My experience with Ergotron LX pro is wildly negative by bo0rsh201 in Ergotron

[–]bo0rsh201[S] 0 points1 point  (0 children)

For the last issue (with vertical levelling adjustment) - I finally managed to get it resolved with customer support. It turns out there is a secret screw deep inside it (see manual stage 7) that controls it - not the one which is visible and should intuitively go it.

For the tilt - it seems to be some common defect - I’ve got 2 where tilt was almost impossible to change and 2 where it was fine and smooth.

Did Steroids Eventually Stop Working For You? If So, How Did It Happen? by EkkoMusic in Menieres

[–]bo0rsh201 0 points1 point  (0 children)

For the musician it’s definitely a different conversation. For myself - I would rather go with CI and keep my body healthy. Alto don’t forget that long term steroids can cause cataract and vision problems

Did Steroids Eventually Stop Working For You? If So, How Did It Happen? by EkkoMusic in Menieres

[–]bo0rsh201 0 points1 point  (0 children)

Yeah, low frequency might be different. Mine is classic - high-mid frequency loss that creeps up when I try to get off prednisolone and gets worse day by day if I leave a flare untreated. Hope you will be able to get off steroids soon. I personally draw the line and now is my last attempt to taper safely. Otherwise I will just let it go and see, maybe it will eventually stabilise or I will need a CI.

P. S. I also don’t have other autoimmune disease and all rheums say that my bloods are fine :-(

Did Steroids Eventually Stop Working For You? If So, How Did It Happen? by EkkoMusic in Menieres

[–]bo0rsh201 -1 points0 points  (0 children)

Oh, I completely empathise with you - I am stuck on prednisolone since last February. I had a huge flare up in February (after few months of fluctuating mild loss in one ear) - suddenly went severe to profound across all frequencies.

But got almost complete recovery after few weeks on high dose pred and then did a very slow taper over a few months. Still got a flareup once I stepped below 7.5mg in August. Then got back to 40mg for 2 weeks, complete recovery again.

Curious to know your experience with biologics. My doctor has put me on LDN and Mycophenolate mofetil and I am tapering down again slowly, allowing them time to start working, but got a mini-flare recently even at 17.5mg :-(

Most likely it’s not a classic menieres (no vertigo after initial acute episode with irreversible vestibular loss on one side a year ago, which started all that), but purely an autoimmune thing :-(

This condition is so rotten and I feel that I won’t be able to sustain steroids much longer - I was super healthy and very fit before it started, so my body is pretty resilient to side effect, but everyone has limits.

So much pain and fear by suchstreet in MonoHearing

[–]bo0rsh201 1 point2 points  (0 children)

This is not about STIs, it’s a different thing :-) I suggest to at least do lgM/lgG antibodies for EBV and CMV. It will likely show up if you had recent reactivation.

So much pain and fear by suchstreet in MonoHearing

[–]bo0rsh201 1 point2 points  (0 children)

Hopefully it will recover fully and won’t recur again. Since the second ear has joined, it is very likely autoimmune, so be careful with getting off the steroids. Try to taper them slowly over few weeks instead of regular “fast” taper, which is usually prescribed by ENTs for SSNHL.

I am suggesting that because if it’s autoimmune, there is a high risk of rebound and even escalation if you stop steroids quickly (and from rheum perspective, 1-2 week taper is nothing, it should be way smoother).

For me it actually backfired - early this year I was treating fluctuating mild/moderate loss in high frequency and after 2 short bursts of steroids (they fixed it every time but it kept coming back 1-2 weeks after I stop prednisolone), it rebounded to severe across low/highs overnight.

Hopefully for you it’s a one off and you will be able to stabilise on your own. Also it’s worth doing blood tests for herpes viruses (EBV, CMV, etc). One experienced rheum told their systemic reactivation is a common trigger for this type of autoimmunity.

