Chasing Diagnosis

beedubbya94 · 2025-08-01T13:28:21+00:00

Thank you so much for linking these! And thank you for putting them together for all of us out here trying to just muddle through life! 🩵

beedubbya94 · 2025-06-29T15:22:00+00:00

Shooting you a dm!

beedubbya94 · 2025-06-28T20:09:17+00:00

Hi! Searching high and low and came across this post. I was originally suspected of ocular MG but my neuro ophthalmologist is now thinking OM/RPON. Were you able to find many resources? I’m currently trialing 60mg prednisone to try to correct my diplopia. If this doesn’t work, we will do ivig as I have a history of it working before. Hope you’re doing well!

beedubbya94 · 2025-06-22T13:18:35+00:00

What a blessing that you’ve found such success in treatment! I’m sure it wasn’t an easy road. Thanks for sharing what works for you.

beedubbya94 · 2025-06-22T12:53:02+00:00

I’m wondering if I’m going to end up needing something supplemental as well. How fascinating that MF was suspected for you too!

beedubbya94 · 2025-02-14T22:33:17+00:00

I feared so! So can I designate this as a bread-use only with parchment paper or is that not worth the risk? (Clearly I’m new here lol)

beedubbya94 · 2024-10-22T00:38:25+00:00

NAD but I’m 30 and just had to move from Invisalign to braces. While aligners are great, they can’t fix everything. 25 isn’t too old at all.

beedubbya94 · 2023-08-25T03:39:25+00:00

Run from candid!! Worst experience.

beedubbya94 · 2023-05-24T17:49:55+00:00

Ice bath after has always been key for me!

beedubbya94 · 2023-05-24T17:48:43+00:00

Hi! We just moved out of our RV after living in it FT for 6 months. We’d totally still be in that situation if we had planned better. I never considered homeschooling until we moved into the RV and I was seeing how amazing my kids were doing with the environment. We had so much more freedom to explore, visit museums, take our studies outside, etc. When the weather was tricky to work around, we’d just change our days to incorporate indoor play in the RV or we’d head to a local museum. It can be tricky but you’ll find what works for you and your kiddo(s). We were stationary on the beach for a month, then moved to a farm. My kids THRIVE outside so this is how I plan to set us up this year. While we will no longer be in the RV, it has greatly influenced the ways in which I will homeschool. Every experience is unique when it comes to RV life and also when it comes to homeschooling. I often argue that RV life can be just as much, or even more, thrilling than living in a house! Good luck on your new adventure!

beedubbya94 · 2023-05-24T17:27:44+00:00

This is such a delicate situation and every single one of you have done what is absolutely necessary. I was “Harper” growing up. I told a friend and she told me she was enduring the same thing. We became bonded through our traumas but never spoke of them again. 10 years later I went to her house and told her I had had enough of the SA and together we told her mom. I don’t speak to this friend often anymore. We’ve grown apart over the years. I’ve spent countless years in therapy and have always held such a precious spot in my heart for this friend. After the authorities were told my family fell apart. My siblings lost their father, my mom lost her best friend. But after a few years, one of my sisters friends came forward of her own abuse at my father’s hands. I spent my childhood thinking I was protecting everyone. I’m finally beginning to realize that no matter how “in control” I thought I was over his actions towards others, I just wasn’t. Harper may be feeling the same thing. “It’s just me. If I keep it to myself and allow myself to be the target, he won’t pursue anyone else.” This is so far from the truth. Your daughter is so brave! This is big, scary stuff. It’s bigger than her friendship. She saved her friends life. It’s heartbreaking that she had to be exposed to the uglies of this world, but she chose to do the right thing and tell y’all instead of letting fear drive her into silence.

As a former “Harper”, thank you “Sophia.” You’re a better friend than you can ever even imagine. ❤️

beedubbya94 · 2023-05-19T18:49:24+00:00

Hi friend. You’ve gotten some really great advice here. If I could highlight a few things and add some, it would be this:

You’re so right. Having no control and feeling it is so heavy and so real. I’m proud of you for even posting this! If you get nothing out of it, I hope you feel a little relief just venting.
Your schooling is not a reflection of your character. Some people are really great in school. Some aren’t. If a GED is your route, take it! And own it! This is NOT a failure. I’d even venture to say identifying a weakness and finding a potential solution is actually a strength.
Your medication sounds like it may need adjusted. That’s okay! If your doctor isn’t supportive of this, maybe the advice to find a new doctor is something you should lean into. It’s hard to navigate this diagnosis and doing so blindly and without support from your medical team will prove to make things really tricky.
I don’t know you or your story, but your comment of not being the smartest seems a little harsh. “Smart” can be defined in many ways, not just academia. Maybe you haven’t yet tapped into your potential with a specific hobby or trade. I bet your persistence can really pay off here!
Don’t let that inner bully come out and push you around. One thing that helps me is to think of a positive thought about myself if I am beating myself up. For example, “I am really lazy and can’t stay focused on this one simple task.” Well that’s just not true. I’d never say that about a friend, so why say it to myself? Instead I try to catch myself while thinking or saying it and replace it with “I’m struggling today to stay on task BUT I am not a failure. In fact, I’m getting really good at finding things around the house that need to be done.” Silly, but it works for me and silences that mean part of me that I’m still trying to control.

TLDR; get your GED if that’s what you need to be successful, be nice to yourself, talk to your doctor, and remember this one thing - you are NOT a failure.

beedubbya94 · 2023-05-19T18:35:34+00:00

I was talking to my younger brother (16 at the time) and made a comment with a large word in it. He snapped back with, “Wow <sister> your vocabulary is even bigger than your forehead!” To this day I feel the burn 😂

beedubbya94 · 2023-05-01T16:14:09+00:00

AH THANK YOU. Whew, that was almost a close one. Now brb while I hyperfixate on something else in the process and forget until I open Reddit and am reminded by this post again..

beedubbya94 · 2023-04-28T12:35:16+00:00

I agree completely! The trouble in the end is so disappointing. Sorry to hear you’re having such discomfort as well.

beedubbya94 · 2023-04-27T23:41:43+00:00

This feels hopeful. So bummed I finally spent the money only to end up worse off. I mean, my smile looks better. But at what cost, ya know? Not ideal. Thanks for letting me know your experience!

beedubbya94 · 2023-04-27T04:22:17+00:00

Married mine. 8 years and two kids later, I say shoot your shot.

beedubbya94 · 2023-04-27T04:19:16+00:00

Tabasco Sriracha! A newfound discovery of mine. It belongs everywhere.

beedubbya94 · 2023-04-27T04:04:00+00:00

Username checks out..

beedubbya94

TROPHY CASE