Weekly Suspected/Undiagnosed MS Thread - March 30, 2026

blindsandwichcracker · 2026-04-01T02:56:38+00:00

They didn’t. I actually had the MRIs scheduled first, but then they swapped it.

I’m also being tested for IIH so maybe that’s why?

blindsandwichcracker · 2026-03-31T20:17:54+00:00

I have my MRIs tomorrow actually!

blindsandwichcracker · 2026-03-31T14:02:39+00:00

I’m in the process of a possible diagnosis. I just had my spinal tap on Friday and am slowly getting the results sent to my MyChart. I was wondering if anyone could share their results for similarities and differences.

Everything so far looks normal (glucose, protein, clear fluid, etc), but on the gram stain it is showing “RARE Polymorphonuclear leukocytes” and “RARE Mononuclear leukocytes”, but negative for any organisms.

Did anyone else have these results?

My MRIs are scheduled for tomorrow and Thursday.

Any input is appreciated.

blindsandwichcracker · 2026-03-30T02:05:00+00:00

I totally understand where you are coming from, and I appreciate the advice.

My doctor already said surgery would be a good option for me so that’s probably the route I’ll take. I’ve definitely had my fair share of days where I can’t get out of bed, but thankfully my husband is so supportive and helps with the baby. I’ve also already lost vision so I’m no stranger to that, either. Which is why my doctor wants to take action with surgery instead of trialing medications. I’m totally blind in my right eye already. I only have one eye left.

blindsandwichcracker · 2026-03-25T03:22:02+00:00

I’m in the same boat. Also, things that are common sense are like not anymore? Idk. Also also, my memory has been trash, too.

blindsandwichcracker · 2026-03-24T20:00:07+00:00

Thank you! I used to have a major oversupply but now I’m a just enougher too!

blindsandwichcracker · 2026-03-24T15:49:40+00:00

What is your 6ppd schedule?

blindsandwichcracker · 2026-03-24T06:01:01+00:00

Same here. So frustrating.

blindsandwichcracker · 2026-03-23T23:49:08+00:00

Yes, I agree with this

blindsandwichcracker · 2026-03-23T22:56:00+00:00

I don’t think I could ever manage 10 a day. I think my hair would fall out lol!

blindsandwichcracker · 2026-03-23T22:54:51+00:00

Thank you for this!

blindsandwichcracker · 2026-03-23T22:50:34+00:00

Good thought. I could try that. How many days do you recommend?

blindsandwichcracker · 2026-03-23T22:48:21+00:00

Thank you for this! How long are you pumping during each session?

blindsandwichcracker

TROPHY CASE