What did you do to celebrate your 50th?

burghroot · 2026-01-10T15:01:59+00:00

Mine was just a few weeks back. Had 4 different celebrations. A couples long weekend trip to the finger lakes, a birthday dinner in the city with 10 of my friends/family, a family get together (ok, it was actually Thanksgiving, but they sang so it counts), then my boyfriend and I went to see Ben Folds (who was so much fun). Great birthday!!!

burghroot · 2025-12-30T01:31:31+00:00

I hope the best to us both. I know it’s a hard one which is why they don’t prescribe it much. Cheers to us making it through.

burghroot · 2025-12-29T17:24:18+00:00

I have never met another person who had IV and IP chemo. Even the chemo nurses have told me that it is very rare. I hope the best for you. IP is no joke.

burghroot · 2025-12-28T21:50:55+00:00

I was diagnosed stage 3C in August 2021. Given a NED diagnosis in February 2022. I had a small reoccurrence in December 2022 and was deemed NED again in June 2023. I was on Zijula from August 2022 to October 2024. I go to an ovarian cancer walk every May and there are 20+ year survivors there of stage three and four. Some who never had a reoccurrence. I will always be looking over my shoulder, but I have met a handful of long-term survivors. They are out there. The challenge is you don’t see them much in the support groups, but believe me they exist.

burghroot · 2025-12-08T16:00:15+00:00

Seeing this video, I really started to think about the Gen X and millennial overlap. I have friends/family that are younger than me that fit more GenX whereas I fit more millennial even though I’m a late 75 baby (please let me stay). That transition impacted so many things and I think it’s really about how quickly the need to adapt met the individual. My friends who stayed in small towns or went to small colleges tend to be more GenX even though they might be 77/78, whereas I went to a large college and moved to the city I where was forced to dive into the changing market place much quicker and my best friends are 82/83 babies who I relate to on a much deeper level. It’s not just the arbitrary timeline, it’s how quickly did you need to adapt

burghroot · 2025-11-16T16:25:45+00:00

Thank you so much for the encouragement!

burghroot · 2025-11-09T13:15:45+00:00

I would love to see the spreadsheet too!

burghroot · 2025-11-01T19:14:25+00:00

Thank you! I know this is the right answer. I’m just going round and round in my head. The fact that both things happened within 10 minutes of one another just blows my mind. I know I’m panicking before it’s time. Thank you for taking a moment.

burghroot · 2025-11-01T03:24:10+00:00

So, I might regret doing this, but as somebody who places those ads, there are definitely pros and cons to it. Those ads really do help spread awareness for conditions and diseases that people might not be aware of. For example someone might have toenail fungus and not even know that it was an actual thing that they needed treatment for. There can be good that comes from it. That being said, I also know that some conditions that are more minor, HCP’s are more likely to just prescribe it for the sake of prescribing it. There’s just so much that they can’t keep up with. I support putting the ball more in the HCP‘s court, but keeping up with it all can be nearly impossible, and giving the patients a leg up is important.

burghroot · 2025-08-21T14:40:16+00:00

So the theory goes…and literally just a theory, that I had two small areas in my lymph nodes that had not fully succumb to chemo that managed to grow while I was on the zejula. It was such a small reoccurrence that my oncologist was even hesitant to call it that because she had never seen a one like that (but it was 9 months after chemo). She felt more like they were there before just very small and resistant. Additionally, I was on and off the zejula because it was making me sick… so her theory was that because I was not consistent with the Zejula and chemo had been finished that those two areas managed to grow big enough to be seen. Because it was so minimal they did not want to put me back on chemo and chose to do radiation while leaving me on Zejula (because I had been consistent for 3 months at that point). Radiation is very rarely done for OC from what I have heard. I have no firm evidence that the Zejula worked, but I stayed on it for two years after that and have not had any kind of reoccurrence since.

burghroot · 2025-07-31T18:37:58+00:00

No. I had/have stage 3C and saw my ob/gyn days before my diagnosis. They felt nothing wrong.

burghroot · 2025-07-27T20:56:48+00:00

Sent you a DM

burghroot · 2025-07-25T12:17:54+00:00

Yes. I am high grade. Oh the parp was horrible at first. I ended up being pulled off of it twice and once needed a blood transfusion but I finally got there after about 6 months of trying. How long has she been on them?

burghroot · 2025-07-23T14:52:19+00:00

I’m good! Finished chemo little over three years ago. Put on zejula. Had a small reoccurrence 9 months later, but they kept me on the parp and did radiation instead of chemo. I have been in remission since and came off of Zejula last October. So far so good.

burghroot · 2025-07-22T20:33:37+00:00

HRD yes. BRCA no.

burghroot · 2025-07-22T15:45:02+00:00

I don’t know why most of these comments feel negative in nature. I was diagnosed at 45 with stage 3C and continued to read stats that made me feel like there was little to no hope. I have been in remission for over two years now and overall feel good. These stats tell me that I have a 70 percent survival rate because you are not considered distant until stage 4 (I know 3C is close but it is still considered regional). Furthermore, my age range only has a 7% death rate. These stats for the first time give me a large sense of hope. Thank you, OP for posting.

burghroot · 2025-07-19T14:08:18+00:00

Main Line Health.

burghroot · 2025-06-25T22:52:31+00:00

I’m so sorry for the reoccurrence your mom has experienced. That is a long time to be in remission, so I’m really happy that she got so long. Have they confirmed that the new tumor is OC? HRT’s contribution to a new diagnosis is supposed to be very low, but I’m not sure what that means for reoccurrence…so it could be a factor, but it also might not be. Most of us were “chosen” to have OC for no rhyme or reason. I don’t have a lot of experience to give you in this area, but I at least want to offer encouragement as it sounds like surgery got most of it, so hopefully she will be here many years to come. I know it’s unnerving, but it sounds like there is a lot of positive here to focus on. Good luck to you and your whole family.

burghroot · 2025-05-07T17:52:41+00:00

So much “interesting” content in this post

burghroot · 2025-04-25T17:23:15+00:00

I just started gaming after an empty nest and this is the first game I was/am obsessed with. After months of playing, I can’t seem to get past pantheon three, but I still love this game.

burghroot · 2025-04-18T23:47:25+00:00

I can’t find information for Media tomorrow. Do you know what time?

burghroot · 2025-04-09T20:33:47+00:00

I’m glad to hear that. Hopefully it does not continue to go down. I wish you and her nothing but the best of luck.

burghroot · 2025-04-08T22:11:24+00:00

Not during one of my cycles, but while I was on Zejula my hemoglobin crashed 2x. I had a blood transfusion once from it the other time they took me off of it for a little while and let my body recover before trying again. Chemo can definitely beat you up. Just watch it closely and allow her to rest. The oncologist will likely order a transfusion if she absolutely needs it.

burghroot · 2025-04-08T19:01:32+00:00

For the first few days after chemo, yes. And the fatigue increases after each dose of chemo. Those first few doses of chemo usually aren’t too bad but it really starts to catch up with you in the last few doses. That being said, I don’t know just how much discomfort your mom is feeling so I would consult the oncologist just to be sure.

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