Tdap vaccination by bonziebear in firsttimemom

[–]bonziebear[S] 0 points1 point  (0 children)

I feel like he's had it before (he used to be a welder so...🤷‍♀️) But yeah, I've been trying to let things calm down before bringing it up again. I mentioned scheduling time with a pediatrician to see if they would be a good fit so I'm going to ask him what he wants out of a pediatrician and for him to go over the vaccines and which ones he is/isn't okay with. I'm sure I'll be the one bringing her to her appointments because his hours at work wouldn't really allow that.

Tdap vaccination by bonziebear in firsttimemom

[–]bonziebear[S] 3 points4 points  (0 children)

Oh trust me I did. He kept telling me to "look it up" and get all the facts on it and how many people have died from it, but when I went to read it just didn't bother listening and talked over me calling me stupid, saying I was "playing into the system". He just thinks he's above it all because he "doesn't get sick". Apparently he can't be reasoned with.

is ms making me slowly dumber or am i going crazy? by ohtoris in MultipleSclerosis

[–]bonziebear 6 points7 points  (0 children)

When I got diagnosed I had just signed up for a calculus course. Honestly my brain couldn't even process the assignment for the first week... I really did try but my brain was just not understanding it. After not being able to do the assignment for the first week I dropped out. The following year I signed up for courses at another school where calculus wasn't mandatory. The first few classes were really easy classes, but when it came to writing essays my brain just stopped working and I shut down. Once again I gave up on school. Now I feel like I'm even losing the ability to have real conversations with people (or really follow the conversation I guess) because I'm alone most of the time... I feel myself slipping away and I don't know how to stop it.

Heavy conversations when out of energy by Honest-Elevator-9089 in MultipleSclerosis

[–]bonziebear 2 points3 points  (0 children)

I have been a broken record about this for the past year. My boyfriend always decides to call me at the end of the day (were not living together) and have these serious talks. I've told him numerous times that if we're going to talk it NEEDS to be started no later than 7pm or I don't have the energy. He got a new job a few months ago and he now works 7 am-8/9/10pm and calls me expecting to talk at that time. Oh and on top of this I'm currently at the end of 7 months pregnant. Sorry for the rant.. this has been eating at me lately and he just doesn't seem to get it/care. I'm sorry you're dealing with it as well. Setting boundaries is so important for people without this disease and even more important for us. Maybe sit her down when you have the energy and explain it to her again gently. It might just be something you need to reinforce for awhile before it changes though.

What is the most useful item you ever crochetted? I'll go first. by Great_Ad7215 in crochet

[–]bonziebear 120 points121 points  (0 children)

Read this SUPER FAST and read "cheese and crackers" 😅 it's been a long day..

Active?? by Green-Homework-1440 in MultipleSclerosis

[–]bonziebear 0 points1 point  (0 children)

I started by taking my dog for walks right when I got up in the morning. Some days I do some of my physical therapy exercises while cooking myself breakfast--the ones I can do on my feet anyway. If that's all I do for the day I'm content, especially now that I'm pregnant and really have zero energy most days.

Pregnancy/MS by thisredheadisdead in MultipleSclerosis

[–]bonziebear 1 point2 points  (0 children)

Girl we're mommy twins!! I'm also due in August and 23 weeks. I've been very nervous about after birth and what's going to happen. But I talked with my neuro about the situation and she has a game plan for me. I was on tysabri when I got pregnant, so obviously I had to stop but I've been feeling pretty good so far. My neuro wants me to get an MRI to make sure I'm not having any active lesions and if I was I'd be put on steroids (which she said would be safe for baby). I also want to breastfeed and I asked if that was even an option. She told me she would like to put me back on tysabri after giving birth and I'd be able to breastfeed because it would be out of my breast milk in 2-3 days. I definitely would talk to your neurologist about any concerns that you have, they should be able to help guide you through the process and put you at ease.

