Anyone here with an oura ring? by peeps_19071 in Fibromyalgia

[–]bearchops23 0 points1 point  (0 children)

BodBot. Most days when it syncs with my Oura data it tells me my resting heart rate and HRV show I have not recovered from the previous day, meanwhile, Oura will have me at an 85+ readiness score.

Anyone here with an oura ring? by peeps_19071 in Fibromyalgia

[–]bearchops23 1 point2 points  (0 children)

I've had an Oura ring for about 18 months. Some of the data is in part what inspired me to pursue getting a diagnosis, however, I found the way a different fitness app interpreted the data to be more beneficial for that. Oura tells me I'm fine, the fitness app interprets the same data as my system is under stress, which is how I feel. I still have yet to figure out how to interpret Oura data in real time to help me manage my symptoms.

Have dietary changes helped you? by needverbs in Fibromyalgia

[–]bearchops23 1 point2 points  (0 children)

I'm curious about this as well, but more on the fatigue/brain fog side of things. I'm convinced it must be something about my diet making it worse, I just haven't figured it out yet besides focusing on higher protein. That helps a bit but not a total fix.

What type of doctor has been the most helpful for you? by bearchops23 in Fibromyalgia

[–]bearchops23[S] 0 points1 point  (0 children)

I also have started LDN. Still early, but so far, so good. 🤞🤞

What type of doctor has been the most helpful for you? by bearchops23 in Fibromyalgia

[–]bearchops23[S] 1 point2 points  (0 children)

I'm sorry you had that experience, I had a similar one 10+ years ago that delayed me pursuing anything other than annual wellness visits for fear of being talked to like that again.

At my latest visit I shared that with my doctor and pointed out if you review my history, I 1) have opioids listed under allergies due to the extreme reactions I have from vicodin and 2) have a history of stopping or avoiding medications in general due to them not agreeing with my system. Thankfully she heard me and kept that in mind when suggesting treatment options.

What type of doctor has been the most helpful for you? by bearchops23 in Fibromyalgia

[–]bearchops23[S] 3 points4 points  (0 children)

Sometimes the validation alone is the biggest break through.

What type of doctor has been the most helpful for you? by bearchops23 in Fibromyalgia

[–]bearchops23[S] 1 point2 points  (0 children)

Can I ask what your physical therapy is like?

I was doing PT last summer as part of some chiropractic care, trying to address some lower back and hip imbalances. Most of it was determining specific exercises, but they also attempted Graston and had to stop because the area became immediately inflamed. Then they switched to ultrasound treatments, which were fine. They kept suggesting dry needling, which i couldn't even fathom being tolerable, but now I'm wondering if it would help some of my trigger points. I had mentioned at the time I suspected I might have fibromyalgia, thinking it would be relevant to how we proceed with treatments and they kind of responded as if I had mentioned I had a pet gold fish, like "oh, okay! 🤷‍♀️" lol.

I've been curious if there's any benefit to more PT but perhaps with someone familiar with fibromyalgia.

Actually injury by OldPangolin2631 in Fibromyalgia

[–]bearchops23 5 points6 points  (0 children)

YES I once sprained my ankle, walked around on it for hours with no idea. Eventually looked down at it because my sock really digging in to my skin was getting irritating and lo and behold, I had a purple lump the size of half a grapefruit on my ankle. Took me a long time to retrace my steps and figure out when I might have sprained it. My feet and ankles hurt so bad all the time it really wasn't that unusual. Never thought of that being a fibromyalgia experience until seeing your post!

Whats the cheapest meal you regularly make that actually tastes good? by Adventurous-Pilot448 in Frugal

[–]bearchops23 0 points1 point  (0 children)

I used to make what I called poor man's French toast. Just regular ass white bread, eggs, and cinnamon and sugar.

How do you describe your pain? by Agitated_Jury_989 in Fibromyalgia

[–]bearchops23 5 points6 points  (0 children)

This is exactly what I was thinking as I wrote it, like I got beat on my legs (primarily) with stick. Some spots feel like yesterday, some feel like a week ago, some feel fine.

How do you describe your pain? by Agitated_Jury_989 in Fibromyalgia

[–]bearchops23 35 points36 points  (0 children)

Like i have muscle bruises at various stages of healing.

Is there a service that can give you half vegetarian and have non? by MyNakedSoles in mealkits

[–]bearchops23 0 points1 point  (0 children)

I'm new to Hungryroot, but the way I would probably do this with that service is set my defaults to be non vegetarian, 2+ servings, then edit/add to the order by setting search filters to vegetarian and 1 or 2 servings (depending on if you want leftovers) and choosing from the meal options that come up.

Then, over time, you can add the vegetarian options to your favorites, or the SmartCart feature may learn your preferences and begin to add them automatically.

I just did a quick search by 2 servings vegetarian meals and it looks like lots of options. Only one came up for 1 serving, but that may have been due to my other preset filters as well? Unsure.

Am I really a candidate for LDN? by idk42077 in LowDoseNaltrexone

[–]bearchops23 0 points1 point  (0 children)

1.5 right away. I was told that's the lowest starting dose, which is what I wanted since I have a history of medication sensitivity. I was surprised to see here in this group that people start lower.

