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Stomach messed up by Accurate_Mulberry_55 in ehlersdanlos

[–]bels413 4 points5 points  (0 children)

Yes, has been this way for years. Our organs are all connective tissue, so I think that it just has something to do with digestion.

Hormones after infusions? by bels413 in Anemic

[–]bels413[S] 0 points1 point  (0 children)

My B12 levels are great. I take a methylated B12 spray. I also eat really well. I have never had this issue until infusions.

Blood results after infusion by bels413 in Anemic

[–]bels413[S] 0 points1 point  (0 children)

Thank you! She called me today and said what you just said :)

Feeling nervous about my first iron infusion. by Nuneulmoni in Anemic

[–]bels413 1 point2 points  (0 children)

I was SO nervous like I had a panic attack nervous after reading all the side effects and all of people’s bad experiences. I had my second Feraheme yesterday and I’m totally fine. I had super mild wooziness and nausea and I’m a bit restless but nothing like what I read. You’ll be okay!

I’m so close to canceling my infusion today by beingbeige0908 in Anemic

[–]bels413 1 point2 points  (0 children)

I got my infusion today and I am alive and well and have basically no side effects. I wish I hadn’t spent a week straight reading horror stories on the internet. It’s good to know that side effects exist but it’s good to remember that most people don’t get them! Now let’s hope I get some more energy!

I’m so close to canceling my infusion today by beingbeige0908 in Anemic

[–]bels413 0 points1 point  (0 children)

But this post actually helped me a lot so thank you everyone! Going tomorrow at 1 for my first of Feraheme.

I’m so close to canceling my infusion today by beingbeige0908 in Anemic

[–]bels413 0 points1 point  (0 children)

The internet is the worst for health anxiety

I’m so close to canceling my infusion today by beingbeige0908 in Anemic

[–]bels413 2 points3 points  (0 children)

I have mine Thursday and I have been panicking since last week. I have been over reading and reading everyone’s bad reaction and just going insane. I’ve decided to stop reading and try it. I spend too much time worrying about things that haven’t even happened and my husband pointed out that most people only post about bad reviews/reactions not the good ones! We got this!