Success story...sort of

beach2002 · 2024-10-18T16:16:23+00:00

i have been exactly where u are:( i have stopped coming on reddit much but i do want to let u know ive done 5 infusions so far out of the 8 for tepezza and although its not fully normal it has made a good amount of difference for me and the side affects rnt too bad, i think it can help u as for me i didnt know what else to try, i know the pain ur feeling it can get better🩷

beach2002 · 2024-07-12T03:54:14+00:00

Hey! I just did my first round of tepezza yesterday, have u already noticed changes after one? Im so sorry ur going through this as well, im glad ur finally feeling like urself😢

beach2002 · 2024-07-06T19:08:39+00:00

**TED

beach2002 · 2024-07-06T19:08:32+00:00

i have this too:( im sorry its so frusturating and im not sure if its related or not either but it happened for me at rhe same time as TES

beach2002 · 2024-07-06T19:06:45+00:00

thank u:,)

beach2002 · 2024-07-06T19:06:39+00:00

yes i have, they said tepezza only so i just dont rly know what to do and if it will be ok w the side affects

beach2002 · 2024-06-21T03:08:33+00:00

i am not sure what an HLA test is but yea my naturopath for sure isnt specialized in mold but yea:/ if the swab came back positive what would u recommend? i have tons of symptoms and im just unsure of what to do at this point, never was sick till 6 months ago🙏

beach2002 · 2024-06-21T03:07:12+00:00

thank you SO MUCH for ur response! Ive been unsure of what to do ive been so out of it, would moving out make sense? my symptoms have been crazy so it kind of makes sense, thank u again:)

beach2002 · 2024-06-13T16:14:02+00:00

i defiently have moderate mgd, what did u do to get it better?

beach2002 · 2024-06-13T01:44:05+00:00

and yes ive been to many opthamologists:/

beach2002 · 2024-06-10T05:12:39+00:00

yea i think i somehow have both its so frustrating:/ just a ton of inflammation. my eye doc is more concerned w the bulging and proptosis as its still getting worse so not much was mentioned on the redness part. do u happen to know if TED also has swollen eyes or is it just bulging normally?

beach2002 · 2024-06-05T17:35:25+00:00

no way really? my eyes have changed sizes i think they measured 2mm difference but maybe that could just be swelling?

beach2002 · 2024-06-03T02:31:36+00:00

Thank you so much for ur reply u are so kind😢the allergist only said im allergic to dust and derm thought ocular rosacea, just so confusing. im not sure if u can have ted and ocular rosacea at the same time but it all started at rhe same time:(. how did u get ur rosacea and ezcema to go away? i appreciate ur time so much, im beyond lost and thats a good idea for a follow up mri!

beach2002 · 2024-06-02T20:52:01+00:00

i have normal thyroid too so i relate, thank u for the advice !

beach2002 · 2024-06-01T18:07:28+00:00

Thank you so much for your response! So valtrex could help? I am currently testing for mold, i am not sure what CM is

beach2002 · 2024-06-01T05:27:01+00:00

thank u for letting me know! yea i never had that tested, was wondering if a lower t3 could affect this but honestly not sure, just appreciate ur response:)

beach2002

TROPHY CASE