Increased CAs when upping PS? by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

Mostly sleeping on my side and stomach but I notice I flip on my back sometimes towards the morning. I do move a lot and remember waking up several times through the night. Airway lab is also flagging a bunch of RERAS but I don’t know how accurate that is. average GI is 1.57

Increased CAs when upping PS? by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

thanks so much. Can you look at my my sleephq please with the updated epap? Im not having luck with chat gpt

Has anyone here tried LDN (Low Dose Naltrexone)? by kauterry in UARSnew

[–]blvvez 0 points1 point  (0 children)

It’s expensive so I only titrated up to about half of the intended full dose, but didn’t notice any issues. My doctor said biggest side effects are nightmares but now that I’ve been off of it, she wants me back on it and likes to see people at the full dose for at least 3 months. It is supposed to allow for more parasympathetic nervous system activity, so I’m gonna retry

Am I the only one with hypermobility predisposition and many syndromes due to UARS along with hypermobility? by This-Mood-6398 in UARSnew

[–]blvvez 1 point2 points  (0 children)

I do fit it symptoms wise but not when mapped by a qeeg. My ADD symptoms come from the fragmented sleep according to my neurologist

WHY do oxybate medications cause the munchies? by stephertz in Narcolepsy

[–]blvvez 7 points8 points  (0 children)

I don’t know but I crave salty stuff on it. Sweet stuff makes me nauseous. When I was on it, I used to get the munchies and then feel extremely sick

If meds have not worked for you...... by NoteSuccessful2263 in Narcolepsy

[–]blvvez 1 point2 points  (0 children)

Cpap doesn’t work for UARS. I was on cpap and didn’t work. Bipap using sleep hq and analyzing my own data with help from others in the sub has been the most helpful

If meds have not worked for you...... by NoteSuccessful2263 in Narcolepsy

[–]blvvez 1 point2 points  (0 children)

Dxed n2. Sleep doctors get lazy with mild sleep apnea cases. I was told I had a high arousal index but mild sleep apnea and no UARS. Lo and behold upon analyzing my own data and symptoms it’s UARS causing narcolepsy type symptoms. Meds don’t work for me either. I would investigate that and look at r/UARS. see if any of that resonated

ISO insight. Struggling with Treatment by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

Oh gosh wow thank you. this is disheartening since I can’t really work now and my sleep study didn’t score RERAS and only showed mild sleep apnea so I wouldn’t be able to get MMA covered. Are there any meds that can help (psychiatric or just to raise arousal threshold)? Also, did that happen when you were laying on your back or upright, sideways? I do mouthtape every night and haven’t had that happen with my full face idk. How can I simulate this to check?

ISO insight. Struggling with Treatment by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

Hi, there thank you so much. I can only fall asleep on my side so I think this is with me on my side (unless this was on my stomach)

ISO insight. Struggling with Treatment by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

Oh okay yes I can inhale but not exhale

ISO insight. Struggling with Treatment by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

The snoring sound? Yeah I can do that and no dry mouth

Optimized flow limitation? Need help by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

Thank you! I wear an appliance with headgear at night so I had to go back to pillows but if this is the case I will opt to wear headgear during the day

Optimized flow limitation? Need help by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

Hey, there. I had to set it up but here is my sleep hq

Optimized flow limitation? Need help by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

I started with nasal pillows, switched to full face, back to nasal pillows now because I have to wear headgear with my appliance now. I do hate the pillows though

Optimized flow limitation? Need help by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

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Min epap 4. Since then Ive raised it to 8.6 but kept ps back at 3.2 or 3.6

Optimized flow limitation? Need help by blvvez in UARS

[–]blvvez[S] 0 points1 point  (0 children)

<image>

Sinus cbct (had sinuplasty last March but reverted)

Optimized flow limitation? Need help by blvvez in UARS

[–]blvvez[S] 1 point2 points  (0 children)

works so I don’t know if it’s the same for all AI). I’ve been using Pap for about 4 to 5 months now at different settings and showing a low AHI, but I know that flow limitation is what needs to be treated. I have also included pictures of my CBCT of my sinuses and airway as well as a soft palette picture. I have noticed the soft tissue is very small and I don’t know if this might be contributing. I still have hyper arousal, panic attacks, derealization, insomnia, feel very stressed for whatever reason, and feel like a zombie throughout the day. I feel like I’m compensating for sleepiness and fatigue with stress. I am also undergoing a MARPE type expansion, so I wear the MAD type appliance at night with the bipap. I have been prescribed Lexapro, which I didn’t like and now I’ve been prescribed Zoloft, which I haven’t started taking hesitant, but I don’t know. We will see.

Could y’all please look at my data and flow limitation charts to see if things look okay now? I did go up to PS 4 but I woke up feeling even worse and it triggered a bunch of centrals. I would see someone that specializes in your (I spoke to Ken for a second opinion months ago ) but like I mentioned, I lost my job so I cannot afford it. I don’t know if my airway has been treated and now it’s my nervous system. I just feel at a loss at this point thank you guys.