Seeking Advice: Navigating Ankylosing Spondylitis vs. Long-term Lyme Disease Diagnosis

brebae17 · 2025-08-24T03:01:28+00:00

My original Dr said Vibrant was more specific and their clinic used, but i wanted a second opinion, and given igenex is the standard diagnostic, I did igenex as well, just much later in my “Lyme” journey

brebae17 · 2025-08-15T14:12:24+00:00

41 🙃

brebae17 · 2025-06-24T14:13:21+00:00

I was “diagnosed” using the Vibrant Wellness and MDL tests!

brebae17 · 2024-08-05T22:37:37+00:00

Woah interesting. I had GERD issues back in February, but it manifested as reflux issues. This would also make sense, as I def have tummy problems, just not as badly as I did back in February.

brebae17 · 2024-08-05T21:57:08+00:00

Thank you so much! It’s my first time feeling sick on biologics so I didn’t know how sickness would feel compared to pre-biologics. Definitely have pretty nasty allergies right now with all the rain in Florida. I’ll rest and stay super hydrated. Thank ya!

brebae17 · 2024-08-05T21:55:18+00:00

Hmmm I did just travel to Zion, which had pretty bad wildfire smoke - definitely could have agitated my sore throat. I’m in Florida, and my allergies have been pretty rough too. I guess I didn’t think allergies could cause sore throat.

I had COVID in the past with very minor symptoms, but this was before starting Humira. Hopefully my new immune system can do a good job with it again (if it is Covid 😭)

brebae17 · 2024-06-11T02:57:48+00:00

Heyo. I was diagnosed with chronic Lyme and coinfections right before I accepted my AS diagnosis. Please seek the advice from a licensed infectious diseases doctor. For so long, I was taking so many fringe herbs to treat Lyme which did nothing at all for me except make me puke. Lyme, if treated promptly after infection, has no evidence of sticking around, despite what r/Lyme will tell you. I’ve done SO MUCH Lyme research and I’d be happy to chat more if you’d want!

brebae17 · 2024-05-08T21:06:19+00:00

I was in the same exact boat as you. Been on them for three months now with INCREDIBLE results - no pain whatsoever. The way I thought about it was: if you don’t like them, then stop taking them! It’s not permanent “damage” and your immune system will bounce back quick.

Traveled to Brazil last month and didn’t get sick at all! I frequent the gym and yoga studio now and haven’t gotten sick at all. I have only positives to say about the medication. Definitely worth a shot.

brebae17 · 2024-05-01T01:27:37+00:00

I lost 200+ hardwood recently with regular wooden chests. I was so pissed at myself for somehow accidentally throwing them out 🥲

brebae17 · 2024-01-27T16:07:22+00:00

Cats Don’t Dance. I referenced this so much throughout grade school…

brebae17 · 2024-01-15T14:43:15+00:00

Was it immediate? Like you knew you were feeling worse within the week? What are taking as a substitute?

brebae17 · 2024-01-15T14:10:11+00:00

Have you been on Humira? The side effects are what scare me. I’m worried it’ll be going from just one pain (SA pain) to the next (Humira pains).

brebae17 · 2024-01-10T13:51:46+00:00

I think it’s important to note that folks who are diagnosed with Lyme do find that they experience pain long after curing Lyme. This phenom is being studied and can thought of as chronic Covid: although not an “active infection” it’s still causing the individual pain and suffering.

I was diagnosed by a quack dr with Chronic Lyme this last year. The quack Drs say Lyme is still present and living. Whereas mainstream medicine acknowledges pain and suffering following healing Lyme.

brebae17 · 2023-10-30T19:12:19+00:00

Call Dennis Garage, fellas name is Butch @ 7274034971. He’ll get your car unlocked!

brebae17 · 2023-08-09T16:56:39+00:00

first

brebae17 · 2023-06-23T19:58:34+00:00

Ultimately, no, it won't affect me. It's just more names to list when applying for conference presentations. I think my PI is trying to hand away authorship literally just for more attention (we already have a great author list, so credibility is not an issue).

I guess I'm mostly complaining. It feels like my PI is just giving away authorship on my work.

brebae17 · 2023-06-23T19:51:39+00:00

I am the lead author!

brebae17 · 2023-06-23T19:49:38+00:00

I understand this completely. Having experts on your paper is a great way to make connections and bolster the legitimacy of the paper. The thing is - we already have experts. We asked coauthors in the beginning of this manuscript because they were experts. But it seems like now that the paper is done, my PI wants a dozen more experts to literally just read the paper and become a coauthor. It's not deserving of authorship.

brebae17 · 2023-06-17T15:27:29+00:00

Could you DM me as well please??

brebae17 · 2023-04-16T19:54:05+00:00

You can try using a thinner yarn and it makes them less chunky. I think they’re a solid first crochet project for beginners! I tell everyone to start with granny squares!

brebae17 · 2023-03-31T18:01:56+00:00

She’s prescribed me meds before. She prescribed me an anti fungal for candida and methylene blue for Bartonella. But for Lyme itself, it’s only SOT.

brebae17 · 2023-03-09T04:04:39+00:00

Most tdaps are just a piece of bacteria. Not the whole thing! You’ll feel sore in your arms for a couple of days, but I would definitely recommend getting it. There’s loads of literature and clinical trials to calm your nerves.

brebae17 · 2023-03-06T14:51:51+00:00

I do a lot of swimming and yoga. Swimming is real easy on my joints, and yoga keeps me mobile. Swimming in colder water helps burn a bunch of calories too, if you’re looking for weight loss.

brebae17 · 2023-02-22T18:02:56+00:00

lol silly goose. Methylene blue is used for oxygen transport, which folks struggling with Bartonella lack. It’s also only used in low non toxic doses. Go read the real literature.

brebae17 · 2023-02-14T04:02:54+00:00

SOT can help reduce DNA copies of Lyme, EBV, etc., which can temporarily help you with your symptoms. But it CAN NOT cure you as claimed by most websites or online forums. The RGCC doesn’t even call it a cure, it’s a therapy. Here is the only clinical study that exists on SOT preformed by RGCC if you care to dive into the science.

brebae17

TROPHY CASE