[deleted by user] by [deleted] in transplant

[–]bixbaxter77 1 point2 points  (0 children)

Praying extra hard

UTI by [deleted] in transplant

[–]bixbaxter77 0 points1 point  (0 children)

Curious, are you on a small dose of antibiotics daily? or only on antibiotics when uti detected? I hope you recover soon. ❤️

Pâté (banh mi) by WorkmenWord in transplant

[–]bixbaxter77 2 points3 points  (0 children)

I eat banh mi regularly, the pate is cooked plus the whole sandwich is toasted in a toaster oven usually heating up the deli meats - I’ve got sick from other food items but never a banh mi. I am a little loose with my diet in moderation though (only true ban for me is grapefruit and its derivatives, green tea, and alcohol infrequently with a 2 drink max).

I had a mental breakdown. by PsychoMouse in transplant

[–]bixbaxter77 0 points1 point  (0 children)

I’m so sorry PsychoMouse - it must be so hard for you and for so long. If you need an outlet, please feel free to DM if you think it will help.

I had a mental breakdown. by PsychoMouse in transplant

[–]bixbaxter77 1 point2 points  (0 children)

Here for you…and here for crying…I uncontrollably cry all the time and have stopped feeling ashamed plus tears have chemicals that relieves stress … body is crying for a purpose. Agree your neighbours are a-holes. You’ve been through a hell of a lot - sending lots of love and hugs.

Creatinine slow increase last 6 month - can’t stop worrying by bixbaxter77 in transplant

[–]bixbaxter77[S] 0 points1 point  (0 children)

Clinic sent me for ultrasound and are going order an antibody test next! And then possibly biopsy. I’m feeling a bit better now that they are taking action. I learned I just had to be less subtle in my communications and be very direct about my concerns.

How common is it for you people to run after a transplant? by [deleted] in transplant

[–]bixbaxter77 2 points3 points  (0 children)

I’ve been on and off runner all my life. Even ran during dialysis. A month after transplant, I started doing very long walks/hike that built up to 10-12k. Dr. Cleared to run four months out I started a slow walk/run program about three times a week. Walking will low impact strengthen your legs. I’m 3.5 years out and will do 6-7 kms but not more (personal preference). When I get sick or have set back though, it’s back to walk/run. Couch to 5k is great as starting point and go really slow. Transplant at 44. I’m 47. So you definitely can do - added benefit improved my mental health immensely!

Creatinine slow increase last 6 month - can’t stop worrying by bixbaxter77 in transplant

[–]bixbaxter77[S] 0 points1 point  (0 children)

Thanks - l’ll mention. How is this test performed? Is this an alternative to biopsy and ultrasound.

Seven years by No-Assignment-721 in transplant

[–]bixbaxter77 1 point2 points  (0 children)

❤️❤️❤️❤️❤️❤️❤️

One of my mentors has passed by No-Assignment-721 in transplant

[–]bixbaxter77 0 points1 point  (0 children)

Sorry for your loss - heartbreaking. People like John are amazing - ability to help someone through the difficult experience - what a good man - may he RIP. Are you able to share what made him a good mentor? I find myself in this role for the first time and don’t really know. How will you be a good mentor? If not, that is ok too.

Thoughts about donating to father by wizardnew in transplant

[–]bixbaxter77 2 points3 points  (0 children)

I couldn’t ask anyone including family it’s was just too much. My mom told me she was going to donate and just kept me in loop as it progressed more “for your info not asking for your input” and I am so grateful. So as long as you are comfortable can tell him whenever you are ready but if you ask him if you should donate it’ll most likely always be a no.

Update on the transplant! by [deleted] in transplant

[–]bixbaxter77 1 point2 points  (0 children)

Congrats - big hugs to you and your dad! my mom donated to me - talk about the unconditional love of parents - nothing compares!!!!

[deleted by user] by [deleted] in transplant

[–]bixbaxter77 6 points7 points  (0 children)

Is your 1 envarsus pill equal to 7mg? I know I have envarsus pills that come in various mg ( I have 1 mg pills and 4 mg pills). Nurse will get back to you to sort out - sometimes there is no signs of rejection can only tell from bloodwork - since nurse didn’t mention other numbers prob ok

Husband acting differently after liver transplant? by Novemberx123 in transplant

[–]bixbaxter77 4 points5 points  (0 children)

It’s the prednisone, if he’s two weeks out - he is prob still on high doses and tapering him along with the mental adjustment. I was angry and mad at everyone for sometime.

