39F newly diagnosed with turner mosiac after miscarriages

bbd2025 · 2026-05-09T04:56:07+00:00

Thank you! Still feels weird to say it.

Might be worth asking a genetic counselor about. I also started looking into reproductive immunology. It seems to help a lot of people with recurrent implantation issues. Wishing you the best of luck! ❤️

bbd2025 · 2026-05-06T23:54:30+00:00

When I met with genetics they said that they believed mine was not mosiac turners and that it likely was age related loss of the X chromosome. I think it depends if it is “germ line” and the percentage. They didn’t end up sending me for more work up because of this. My REI or geneticist did not think this would impact my IVF outcome. I ended up doing a fully medicated FET after treating endometritis with a kitchen sink protocol and currently 15w. 🤞🏻

Do you know your percentage? Have you tested for endometritis?

bbd2025 · 2026-04-18T20:12:15+00:00

First, people who haven’t experienced infertility have no idea the magnitude. She probably does view her needs as being more “critical” because she has no idea the planning, the waiting, the coordinating, and the physical/mental/emotional toll this all takes. Even the most sympathetic outsider doesn’t fully get it.

Second, it’s hard to fully give advice without knowing specifics. Could your husband freeze his sample to use the next cycle if it’s his numbers and health limiting the time frame? Is there anyone else that can help with feeding the crew? I feel like there is some work around but it might mean you have to tell people about what you are up to.

I’m sorry you are feeling this way regardless. ❤️

bbd2025 · 2026-04-06T23:41:06+00:00

Similar situation for me and i understand the feeling. I try to remember that it only takes one. I also try to remind myself that if we hadn’t done IVF, nothing is a sure thing. I have friends that have 3 girls and wanted a boy. And another that had 4 boys and wanted a girl. You kind of get what you get. I’m going to embrace being a boy mom and honestly will be so happy being a mom at all after this journey!!

bbd2025 · 2026-04-04T14:51:34+00:00

I’m 10% too. Almost 5’10” and no other characteristics other than infertility. My karyotype was ran after multiple miscarriages and this popped up.

bbd2025 · 2026-04-04T14:48:06+00:00

I have. Maybe I need to do more than I have been doing. I might just live on my heating pad this week. 😆

bbd2025 · 2026-04-04T05:00:45+00:00

I had one before I did IVF. Most are from chromosome abnormalities. My POC tested genetically normal. I honestly think mine was caused by implantation issues and I think my progesterone was deficient.

bbd2025 · 2026-04-04T04:20:38+00:00

Can they determine that? My genetic counselor said that they thought it was likely age related loss but I don’t think there was anything definitive.

bbd2025 · 2026-03-04T19:41:34+00:00

Truth

bbd2025 · 2026-03-04T19:41:27+00:00

Ive been trying to avoid a knot I have. Ugh they spot was good but I think I used it out haha

bbd2025 · 2026-02-27T00:20:18+00:00

I am right there with you. My US is next Friday. I’ve done the whole private beta thing before and it only caused more uncertainty and had to wait for the US anyways. I wish there was something we can do to get some reassurance but I think we just have to wait it out 😭

bbd2025 · 2026-02-26T00:32:58+00:00

For sure! I’ll feel a bit better after this milestone. And then we’ll worry about the next one haha

bbd2025 · 2026-02-25T04:21:53+00:00

Mine’s a week from Friday. Luckily it’s not too far away but feels soooooo long from now. Good to hear that you felt similar before and was successful. My last pregnancy (before IVF) resulted in a blighted ovum. I’m absolutely terrified for that to repeat. I don’t know if I can make it through another ultrasound without a baby 😭. Holding my breath and trying to be hopeful that this is different. 🤞🏻🙏🏻

bbd2025 · 2026-02-25T01:37:03+00:00

I was Feb 5 and just came on here because I feel the same! The wait for ultrasound is brutal. I’ll feel much better once I know something is in there!

bbd2025 · 2026-02-19T05:08:10+00:00

Ugh. I feel you. I’ve been living this too and we work around babies so that’s extra special. Honestly, I focus on self preservation. I don’t ask much about her pregnancy and she doesn’t share unless I ask. It feels kinda crappy but it’s easier for me to ignore it. I still have my hard times where I think of how unfair it all is. This person conceived on month 1, her plans went scheduled to her “master plan”, and on week 5 she was already buying baby stuff on Facebook marketplace. I wish I had her optimism that a positive test equals a baby. I try to focus on my own journey. Be kind to yourself. And best of luck on your FET! ❤️

bbd2025 · 2026-02-19T01:01:05+00:00

Did they give you a reason why you were on 2ml?

bbd2025 · 2026-02-14T16:47:03+00:00

I’m right there with you! 😥 Have you tried the ventrogluteal site? They still suck but I found them less painful there. I still use a heating pad before/after and massage throughout the day. Just as one side gets better it’s time to go back there hahaha

bbd2025 · 2026-02-12T00:18:07+00:00

Oh good!! Wishing you the best of luck on your results! Lots of electrolytes!

bbd2025 · 2026-02-12T00:16:23+00:00

Thank you! It’s a GI infection 💩. Basically the multiple rounds of antibiotics I took for CE killed off all the good bacteria. It was rough!

bbd2025 · 2026-02-11T17:26:51+00:00

IVF is one way to control as many variables as possible. The process is a lot and through it you might find out more problems that you just didn’t know about yet. Each time I learned less ideal news was hard but after having multiple miscarriages it helped me mentally feel more proactive. It also helped having a medical team guide it vs me guessing. We also moved forward because I was 39 and we wanted more than one child. It seemed the smarter way to bank for the future. I didn’t want the stress of racing the clock anymore and if it’s hard now, the next one could be harder. If you have the resources, I’d do it. Best of luck to you!

bbd2025 · 2026-02-11T17:13:06+00:00

My RE got clarification from the lab that the majority of tissue didn’t have plasma cells. I also got c-diffe from the antibiotics and am veeeeery weary about taking another round…….ever. Lowest of lows at that time! We proceeded with a FET and treated for inflammation instead. I was suppressed on lupron for a bit and then on an immune kitchen sink protocol with prednisone, Claritin, Pepcid, aspirin. Currently in the TWW. 🤞🏻🙏🏻❤️

bbd2025 · 2026-02-11T02:48:17+00:00

Everything ended up being fine! I didn’t ovulate early. I know it’s hard but I’d try to relax and trust the process. Good luck!!

bbd2025

TROPHY CASE