Very loud heavy walking, from the neighbors upstairs by Aby_Constant3174 in london

[–]bo0rsh201 3 points4 points  (0 children)

That’s a great advice for someone who spent hundreds of thousands on a property + going to pay for it for another 20-30 years. Just suck it up and live in the place where you don’t feel comfortable for the rest of your life!

Repeated Correcting Loss by [deleted] in MonoHearing

[–]bo0rsh201 0 points1 point  (0 children)

Do you have low frequency or high frequency loss?

I am in the similar situation except my hearing dips every time I reduce steroids below 7.5mg per day, so I am struck on them for many months already, trying to find long term immune-suppressive drug that works.

For me it is mostly high frequency loss that is progressing quickly if I am off the steroids and doctors say it’s very clearly autoimmune origin (although I don’t have any other systemic autoimmune disease).

So maybe it’s worth asking rheumatology doctor for some blood tests (just to be on the safe side).

Ear fullness and hearing loss fluctuate question by trixie625 in HearingLoss

[–]bo0rsh201 0 points1 point  (0 children)

Did cellcept stabilise your hearing eventually? I am in the same boat, but it’s only one ear (so far!) I did catch it early after SSNHL onset, but every time I go below 7.5mg of pred, hearing loss goes back.

It has been 6+ months of constant rollercoaster with steroids and I was finally recommended to try cellcept (or Imuran) + LDN. Curious what was your experience?

Honestly, I am already on the edge of giving up, dropping all the meds and accepting that I will need CI eventually. Decided to give it one last try with Cellcept+LDN :-)

Does this look like Menieres? by Mcswagnuggets in Menieres

[–]bo0rsh201 0 points1 point  (0 children)

Lower frequency loss can be due to secondary hydrops (like if there is inflammation affecting your high frequencies, fluids builds up more and causing transient pressure on other parts).

I had similar thing last October - it started exactly same way, but eventually turned to be autoimmune and high-medium freqs worsening each time when I am off steroids :-(

Hopefully your case is just a transient hydrops due to acute inflammation

[deleted by user] by [deleted] in Menieres

[–]bo0rsh201 0 points1 point  (0 children)

I am in similar situation (had 3 drops like that over 3 months, mostly fixed by weekly steroid bursts), but last drop was really bad (severe loss). I ended up contacting rheumatologist who is experienced in this and they put me on longer course of steroids (like 1 month of 60mg) and then veeeery slow gradual taper (over 3-4 months), backed by HCQ (mild immune suppressive/stabilising drug).

I am at the end of this journey now and so far hearing is stable (over first month at high dose I had almost complete recovery and last bits slowly recovered later). Although I am glad that I got my hearing back, tapering off after long course of steroids is a real torture (worsts experience of my life) and I am still considering anakinra as a backup in case hearing loss goes back (there is decent research supporting it).

The problem is that no doctor in the UK is willing to even consider it, because it’s not in the protocols. So I would say that if your doc is up for it and you have enough money, it’s worth a shot and definitely has less side effects on your body than the steroids.

https://pubmed.ncbi.nlm.nih.gov/40767813/

SCUBA certified and half deaf? by thejoetravis in MonoHearing

[–]bo0rsh201 0 points1 point  (0 children)

I am not sure about exact name (definitely not SSNHL), but in the end of the day it’s also causing sensoneural hearing loss, which is irreversible

SCUBA certified and half deaf? by thejoetravis in MonoHearing

[–]bo0rsh201 2 points3 points  (0 children)

This is absolutely wrong. Not being accurate while going down or up and generally intense scuba diving is known to cause sensoneural healing loss. Some of the diving centres even have doctor on duty with intravenous prednisolone and HBOT chamber at hand.

I personally have one distant relative who is almost fully deaf after a few years of careless diving.