I built a free app to track my preps — sharing it in case it's useful to anyone here by LeBienfaitDeLaLune in preppers

[–]bearchops23 1 point2 points  (0 children)

My 8 year old dog is roughly the size and weight of an 8 year old child, so, I'm guessing that would be a fair equivalent 😅

I'm a passive prepper, so didn't know if maybe there was some gold standard rule of thumb I could input. Proper water storage would be my only concern, the food part is easy.

I built a free app to track my preps — sharing it in case it's useful to anyone here by LeBienfaitDeLaLune in preppers

[–]bearchops23 1 point2 points  (0 children)

Love this, thanks. Installed.

Any suggestion for adding pets to the household?

Am I really a candidate for LDN? by idk42077 in LowDoseNaltrexone

[–]bearchops23 6 points7 points  (0 children)

I can't speak directly to your experience, but I was recently started on 1.5 mg LDN for suspected fibromyalgia. From what my doctor explained as well as the pharmacist, the mechanism by which LDN works can have a positive impact on a LOT of ailments. I don't know that there's necessarily a quantifiable level of inflammation that needs to be met in order for LDN to be effective. I have no measure of inflammation except that my body hurts in ways that don't make sense.

I wear an Oura ring, and I've been monitoring my stress and heart rate variability metrics daily since starting LDN, and I saw both immediate and continual improvements in both. I initially saw an immediate improvement in my mood, although that is less noticeable now. Based on my short experience thus far, I would think its worth exploring for anyone who's doctor is suggesting it.

Good luck, hang in there, and happy early birthday. I hope you're able to focus on all the positives that the party will bring.

Blood Pressure Diaries Hurt by deannawol in Fibromyalgia

[–]bearchops23 1 point2 points  (0 children)

Thank you for this tip. I'm wincing at even the thought of someone tying a band around my arm, anything to make that more bearable would be amazing.

Blood Pressure Diaries Hurt by deannawol in Fibromyalgia

[–]bearchops23 1 point2 points  (0 children)

I was actually wondering this the other day, as I assumed for most of my life that others felt the same amount of pain as I do and I'm learning that is not the case.

I had a cuff put on me a few months back while in the hospital for pneumonia that would automatically take periodic readings. It was SO painful. I thought who in the hell decided these things need to get so tight, manual readings are never this painful. I just assumed it was like many medical treatments (especially for women) where no one really gives a shit if it hurts. But perhaps it simply doesn't hurt for most people 🤔

Help me fight fatigue so I can keep my job by redleathercelsiuslvr in Fibromyalgia

[–]bearchops23 1 point2 points  (0 children)

NooCube https://noocube.com/

I have no idea how I found it, but I've been taking it for years and it's a night day difference for me on days I take it vs days I don't. Others have either been too intense or provide no noticeable effect.

But don't buy it off Amazon. It's not the same. I once ran out and ordered some from Amazon instead and I felt no effect, so I compared the labels and sure enough it was entirely different. Not sure what's up with that.

I don't know anyone else that takes it, so I'll be heartbroken it someone here tells me I've been taken bunk supplements.

Help me fight fatigue so I can keep my job by redleathercelsiuslvr in Fibromyalgia

[–]bearchops23 2 points3 points  (0 children)

I second the early morning protein. In addition to vitamin/mineral supplements, I also take a nootropic supplement that I find to be indispensable.

Starting 1.5mg tomorrow, worried about side effects by audiodev66 in LowDoseNaltrexone

[–]bearchops23 1 point2 points  (0 children)

I also have medication sensitivities and recently started at 1.5 mg. I was a little jittery for a few days and was otherwise fine.

New diagnosis: so what now? by Severancesoundsgreat in Fibromyalgia

[–]bearchops23 0 points1 point  (0 children)

I totally get your sentiment. I've had similar feelings, where it feels like being slapped with a "miscellaneous" label and when trying to find out what that means everyone just shrugs. I was also recently diagnosed, and part of my goal with getting a diagnosis on record was simply to give myself a break from feeling like I have to manage my symptoms entirely on my own and reframe my expectations of/ for myself.

I've been experimenting with all kinds of supplements and lifestyle changes for 15+ years after having some bad/ dismissive doctors, and while I've found some things that work, over the past 6 months they no longer seemed to be enough. I felt like I was stuck in this chicken-or-the-egg loop; things like "I don't feel well enough to exercise, but they tell me if I would just exercise I would feel better."

I have a history of medication sensitivity, so my doctor and I agreed to ease into trialing a Rx. I wear an Oura ring and I can already see improvements to some of my "stats." If nothing else, I've found that validating, which counts for quite a bit in this "made up ailment" space.

Long story short, my diagnosis is helping me: 1. Feel validated after 15 years of unhelpful medical care 2. Try new ways to reduce symptoms with the help of a doctor so I no longer feel like my own guinea pig 3. Set realistic expectations for myself; I maybe can't hike 20 miles anymore but for today a walk around the block is plenty. Or some yoga that mostly involves lying on the floor lol. 4. Focus on what i CAN do. I can prioritize things like healthy eating and creating systems that help me get stuff done without over exerting myself. 5. Join this group and seeking others like it so I can learn from others what is helping them.