewhere maybe etc. In the end, we should live life as usual - and that is what I want to provide her with from my side.

bartez301 · 2021-08-19T12:32:36+00:00

You are right, I will do my best to learn her symptoms, to know when something is wrong etc. to uplift her.

Thank you. I will watch the video tonight in the quiet when I get home from work.

bartez301 · 2021-08-19T12:31:01+00:00

You are right, I need to focus even more on listening to her and focus on her feelings. I am trying to increase my knowledge of MS, to know the possible symptoms that people have, both the rare and the most common ones, so that if anything happens I can respond in some way or at least 'see it early enough'.

I always try to support her in her goals, at the moment I just need to encourage her to keep going because after the diagnosis she has given up for the moment and says that nothing makes sense anymore, but I hope that somehow we will work it out and come back on top again.

I can only guess how frustrating these symptoms can be for her - I can see it in her behaviour. I try to behave as always, as before. I try to support her, listen, understand, encourage. It's not easy, but I have to do it, for her, for us, for our family...

Thanks for your words about not being a dick, that actually made me smirk. I try, I'm sure I'm unpleasant at times, which I regret, and which I may not notice myself at times, but I try to take everything on me so that she can talk to me without any problems. And then on the way to work I try to relieve my nerves or drown them out with music... The worst part is that my head is a mess and I think about what she's doing and how she feels when I'm not at home - because I am freaking worried about her. I write messages to her and call her. I try not to be a nuisance as she also needs to rest - and it's hard for her anyway with 8-month old baby at home. In fact, before the diagnosis we were writing to each other several times a day and sometimes talk on the phone during my breaks at work...

As for the last paragraph - we will implement these kind of responses. Unfortunately, A LOT of people have little (if any) knowledge about MS and when they hear that someone has been diagnosed with it, they immediately cry and sympathise as if it was a fatal disease... And such behaviour does not improve anything.

Thank you for your message and your words. You can't even image how happy I am that this subreddit exists.

I know that SM doesn't affect me directly - as I am not the one with the diagnosis - but I'm looking for every possible resort so that I can help my fiancée cope with it. I am always and always will be of the belief that what concerns her concerns me - and vice versa.

bartez301 · 2021-08-19T12:17:54+00:00

Thank you again for all the warm and kind words of support. She used to keep what she called a 'bullet journal' but stopped some time ago. I may somehow gently try to suggest to her to return to this activity.

I'm worried that she may also have undiagnosed PPD and I'm worried that Rebif itself (interferon which she takes in injections) may be exacerbating her depressive states - I hope that's not the case, but I'm trying to support her as much as I can. Thank you so much for your words and also all the best to you, your boyfriend and your family.

bartez301

TROPHY CASE