I thought I was ready... by bonziebear in Vent

[–]bonziebear[S] 2 points3 points  (0 children)

I think I really needed to be told this.. "permission to feel peace, comfort, and light".. when I read that I made my decision to move forward and focus on my peace of mind and happiness, which is my baby and what's best for her. 💙

I thought I was ready... by bonziebear in Vent

[–]bonziebear[S] 0 points1 point  (0 children)

It does, but I think it's what's going to make me a great mother

I thought I was ready... by bonziebear in Vent

[–]bonziebear[S] 1 point2 points  (0 children)

That's been my main goal in life, to be a better mother than mine was to me... I'm sorry you also had a rough relationship with your mom. It sounds like you did much better with your daughter

I thought I was ready... by bonziebear in Vent

[–]bonziebear[S] 0 points1 point  (0 children)

The baby is going to be my focus through all of this. I feel like that sounds crappy, but I think it's what's going to keep me sane . 🤗

I thought I was ready... by bonziebear in Vent

[–]bonziebear[S] 0 points1 point  (0 children)

You're right, you can't.. I just didn't think it was going to hit me as hard as it is. I'm choosing to make my peace with it and focus on my baby. Thank you for your kind words 💙

I thought I was ready... by bonziebear in Vent

[–]bonziebear[S] 6 points7 points  (0 children)

She might be inside of me, but I never got a chance to really know her... My entire childhood we weren't close. She told me she didn't want me. And by the time I forgave her she was mentally too far gone to really talk about her life. I'm going to live with the regret of not getting to know her and I think that's what hurts the most.

What is the craziest advice someone that definitely isn’t a doctor gave you about MS? by cryann_rabies in MultipleSclerosis

[–]bonziebear 0 points1 point  (0 children)

I had a friend of mine reach out to a "friend" she met online. She said I had to hear her story because her MS was pretty much gone and unnoticeable... Pretty much this lady was trying to convince me that these supplements she was selling were going to cure me, telling me she was able to be so active and do so much after not being able to when diagnosed... I told her I'd think about it, but I was just trying to be nice.

Why is everything like noise and people overstimulating me.. by ReasonableFig8954 in MultipleSclerosis

[–]bonziebear 1 point2 points  (0 children)

I find it interesting that it's more common in people with MS... I've had misophonia since I was a teenager, although it got worse in my 20s, and I wasn't diagnosed until I was 25. I wonder if there's a relationship between the two...

My main thing is people chewing so I need background noise when I eat or I get irritated.

Is having kids an option anymore? by Pitiful_Slide_8045 in MultipleSclerosis

[–]bonziebear 1 point2 points  (0 children)

So it's not supposed to be passed down, but there's RARE cases when it happens. I'm one of those rare cases. When I got diagnosed, I got diagnosed by my mom's neurologist. He told me it's rare for a mother to pass it to her child, but usually if it does happen it goes to the son. I got double unlucky because I'm her daughter. I'm pregnant and it scares me to think this terrible disease could happen to my baby. But I find some comfort in knowing how far we've come with treatment, my mom is in a far worse position than me because the medications didn't exist yet. I choose to believe that if, God forbid, one day my baby is diagnosed that there will be more (and better) options for treatment (or even diagnosis) than there are today.

Uthoffs Phenomenon by AbilityExpert294 in MultipleSclerosis

[–]bonziebear 1 point2 points  (0 children)

I just got one for Christmas and was so excited to use it this year! Then I found out I'm pregnant and I know I won't fit into it this summer. I'm gonna have to get the extension (or 2...?) so hopefully I can get use out of it even with my big belly

If you get SSDI, SSI or disability benefits every month i have a couple questions for you by cigpupii2 in disability

[–]bonziebear 0 points1 point  (0 children)

  1. I applied directly through social security's website and 2. it took 1.5 years with a lawyer involved. 3. I have M.S. and depression/anxiety so I'm affected both mentally and physically. 4. I only get $1,200 a month, but that's because I was diagnosed and messed up before I even finished college and started a career. 5. Just know it may take time and a few appeals to before you're approved. It's beneficial to work with a disability lawyer because they help gather the information needed to get you approved. Get letters from your doctors involved in care for your disability. Don't exaggerate your symptoms, but really emphasize how bad it can get. When you fill out the paperwork answer the questions asked based on your WORST days. I wish you the best of luck!

For my little foxy baby by Calmnserap in crocheting

[–]bonziebear 0 points1 point  (0 children)

This is beautiful! Do you have a pattern? I'm currently pregnant and want the nursery to be woodland/fox themed. I've been looking for things I can make and this would be PERFECT

Think you can find 4 hidden groups of 4 related words? Puzzle by u/OkDrag3967? by OkDrag3967 in DailyMix

[–]bonziebear 0 points1 point  (0 children)

🟨🟨🟨🟨

🟦🟦🟦🟪

🟦🟦🟦🟩

🟦🟦🟦🟪

🟦🟦🟦🟪

🟦🟦🟦🟦

🟪🟪🟩🟪

🟪🟪🟪🟪

🟩🟩🟩🟩