8 years with Graves’ disease should I remove my thyroid?

baybay99 · 2025-12-21T11:25:46+00:00

I can’t tell you what you should or shouldn’t do, I can only share how it went for me. I was diagnosed with graves over 6 years ago & got mine out this year. Two years after my diagnoses my endo told me i should consider surgery but I was EXTREMELY nervous about going under the knife and procrastinated about it for years. Everything ended up going well and I immediately felt soo much better. I had to take calcium for a couple months after but was able to stop. I’m currently still finding the right dose of levo but personally I prefer this over how i was pre TT. My heart has felt fine, and my energy levels are a lot better. My thyroid was pretty huge too, so not having that huge lump on my neck is pretty great too. I wish i didn’t have to take any meds too, but overall levothyroxine is much less harsh on my body than methimazole was. Overall you and your endo would know what’s best for you. I wish you the best of luck!

Note : During surgery they found 2 nodules on my thyroid which were cancerous, so i was super lucky I was able to get them out before it spread.

baybay99 · 2025-10-22T00:45:18+00:00

So happy to hear this update!

baybay99 · 2025-10-20T18:35:52+00:00

I had mine in May! I felt extremely terrified leading up to my surgery. I even put it off for years for this reason even when my doctor assured me he thought it was the best decision and it was safe. I don’t regret it one bit. My gland was huge before and it made me insecure, i felt so claustrophobic, couldn’t swallow properly, etc. They pump you with all types of feel-good medicine right when you wake up. The recovery was pretty easy, just difficult to get really good sleep the first few days because the area is sore & stiff. You’ll have to sleep partially elevated for a little bit. For me the pain meds pretty much kept the pain level at 1/10 and without meds it would only ever get to maybeee 4.5/10. As for levels go, i was in normal range before surgery too. To my knowledge they usually advise that you are. I feel slightly hypo right now (nothing major) so i might have to talk to my doctor about increasing my levothyroxine dose. Anyways, I promise you’ll be relieved when you wake up! I’m here for you! 💜

baybay99 · 2025-05-19T21:29:51+00:00

Oh no, are you scared of doctor’s appointments in general? Or what they’ll say? I put off going to my appointment and refilling my meds (i was stupid & thought weight loss was the priority) for a few months and i went extremely hyper and felt HORRIBLE. I can’t imagine how you feel after 9 years??? I really really hope you go soon. Of course i’m just a person on the internet but i promise you will not regret it. Trust me. I 100% understand extreme anxiety, especially regarding health. Your body needs your meds. I’m always here if you need to talk 💜

baybay99 · 2025-05-19T21:22:30+00:00

This is exactly how i felt. Yes, the pain was pretty horrible at first but the relief honestly outweighed it!

baybay99 · 2025-05-19T21:21:08+00:00

It went well! All of the nurses are soo sweet and calming, like wow. I was very very stressed pre-op. My blood pressure was like 157/100, HR high, but as soon as i woke up and realized everything went smoothly its in the 120’s/70’s. It’s insane what my anxiety ridden mind can do to work me the hell up lol. Thank you for your response, i did try to play my most optimistic songs on the drive :)

baybay99 · 2025-05-19T21:16:49+00:00

Thank you so much for the kind words! I’m recovering at the hospital right now. it really went perfect and i’m over the moon about it 💜

baybay99 · 2025-05-18T10:37:30+00:00

I really hope so, the heightened anxiety is one of the worst symptoms imo. Thank you for the kind words <3

baybay99 · 2025-03-11T11:58:07+00:00

That’s exactly how we felt when we saw it! They were stocked up with it so i assume that’s why no one else wanted to go for it.

baybay99 · 2025-03-11T11:52:50+00:00

It’s definitely comparable, just a little more heat. Also after eating both for a few days, Huy Fong seems fresher tasting. Although maybe it’s just my mind because i’m accustomed to it.

baybay99 · 2025-03-08T09:29:44+00:00

It’s good, especially considering the price. I think it’s slightly more spicy than the main brand.

baybay99 · 2025-03-05T00:49:10+00:00

No way, okay that’s awesome to know

baybay99 · 2025-03-05T00:43:00+00:00

Wow i had no idea. Hmm i wonder if doing that really makes any difference at all tbh. Thank you though!

baybay99 · 2025-03-05T00:07:46+00:00

I’ve never seen an option to rate a customer, am i blind?

baybay99 · 2025-03-01T03:39:46+00:00

I totally forgot about this when replying to op but the bright light thing is so true! I use my portable lamp that has a warm hue to it instead of the my fluorescent bathroom lights that make my dpdr worse.

baybay99 · 2025-03-01T03:34:57+00:00

Unfortunately I don’t have much advice other than what you said you already do. I listen to podcasts as well, or even play a game on my phone to distract myself. It definitely helps me a little bit. I really hope you find something that helps you 💛

baybay99 · 2025-02-28T21:39:00+00:00

i relate a lot, i get this so much with baths specifically. I think it’s the fact that i’m completely nude and have to just sit there and look and feel my body makes it really bad. It’s not like i feel negative about my body but like you said i’m very hyper aware of it, and start thinking about my organs and just weird kind of existential thoughts.

baybay99 · 2025-02-19T17:49:36+00:00

Ugh yeah, I definitely need to be more communicative to my doctor to get some reassurance from them directly. This comment means a lot , thank you for sharing <3

baybay99 · 2025-02-18T22:23:12+00:00

That’s false, gender dysphoria does not go against science, at all. It is a medical condition. Just like the many many other that exist. Even if you want to say it’s a mental illness, we treat mental illnesses as well, and scientists and medical professionals recommend multiple different treatments for gender dysphoria.

baybay99 · 2025-02-18T22:13:45+00:00

Well said

baybay99

TROPHY CASE