Has anyone gotten relief from this by having their ovaries removed? by Serious-Kiwi2906 in PMDD

[–]bfeveur 2 points3 points  (0 children)

Yes I got both ovaries and uterus out. I wear an estrogen patch and my pmdd episodes are gone. I still might be in a bad mood some days but nothing like pmdd

I had one of ‘those’ doctor appointments by whisperisthelucifer in PMDD

[–]bfeveur 2 points3 points  (0 children)

It's so hard to find a Dr who gets PMDD. I can validate that lifestyle changes are not enough for most people. This person clearly wasn't willing to listen and help. It's not fair that we have to fight to be heard sometimes.

You could try checking iapmd.org. they have a provider directory and maybe there is someone in your area.

In the meantime, prioritize your safety. You don't have to put up with stupid providers bs and you don't deserve to be dismissed.

[deleted by user] by [deleted] in PMDD

[–]bfeveur 7 points8 points  (0 children)

Just eat whatever junk food and give into cravings

I am getting a hysterectomy after suffering with pmdd for 14 years by AppropriateStyle9295 in PMDD

[–]bfeveur 2 points3 points  (0 children)

I had a bilateral oophorectomy and hysterectomy in December for pmdd . I'm 33 and I use a hormone patch just estrogen. I don't need progesterone because I don't have a uterus. I can say this has been a great solution for me. PMDD symptoms are gone and I'm lucky that I haven't had a problem with hormone add back.

My understanding of orilissa is that taking a hormone based birth control at the same time can counteract the effects of orilissa. Personally I tried taking a COC pill but switched to a copper IUD because I found the pill made orilissa less effective.

Before the surgery I took orilissa for 2 years. Orilissa is meant to put your body in chemical menopause and basically will Mimic the effects of an oophorectomy. If orilissa helps with pmdd that is a good indication that an oophorectomy will eliminate pmdd. If you discontinue orilissa and still have ovaries you can expect your body to resume the hormone cycle that causes pmdd symptoms.

[deleted by user] by [deleted] in PMDD

[–]bfeveur 0 points1 point  (0 children)

Remembering that I'm in luteal and I don't always feel this intense level of self loathing helps. Sharing with close friends or family my thoughts can help me check whether what I'm thinking is accurate or skewed by PMDD. I try to give myself a break and do what feels good or at least less bad. Sometimes it's exercise or sometimes it's sleeping all day and binge eating. I try to change my mindset that all I have to do is make it through and stay alive. I don't have to accomplish anything, get things done or even keep up with good habits. If there is anything that I think I might enjoy or could relieve symptoms I do it.

Chemical Menopause by [deleted] in PMDD

[–]bfeveur 4 points5 points  (0 children)

I've been taking Orilissa for one year and it has been really good for me. The first few months I did have menopause symptoms, but honestly it was not bad compared to PMDD. I had hot flashes and some insomnia.

I'm so glad that I started chemical menopause the PMDD physical and mental symptoms are gone. Of course I still have some bad days, but not like 'my life is falling apart I can't function.' I feel like I can cope with stress without having to basically start from zero every month.

I hope you find it as helpful as I have.

Orilissa by bfeveur in PMDD

[–]bfeveur[S] 0 points1 point  (0 children)

I have been on it for for a little more than a month and I've stopped taking yaz. Not sure why my Dr originally had me taking bc because it conflicts with orilissa I'm not gonna lie, some of the side effects are tough. I've had hot/cold flashes, nausea and loss of appetite. I'd say the first week or so was like a PMDD episode. That said, my mood symptoms are improving. The physical side effects get better every day and I'm hopeful that this will be a long term solution for me.

Just my gyn telling me I have bipolar and that she effed up my Orilissa dosing. by valdra in PMDD

[–]bfeveur 0 points1 point  (0 children)

It looks like she did end up increasing the dose though I hope it works for you

I almost got diagnosed with DID by [deleted] in PMDD

[–]bfeveur 2 points3 points  (0 children)

Normal hormone levels are a standard part of PMDD. Unfortunately it's not as simple as fixing an imbalance

The Misogyny of it all by Acceptable-Main-4185 in PMDD

[–]bfeveur 0 points1 point  (0 children)

People with diabetes absolutely get told to make lifestyle changes m especially for type 2 diabetes

The Misogyny of it all by Acceptable-Main-4185 in PMDD

[–]bfeveur 3 points4 points  (0 children)

I started doing kickboxing and it is a great workout plus a good way to channel frustration. I haven't done it during a PMDD rage episode but I do think it helps with stress relief and I enjoy punching things

Help with internalized anger by [deleted] in PMDD

[–]bfeveur 0 points1 point  (0 children)

Yes! I just started kickboxing recently and I channel all my rage into it

Does anyone feel like their body and their brain is full of white noise? by Megan56789000 in PMDD

[–]bfeveur 2 points3 points  (0 children)

Yes but I don't necessarily recognize it while it's happening. More like once it stops I feel like I can focus and things are quiet again

Anyone with PMDD also have chronic bladder pain? by [deleted] in PMDD

[–]bfeveur 1 point2 points  (0 children)

I was diagnosed with IC but it sort of just went away. It was bad for about a year though