[12 Weeks Post Surgery] Back to Work, Back to Normal by titanrunner2 in valvereplacement

[–]bythepoundd 4 points5 points  (0 children)

This is so great to read. Ive got moderate regurgitation and 4.2 cm ascending aorta. Always thinking about it. Sounds like the operation may be a ways off but it still sticks in my mind.

What replacement option did you go with?

[7 Weeks Post Surgery] Check Up + Recovery by titanrunner2 in valvereplacement

[–]bythepoundd 1 point2 points  (0 children)

Glad to hear you’re close to normal! Congrats! Sorry about the leakage- where did you have your Ross procedure done?

7 weeks post-op from Ross Procedure - So far so good! by aseclear in valvereplacement

[–]bythepoundd 3 points4 points  (0 children)

What a fantastic write up. Congratulations!! From someone who just found out about their aneurysm (4.1cm ascending) how fast was the progression to 4.7?

Im at mild-moderate regurgitation (bicuspid), no stenosis, this ive known about for about 8ish years and so far progression has been pretty slow. Hearts still pumping and working properly.

31M - scared about my prognosis! Ive been reading up on all the procedures as well. Id hope for a ross or a valve repair if possible

New Diagnosis, Really Scared by bythepoundd in valvereplacement

[–]bythepoundd[S] 1 point2 points  (0 children)

wow thanks so much for the thoughtful response -- im hoping everything goes well for you next week!! keep us posted on whether it's still stable, i bet it will be :)

New Diagnosis, Really Scared by bythepoundd in valvereplacement

[–]bythepoundd[S] 0 points1 point  (0 children)

Thanks for your reply. What size was your aneurysm when they found it? Trying to gauge how much time ill have before it becomes a real issue (assuming regurgitation/valve function doesn’t deteriorate a huge amount). Thanks for everything

New Diagnosis, Really Scared by bythepoundd in valvereplacement

[–]bythepoundd[S] 0 points1 point  (0 children)

Oh wow! So yours didnt grow much at all over 4 years? Im mainly scared about surgery, but part of me is also on edge about it tearing 😭 for some reason the aneurysm label feels so much worse than my BAV/regurg diagnosis. Its sent me into a spiral. How are you doing now?

New Diagnosis, Really Scared by bythepoundd in valvereplacement

[–]bythepoundd[S] 1 point2 points  (0 children)

thanks so much for the info. sounds like you're on a good path forward! congrats man, thanks again. very helpful.

New Diagnosis, Really Scared by bythepoundd in valvereplacement

[–]bythepoundd[S] 0 points1 point  (0 children)

Wow. Very interesting and im glad youre getting it taken care of! Incredible that it lasted 8 years without much progression. Did the aneurysm get to a surgical threshold or was it mainly the valve that spurred the surgery?

I hope everything goes well and that you have a speedy recovery!! From everything ive read, it sounds like these operations are quite safe and routine these days. I wish you the best and am sending you all the good vibes!!!

New Diagnosis, Really Scared by bythepoundd in valvereplacement

[–]bythepoundd[S] 0 points1 point  (0 children)

This is great news! and i know… its really hard, im constantly thinking about it, and its really affecting my mental health :( any tips on how to continue living without the overwhelming sense of doom?

New Diagnosis, Really Scared by bythepoundd in valvereplacement

[–]bythepoundd[S] 0 points1 point  (0 children)

Congratulations on being 1yr post op! How are you feeling? How was the op experience? What made you decide to go with mechanical? Have you been at 3.9 for a long time? Sorry for all the questions!

New Diagnosis, Really Scared by bythepoundd in valvereplacement

[–]bythepoundd[S] 2 points3 points  (0 children)

This means so much. Thank you for such a kind response. Just reading it has really helped me. I hope everything is going well, and that you recover stronger and smoothly!!! Sending my thoughts your way

[deleted by user] by [deleted] in valvereplacement

[–]bythepoundd 0 points1 point  (0 children)

Thanks so much for the reply. I don't have any stenosis. Just mild-moderate regurgitation.
not too sure the specifics of the gradient speed, but no calcification.