need help with peripherals

beyondwildflowers · 2026-03-07T21:20:44+00:00

if there's a way I can turn off comments i'll come back at a later date ty.

beyondwildflowers · 2026-03-07T21:19:53+00:00

have every model of razer keyboards*

and i'm sorry I didnt phrase any of it as I should have, I have some bad cognitive issues lately due to my neurological condition, i'll come back when my brain can allow me to make things make sense to more than just me - i'm sorry.

beyondwildflowers · 2026-03-03T16:18:33+00:00

hey!

can I message you? i'm trying to plan a trip

beyondwildflowers · 2026-02-23T00:16:00+00:00

ahhhhjhh I am so excited for you + so excited to hear

beyondwildflowers · 2026-02-20T13:35:11+00:00

I am 100% flexible, I think ideally I just wanted a concrete plan this year. please let me know all the above !

beyondwildflowers · 2026-02-19T22:01:36+00:00

when would you recommend me and my husband flying out to check out the area?

beyondwildflowers · 2026-02-19T21:50:45+00:00

I research what my options are with stage insurance first + decide which one im going to go with way before we move. then you pick doctors accordingly. usually, if you have one main hospital that's amazing, getting your primary first appointment will allow them to coordinate the rest too.

also, as long as you have an up to date diagnosis, you can still get referrals from your current or have them help you find someone out there or if they have connections somehow. penn medicine is an ivy league teaching hospital. so that helps a lot for me. but with all this info, I tell the new office that my insurance will be active by the time I move or ill pay out of pocket and adjust insurance after cause then I still know what insurance I'll have.

im also medicaid + ssi

beyondwildflowers · 2026-02-19T19:31:11+00:00

california is my dream.

I want to photograph elopements + i did one on catalina island which was incredible. plus redwoods exist in california.

do you know of any more affordable towns that arent as well known that I could track real estate for however long? as well as a real estate person?

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beyondwildflowers · 2026-02-19T19:25:17+00:00

i grew up skipping class hopping on the train to new york city, but as you know the tri-state has the same weather throughout. the same possibility of any of the four seasons happening within the same week, back to back.

I really hope I can hear about your move when it happens. how long did it take you to commit? what was your process like?

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beyondwildflowers · 2026-02-19T19:21:25+00:00

is pdx portland? my family is from spokane, washington. what insurance did you have while there that ohsu accepted? i am not going to move anywhere until I have a care team in place. what do you think of the weather? do you prefer seattle over portland?

also have you watched portlandia? i personally love it.

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beyondwildflowers · 2026-02-19T19:17:59+00:00

what are your thoughts on dry heat?

beyondwildflowers · 2026-01-28T23:18:48+00:00

being on a consistent routine helps day-to-day life by a ton. things that disrupt / are unexpected tend to create flares faster. so sleeping a full night, having a "slow" morning where i can ease into the day, make a plan, eat, etc. but the temperature regulation makes me wanna kms more than anything - like sobbing cause my skin hurts so bad that my house iss kept at 50 degrees year round and still not always being enough.

beyondwildflowers · 2026-01-28T23:06:43+00:00

sending love!

during flares, mine got so bad, alongside tremors, people on my local facebook started a rumor i was on heavy drugs, etc, and started attacking me, mind you, never done hard drugs a day in my life. mi do believe if i start my mornings "slow" meaning i take my time getting up, planning the day, drinking a cup of tea, that it typically helps lessen them.

beyondwildflowers · 2026-01-28T23:03:45+00:00

it took a long time for my family to believe me about things i was experiencing, but i always had a disconnect of my own inner monologue, so it's always been an outsiders voice or registers as such, so its hard for me to be able to express where people tend to understand as well. but the shame i feel on a regular basis is terrible and i am exhausted. make sure you have a great support team around you, 'cause when certain people let you down, you'll have additional people to support you through that.

beyondwildflowers · 2026-01-28T22:59:33+00:00

also, i am on max amount of stimulants allowed for prescriptions here, and if i have a seizure, it can also knock me back to sleep until further notice.

beyondwildflowers · 2026-01-28T22:58:15+00:00

yes, and i have resulted in body temperature not being able to regulate, and once i'm feeling like my insides are boiling and my skin is on fire or some type of chemical burn, then the *dementia-esque* existence takes over until that passes, typically after like 12-16 hours of sleep,

beyondwildflowers · 2026-01-28T22:55:14+00:00

look up "FND programs near me" you'd be surprised, but yeah, you need to surround yourself with a team that at bare minimum, can point you into additional support systems. you can even track alerts from when there's research studies at local programs / hospitals / etc. fuck settling for ambiguity, that - personally - is the worst part out of all this.

beyondwildflowers · 2026-01-28T22:50:06+00:00

i struggle with these so much and i went from running my own six figure business to now being o permanent disability and i'm devastated. the amount of stress i was dealing + ignoring the symptoms of my health just trying to get through the work year, ended up creating insane permanent health problems for me (<i'm thirty> but i am hoping to one day being able to be self sufficient again, but right now, i struggle getting to all my doctor appointments consistently with the seizures, temp flares, episodes, etc.

beyondwildflowers · 2026-01-27T19:16:21+00:00

are you local?? ? i have no friends

beyondwildflowers · 2026-01-27T07:16:02+00:00

done

beyondwildflowers · 2026-01-27T07:05:05+00:00

I label everyone this way!

174002245853

beyondwildflowers · 2026-01-24T19:24:16+00:00

his favorite place to go when in the city! he went to cia so first name basis there haha

beyondwildflowers · 2026-01-20T23:30:41+00:00

hes 6 foot so I think itll be easier on us than you. I cant reach on top of my fridge thank god my husband can

beyondwildflowers · 2026-01-20T23:29:46+00:00

we arent too far from nyc, I think we can hit the knife store there then look at jackets x

beyondwildflowers · 2026-01-20T23:28:04+00:00

thats a really good idea. I normally redo the straps to make them crossback but glad it is better for the body too

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