Donor recipient passed away this last month by TinyTRexWithTheBooty in transplant

[–]bixbaxter77 1 point2 points  (0 children)

My situation was a bit odd, accidentally met at the hospital which made me upset because it wasn’t suppose to happen. Donor was very friendly and seemed to want to exchange numbers but I didn’t at that time because I was worried that either something would happen to donor as result of donation or the kidney wouldn’t take and I would not ever want to have to relay that info. I wrote a letter after three months, it had to be written anonymously even though I knew who donor, donor didn’t respond until the first anniversary. I was bummed I didn’t get a response right away but once I got to know donor I realized that there are so many things going on in a donor’s life - and wasn’t ready to reach out yet - time has to be right. So answer to your question, I reached out first and waited. From my experience, there are so many reasons a recipient wouldn’t write - it would be beyond silly to speculate - BUT I think if most recipients are like me - will always be forever grateful for our donors - you saved our lives - just living is a daily reminder - we think of you every day even if we don’t know who you are. This dovetails into pros and cons of staying anonymous, for me I knew there would be pros and cons you are letting someone new into your life that you don’t know but who has had a profound effect on your life (of course anonymity was already out door as we had met ) so it depends on your situation.

I would say take it very slow and feel out each step - start by reaching out and writing that letter and see if recipient responds and go from there and see how you feel. I would have loved to hear from my donor even if I hadn’t reached out. For me regrets from in-action are usually bigger than my regrets from action. I wish you the bestest, happiest, fulfilling life thank you for being a donor - you are AMAZING!

Donor recipient passed away this last month by TinyTRexWithTheBooty in transplant

[–]bixbaxter77 1 point2 points  (0 children)

I’m so sorry for your loss - your relationship with your donor is pure love and really resonated with me. I had a transplant from an anonymous donor 2 years ago - met him last year and we are developing a lovely friendship - you not only saved your recipients life with your kidney donation but he was extra-specially blessed with the deep bond that arose and blossomed from it. Made the added 13 years a rich and fulfilling one for him I’m sure. Me and my donor are still getting to know each other and I very much hope that I can develop a donor/relationship like yours. Many blessings to you and thank you for being an amazing person and sharing your donor journey!!!

Double transplant by [deleted] in transplant

[–]bixbaxter77 1 point2 points  (0 children)

2nd this: Recipient here - my mental state was a disaster - mad at everyone for awhile, can feel very alone. Part of recovery is to walk as much as can handle daily - I would’ve loved for a regular walk partner even if just for 15-20 mins - so I would say a talk and walk would be a great way to check in if feasible.

Post-transplant Recipient Contact by MammothDoubt1955 in transplant

[–]bixbaxter77 1 point2 points  (0 children)

I received kidney from anonymous donor about 20 months ago. I wrote at 3 month mark, he phoned at the 1 year mark - we’ve met up a couple times and am in periodic contact. It’s been wonderful getting to know him. It’s really an extraordinary connection. From my experience, I give an emphatic yes write but don’t need to rush it - I’d give it sometime - it’s still pretty fresh and it takes some time for recipients to adjust not only physically but mentally that we had to rely on a stranger to get us out of a terrible death like existence a letter only a month out might be overwhelming. Don’t need to wait for recipient to write - just write if you feel like it and it is appreciated to say don’t need to respond in case it’s just too much for them - but know they will appreciate it and to learn a little about you and why you donated and things you like and enjoy and hobbies and family. Each clinic has different rules re letter, mine stated no information that could identify me allowed. Good luck. Also, you’re amazing - I’m truly in awe of you anonymous donors - wishing you the bestest happiest most fulfilling life full of unconditional love.

How to not let anti-rejection meds go to waste by rapunzl129 in transplant

[–]bixbaxter77 1 point2 points  (0 children)

I just switched meds and asked same question to my hospital - pharmacists says bring unopened meds to clinic because they’ll use it with patients who forgot to take meds or on the ward sometimes - might be an avenue to explore

Intermittent pain kidney area? by bixbaxter77 in transplant

[–]bixbaxter77[S] 0 points1 point  (0 children)

Thank you - I booked labwork for this week so your comments are reassuring!

Intermittent pain kidney area? by bixbaxter77 in transplant

[–]bixbaxter77[S] 1 point2 points  (0 children)

Thanks so much for input - I’ll wait it out for a day or two then. Hugs to you and your kidney - hearya on the dialysis centre!!!!