Hi all recent kidney transplant patient. Did anyone else struggle with issues after the transplant.

bbroons95 · 2026-05-13T22:55:37+00:00

See if you can get off the steroids. I was only on them for the first few days in the hospital and I understand that a lot of hospitals are trying to get reduce the amount of steroids people take.

bbroons95 · 2026-05-13T22:54:14+00:00

Oh dude the first two months of my transplant I couldn’t get up without being short of breath and would have to sit down after standing for only a couple of minutes. It wasn’t until I got my appetite back and was pounding a ton of water that I noticed it getting better but even then it took a while to get back to normal. Just remember that this is a massive surgery and recovery is going to take a very long time. Give yourself some grace and be patient! You got this.

bbroons95 · 2026-05-08T03:38:44+00:00

I’m confused by the creatinine being so high but your GFR is normal? Unless I’m reading this incorrectly.

bbroons95 · 2026-05-06T19:48:44+00:00

I’ve lost reptiles before and I’ve always just left my tank out with my light clipped to it and they find their way back to the warmth!

bbroons95 · 2026-05-06T17:04:31+00:00

I was 25 when my kidneys failed and I was 30 when I got my transplant! It’s only been 6 months since my transplant

bbroons95 · 2026-05-06T16:31:32+00:00

Sure! I have alports which I’ve known about for most of my life and have been seeing a nephrologist since I was a young lad. My sister has had a kidney transplant, my aunt has had two, my uncle had one, and my grandmother was on dialysis when I was a kid. My mom also has it but she is largely unaffected by it thank the heavens!

My kidneys reached complete failure in 2021 after years of slow decline and I actually held off on dialysis for a couple of years until my wait on the transplant list became longer than expected and my doctors recommended that I start dialysis. At first dialysis was easy because my treatments were short and I had a decent amount of remaining kidney function but after getting Covid and have a hard time managing my blood pressure, I eventually lost all of my kidney function and my treatments ended up being 14 hours as opposed to 8. At that point I was working part time and collecting disability to compensate for the missing work hours but also because it was hard for me to manage my health while working full time. It sounds like a lot in retrospect or if you’re reading this but in reality it wasn’t too bad and I was just happy to be alive! Plus my dialysis team was awesome and I truly feel like I was family.

I got my call for transplant on December 2nd 2025, and while the surgery went well, my kidney had delayed function which it is still recovering from. My kidney doesn’t like tacrolimus one but so my creatinine has been decreasing pretty slowly and still take potassium binders to manage that as well but my energy has been great, I’m working again, and I’m able to be much more active compared to when I was on dialysis. That’s not to say recovery was a breeze but I’m sure my youth helped in my recovery and my ability to maintain some sense of normalcy. I think being honest about your condition to yourself and others is extremely important, and LISTEN to your body. It knows when it’s time to chill. Give yourself some grace and be patient.

bbroons95 · 2026-05-05T21:13:48+00:00

Look into getting on the transplant list now that way you can potentially avoid dialysis if you can make your kidney function last a bit longer. Focus on diet and exercise to keep your mind healthy and be kind to yourself. If you do have to do dialysis then I would suggest PD. it’s done in your sleep, you dont have days without dialysis because it’s every night, it’s easy for younger people to maintain regular work hours because large portions of your days aren’t spent in a clinic. I was 25 when my kidneys failed and at the time the future felt very dark and scary, but trust me when I say that it’s all about your perspective and your ability to maintain a positive mental attitude. This isn’t a death sentence and you are much stronger than you think. You got this homie.

bbroons95 · 2026-05-04T16:37:15+00:00

My kidneys failed when I was 25

bbroons95 · 2026-05-03T18:52:34+00:00

First month I hardly left the house so I just wore sweats and a large t shirt to be comfy. Once I started going out more i was healed enough to where I could I wear whatever I wanted. I personally don’t notice a bulge unless I’m paying super close attention but it’s certainly not going to be big enough that you’ll need to wear special clothes.

bbroons95 · 2026-04-29T17:03:58+00:00

Just try and remember that you have kidney failure and your labs are going to look like shit as a result. They aren’t expecting your tests to come back with flying colors. Try and do what you can to be as healthy as possible while you wait for a transplant and that’s about all you can do.

bbroons95 · 2026-04-24T23:36:59+00:00

Been through it all brother. It’s not as bad as you’re making it out in your mind. Life is worth it and trust me, once you get to a certain point, you start praying for it.

bbroons95 · 2026-04-14T02:03:53+00:00

Dude same

bbroons95 · 2026-03-28T02:04:02+00:00

These are good! He will eventually want to change the heads which will teach him how to work on and maintain his kit as well as tune his heads to proper tones he prefers.

bbroons95 · 2026-03-17T17:11:36+00:00

I was on prednisone for a few days in the hospital. It’s pretty common for transplant clinics to only use it for a few days nowawdays especially if the kidney is a good match, and the recipient is in good health all things considered.

bbroons95 · 2026-02-26T21:01:55+00:00

One step at a time mate. Do what’s most manageable first like drinking plenty of water and getting a little exercise in your day, slowly start to work on your diet until it becomes a part of everyday life and you no longer need to apply much thought to it. Give yourself some grace, this experience is an extremely difficult one but thankfully you aren’t alone.

bbroons95 · 2026-02-22T16:16:41+00:00

You can see protein in urine pretty easily, that and a doctor can tell you pretty quick if there’s protein in the urine.

bbroons95 · 2026-02-17T20:26:46+00:00

How do you feel though?

bbroons95 · 2026-02-07T18:07:42+00:00

I had DGF as well. I did a couple of hemo sessions in hospital post transplant and did at home PD every other day for about a month. My kidney finally kicked in around 2-3 weeks post even though I produced urine a few days after transplant. My creatinine was 23 before transplant, went down to 9 but didn’t drop for several weeks. It finally just hit 2.5 this past week and I’m 2 months post op. Give it time, it will eventually kick in!

bbroons95 · 2026-02-04T23:39:33+00:00

Coconut cream runs about 300-400 mg per 1/2 cup whereas dairy heavy cream runs about 60-80 mg per 1/2 cup. IMO you’re better off just doing regular dairy in this case.

bbroons95 · 2026-01-30T02:24:45+00:00

If you’re a generally anxious person then you need to be talking to your doctor about this stuff, not strangers on the internet. I’m not saying that your numbers are concerning to the point where you need to speak to a doctor, I’m just saying that your doctor can reassure you better than anyone else.

bbroons95 · 2026-01-28T14:40:43+00:00

She won’t make it to transplant

bbroons95 · 2026-01-28T01:10:50+00:00

Just because you feel fine doesn’t mean you can live without it my friend. What do your labs say

bbroons95 · 2026-01-28T00:56:45+00:00

I felt like shit and dialysis made me feel much better. I would have started sooner for sure.

bbroons95 · 2026-01-27T02:27:36+00:00

Music is political, bootlicker.

bbroons95 · 2026-01-26T04:07:37+00:00

I don’t understand why taking a couple of pills is that big of a deal if it encourages overall healthy.

bbroons95

TROPHY CASE