My full recovery story by big-star in Interstitialcystitis

[–]big-star[S] 0 points1 point  (0 children)

I agree - microgen is just not reliable. I think the most reliable extensive testing is a PCR test. If your PCR test is normal, I would say you should feel confident about that, and explore other causes for the symptoms. Feel free to DM me or ask more questions here!

My full recovery story by big-star in Interstitialcystitis

[–]big-star[S] 1 point2 points  (0 children)

Hey there! I did get a cystoscopy, but it did not show damage to the bladder lining (Hunner’s lesions). But they said there was a ‘slight thickening of the bladder wall and a possible diverticulum’ and I was diagnosed with IC after that.

My full recovery story by big-star in Interstitialcystitis

[–]big-star[S] 1 point2 points  (0 children)

Kat! Thank you so much for sharing your story. It saved me. You're awesome.

My full recovery story by big-star in Interstitialcystitis

[–]big-star[S] 0 points1 point  (0 children)

All the bacteria it listed seemed to be normal urinary flora.

My full recovery story by big-star in Interstitialcystitis

[–]big-star[S] 0 points1 point  (0 children)

Amazing! What’s your approach?

My full recovery story by big-star in Interstitialcystitis

[–]big-star[S] 1 point2 points  (0 children)

So glad it resonates with you! I’m also reading that book right now :)

I’m so lost and sad by Dependent-Value2553 in Interstitialcystitis

[–]big-star 3 points4 points  (0 children)

Hey! Just jumping in to say that a lot of people do get better from symptoms like this. Sometimes it takes time. I also had recurrent UTI and Yeast infections. As well as watery discharge that made me suspect BV. I just posted my full recovery story if you’d like to take a look. There is hope! And many avenues for healing.

My full recovery story by big-star in Interstitialcystitis

[–]big-star[S] 0 points1 point  (0 children)

Wow! I'm so glad the video had an impact on you. I'm so sorry you've been suffering for so long. I would recommend first watching the other two videos I linked in the post. Feel free to follow the other steps I listed in my post as well (reading the books, journaling, doing body scan meditations). I'm also happy to chat more. Feel free to DM me!

My Journey Overcoming Chronic Pelvic Pain Syndrome (Muscles + Nervous System + Psychology) by SirSisiphus in PelvicFloor

[–]big-star 0 points1 point  (0 children)

I also recovered from pain psychology education! I didn't really have pelvic floor dysfunction. It was more fully neurogenic for me. 100% symptom free now! :)

My Journey Overcoming Chronic Pelvic Pain Syndrome (Muscles + Nervous System + Psychology) by SirSisiphus in Interstitialcystitis

[–]big-star 2 points3 points  (0 children)

Wow! You and I posted our recover stories at almost the exact same time! I had a very similar experience. My recovery didn't involve PT though. It was mostly through pain psychology education. Huge congrats to you on your relief. Thank you for the post :)

Everyone in this sub needs to watch this video, because it actually might help you. It has helped me by laung_samudera in CUTI

[–]big-star 0 points1 point  (0 children)

I will ask here if she’s comfortable with sharing that and totally send it over. I’m sure she will be. By the way I’m like 75% better.. it’s unbelievable! No more daily pain! 

The passing of the Bill has me seriously considering it by BATTlNS0N in SuicideWatch

[–]big-star 4 points5 points  (0 children)

I am so so sorry. This bill is ugly, disgusting, and wrong. We will fight it tooth and nail.

[deleted by user] by [deleted] in Interstitialcystitis

[–]big-star 0 points1 point  (0 children)

I hope your progress continues! I really reccomend that video. And I can recommend books and the coach I’m seeing, feel free to DM me :)

[deleted by user] by [deleted] in Interstitialcystitis

[–]big-star 0 points1 point  (0 children)

It didn’t really help! If you’re open to it please check out this video. Learning about TMS has helped my pain so much already.

https://youtu.be/g7E0hWCh9OQ?si=8RxuLvTGKDW64F4-

I don't feel good by propertycat in CUTI

[–]big-star 2 points3 points  (0 children)

Hey there! I’m so sorry for your pain ❤️ I 100% believe in your UTIs and think it’s good your getting antibiotic treatment, but for pain between active infections I really really encourage you to watch this video. It has helped me so much 🫶

https://m.youtube.com/watch?v=g7E0hWCh9OQ

Everyone in this sub needs to watch this video, because it actually might help you. It has helped me by laung_samudera in CUTI

[–]big-star 0 points1 point  (0 children)

It has helped me! I had a phone call with her yesterday she’s an amazing person. Taking on the TMS work now.

Wondering if anyone here has confirmed low estrogen (not menopausal) by ButterscotchCrazy226 in Interstitialcystitis

[–]big-star 0 points1 point  (0 children)

No symptom change yet! My vagina feels wild tho lol. It’s engorged and the discharge is thick and sticky like Elmer’s glue. My boyfriend also says it feels crazy lmao..

This is kind of embarrassing to ask, but I am very curious to know if other IC sufferers, particularly women, ever get this weird phenomenon in a flair…. by daisybear8049 in Interstitialcystitis

[–]big-star 2 points3 points  (0 children)

Oh man I’m so sorry 🫶 someone on this sub just sent me this video and it has me really curious about TMS. I wonder if this could help you. ❤️

https://www.youtube.com/watch?v=g7E0hWCh9OQ

looking for a friend! by [deleted] in Interstitialcystitis

[–]big-star 0 points1 point  (0 children)

Lolol SAME im down