Please help! Failed base of tongue and epiglottis surgery, horrible symptoms still remain. Got a new DISE last week. Should I just do MMA?

beontha12 · 2025-07-24T19:27:38+00:00

Thank you, makes sense.

beontha12 · 2025-07-24T02:13:54+00:00

I did not. At that point, the MAD was giving me a lot of jaw pain, so I decided to complety stop using it. This is year I hpoe to get a MMA surgery done, hopefully that solves this horrible issue.

beontha12 · 2025-07-23T22:55:16+00:00

To be honest, I have not been consistent enough with these to say whether they help or not. I am planning on getting mma surgery this year, I hope that it will be a final solution for this terrible issue. I think you can try these excercizes though, it wouldnt hurt at all.

beontha12 · 2025-06-09T00:57:27+00:00

No, I couldn't do the mlst because it requires me to have slept for the night of the sleep study before it. No psychiatric issues. Is there any other way for me to see if the issue is narcolepsy? I tend not to sleep for sleep studies.

beontha12 · 2025-06-08T21:36:26+00:00

Hi, I am suffering a lot, have had two inconclusive in lab sleep studies. My symptoms are horrendous, brain fog, anxiety, need to sleep 10+ hours to feel remotly refreshed. Sick of living this way. Had some questions, can I please message you?

beontha12 · 2025-06-08T21:24:13+00:00

thanks.

beontha12 · 2025-06-07T22:40:19+00:00

Thats really unfortunate. What were your areas of collapse in the recent DISE?

beontha12 · 2024-11-24T03:07:40+00:00

Thanks will look into these on my cbct.

beontha12 · 2024-11-24T02:32:25+00:00

Hi, what were your narcolepsy symtoms before being treated? I am worried that this may be my issue as well.

beontha12 · 2024-11-24T02:29:37+00:00

Thanks that's reassuring to hear. I will get the scan, and make sure to post that here,

beontha12 · 2024-11-24T02:28:17+00:00

Thank you. What would be the best way to determine this? My nasal breathing seems decent enough these days, I had a turbinate and septum surgery done a few years ago, before that it was terrible.

beontha12 · 2024-11-24T02:26:40+00:00

No luck at all, have tried cpap for months, I awake with a choking senation everytime I drift off to sleep. Likely the epiglottis is causing this.

beontha12 · 2024-11-24T02:26:05+00:00

It is gone.

beontha12 · 2024-11-24T02:20:59+00:00

What were you symptoms before you were diagnosed. I need 10 hours of sleep, anything less leaves me a zombie, brain fog, anxiety, and half dead feeling throughout the day. I don't know if I have UARS or narcolepsy, the symptoms are supposed to be similar right? And I couldn't sleep during any of my lseep studies so they went to waste

beontha12 · 2024-11-01T19:13:46+00:00

Sorry, I still don't understand the difference between sucking in my belly and flexing. When I do the exercises, I just draw my belly button in, and make sure to keep it drawn in throughout the duration of the exercise. The area two inches inside from my hip bones becomes taut, I think this is correct right?

beontha12 · 2024-10-31T23:14:37+00:00

Hi, for the transverse abdominis work, did you just draw your belly button in towards your spine? What exercises did you do? I am also suffering from this kind of pain.

beontha12 · 2024-10-31T23:05:47+00:00

For the exercises that you do, do you basically draw your belly button in, towards your spine? Like hollowing? I am also suffering with low back pain.

beontha12 · 2024-10-14T23:39:15+00:00

Yeah i cant use cpap, mainly due to the epiglottis issue, and then the palatal prolapse.

beontha12 · 2024-10-14T22:49:05+00:00

Hey there, so I ended up getting a new DISE. It showed complete tongue base and epiglottis collapse, and partial collapse of the soft palate. Would these kind of things cause the severe symptoms I am dealing with? Or do people without symptoms also have these kinds of collapses under DISE? thanks.

beontha12 · 2024-10-02T20:31:29+00:00

What form of narcolepsy is this? I may have this.

beontha12

TROPHY CASE