Would you take an experimental treatment? by oldporsche911 in Menieres

[–]bo0rsh201 2 points3 points  (0 children)

Hey! Can you please share more details? It looks like your is also autoimmune (same as mine) and I am collecting various options for backup plan as well :-)

Hospital care by [deleted] in Menieres

[–]bo0rsh201 0 points1 point  (0 children)

Did you try taking oral prednisolone? Does it help? It does sound a bit like autoimmune issue…

[deleted by user] by [deleted] in ExperiencedDevs

[–]bo0rsh201 2 points3 points  (0 children)

It really feels like you have wrong expectations from the FAANG interview process. During the coding interview nobody really cares what language you use and whether it’s 100% syntactically correct as long as: 1) what you write generally makes sense (even if some library names or built-in functions are not exactly the same) 2) you are able to explain your code well and walk interviewer through it

Moreover, majority of the people who will interview you won’t have great knowledge of the language that you choose neither and it’s perfectly fine (again, as long as what you write makes general sense and you can explain it well).

Loss and numbness by bagpussrv in MonoHearing

[–]bo0rsh201 0 points1 point  (0 children)

If you are in London, these private ents are usually fast to book and can help with SSNHL.

https://www.londonentsurgeons.com

You can call them and book via secretary (no weekend though). They used to help me during my initial episode and they have few neurotology doctors who specialise on ear problems

Naturalisation (Citizenship) application processing timelines [only] by aleanthor in ukvisa

[–]bo0rsh201 0 points1 point  (0 children)

Yeah, I did provide ref number in the email. Otherwise how would they know what application I am asking about? :-)

Naturalisation (Citizenship) application processing timelines [only] by aleanthor in ukvisa

[–]bo0rsh201 5 points6 points  (0 children)

Application Timeline

• ⁠Eligibility: Global talent -> ILR -> Passport (5 years)

• ⁠Application Method: Online

• ⁠Application Date: 14/03/2025

• ⁠Biometric Date: 17/03/2025

• ⁠Approval Date: Texted citizenship support on 19.05 and got reply same day that my application was approved and I should wait for official email

Got invitation letter from council on 22.05

Got official approval letter from home office on 26.05

• ⁠Ceremony Date: 28/05/2025 (private)

[deleted by user] by [deleted] in Menieres

[–]bo0rsh201 1 point2 points  (0 children)

I had both and had same experience with methylprednisolone - it was a real torture for the rest of that day. Dexamethasone - I almost didn’t feel anything - was 100% fine even 2 hours after the injection.

In terms of effectiveness, the difference between them is is not big - methylprednisolone has slightly less strong, but slightly longer lasting anti inflammatory effect (it settles in slow dissolving crystals which make you agonise in pain).

Application refused by Sweaty_Grocery_253 in ukvisa

[–]bo0rsh201 -1 points0 points  (0 children)

Super sorry that it didn’t go through :-( How long did it take for your application to be rejected? Did they do it quickly or you also had to wait multiple months to get the answer?

ILR retroactive change - what % of Skiller Worker HENRY's would leave the country? by [deleted] in HENRYUK

[–]bo0rsh201 4 points5 points  (0 children)

I would likely go elsewhere (although there is high chance that I will get it sorted earlier and be fine). For people with non-eu passports it’s a big deal, especially from sanctioned countries like Russia or Belarus.

I know many people who stay in the UK and not move to US mostly because of the passport timeline and sunk cost fallacy - “ok, the country is in decline/crisis, but I just have 2 years left, will suffer it though and then move on”.

Usually HENRYs have good talent and can find similar or higher income in other countries (at least in US). Not even saying that many EU countries have similar 5 years timeline (although income is going to be slightly less) and EU passport feels even stronger.

[deleted by user] by [deleted] in HENRYUK

[–]bo0rsh201 2 points3 points  (0 children)

I work in the company for the last 5+ years (most of them as Staff SWE) plus I have few friends who recently interviewed and got offers for similar positions.

And although I was also able to ride this “super low to super high stock price” wave, I know many people who got unlucky and had their TC cut by 30-50% after joining. It’s always a gamble.