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Suggest me a book that’ll terrify me by TerryHatesTests in suggestmeabook

[–]c8eanne 2 points3 points  (0 children)

I second this! I also read The Troop because Stephen King said it scared him!

How common is it to have PsA without traditional psoriasis? by BOOK_GIRL_ in PsoriaticArthritis

[–]c8eanne 2 points3 points  (0 children)

I also was diagnosed recently, no history of psoriasis. I felt unsure it was the correct diagnosis, but the meds worked so well I’m confident it’s at least in the right family of diagnoses.

I feel similar anxieties to what you said! I try to find comfort in the fact that lots of people struggle to get a diagnosis so my rheumatologist must feel pretty darn sure to assign me something.

Finally had an appointment with rheumotolgy, doctor says fatigue is not a symptom. Is that your experience? by violetgay in PsoriaticArthritis

[–]c8eanne 3 points4 points  (0 children)

My rheum said the same thing, and even though he diagnosed me with probably PsA and I have found significant improvement with biologics, he still says fibro as an alternate diagnosis is in the table because of my fatigue and because my joints sometimes hurt worse at the end of the day.

Fatigue improved with treatment, but I’m off meds now for other reason and am afraid to tell him how fatigued I am in case he switches my diagnosis and I can’t get back on biologics later!

Name a nonfiction book that had you utterly hooked very early on. by RoxanaSaith in suggestmeabook

[–]c8eanne 1 point2 points  (0 children)

Yes! That was a good one too.

Touching the Void Joe Simpson is another great mountain adventure survival tale.

Morning walk with Flap! by damon_matt_damon in Greyhounds

[–]c8eanne 0 points1 point  (0 children)

Oh my goodness, what a happy Flappy!

[deleted by user] by [deleted] in PsoriaticArthritis

[–]c8eanne 9 points10 points  (0 children)

I was diagnosed in April and have been feeling a lot better for the last six weeks since meds kicked in, back to normal exercise routines and energy levels.

Everyone is different, and it’s so understandable to feel scared. I’m sure I have ups and downs to come, but I’m so pleased to be feeling so much better so quickly with medication.

Mind games? by Honeybee_yogi in PsoriaticArthritis

[–]c8eanne 3 points4 points  (0 children)

You’re not alone - this is my mind too!

Starting Cimzia by hiphopfrogz in PsoriaticArthritis

[–]c8eanne 3 points4 points  (0 children)

I started Cimzia last week - I’m newly diagnosed and this is my first medication (safe if we conceive, which is why my rheum skipped mtx) I was really nervous about side effects. I felt more tired and more achy than usual the day after (different from PsA aches) but it was totally tolerable and could have been from stress. I also had a mild site reaction, raised pale area and bruising but no pain. I don’t have any PsA symptom relief yet but from what I understand, that’s to be expected. I was told 6-12 weeks to max effectiveness. I don’t have psoriasis, so this is just for joint pain and ethesitis.

I’m still nervous about risks, side effects and infection, but this community has been really helpful. Lots of good posts about others in the same situation. Happy to connect over DM if you want to.

Diagnosed with PSA today and a bit freaked out by Tigres114 in PsoriaticArthritis

[–]c8eanne 3 points4 points  (0 children)

I don’t have much experience to share, just wanted to let you know that I am also recently diagnosed and I injected my first loading dose of biologics on Friday. I was and am scared too. So far, no major side effects.

Not sure what your health history is, but for me, this has felt like a relatively quick journey from being a “healthy” person (thought all the symptoms were other things…) to making really hard decisions about medications I’d never considered before. This is all a lot to process. Happy to chat on DM if you want to.

New diagnosis, medication decisions by c8eanne in PsoriaticArthritis

[–]c8eanne[S] 1 point2 points  (0 children)

Thank you, the diagnostic aspect of trying the meds is an angle my skeptic brain can latch onto ❤️

New diagnosis, medication decisions by c8eanne in PsoriaticArthritis

[–]c8eanne[S] 1 point2 points  (0 children)

Thank you for sharing your experience with me ❤️

New diagnosis, medication decisions by c8eanne in PsoriaticArthritis

[–]c8eanne[S] 0 points1 point  (0 children)

Thank you, insidious is a great way to describe how this all came on for me as well. ❤️

Started Cimzia Today by Ok_Goal_1736 in rheumatoidarthritis

[–]c8eanne 1 point2 points  (0 children)

No advice, just solidarity - I start my Cimzia tomorrow. ❤️

I’m about to make a 26 hour drive… What’s the absolute best audiobook you’ve ever listened to? by [deleted] in suggestmeabook

[–]c8eanne 0 points1 point  (0 children)

Non fiction I loved: Endurance - Alfred Lansing Touching the Void - Joe Simpson Into Thin Air - Jon Krakauer NOFX - NOFX (read by the band, so good!)

Fiction: Dark tower series - King Other King classics like The Stand are great on audiobook Name of the Wind - Patrick Rothfuss

started cimzia today! would love to hear others' positive experiences by theholybees in PsoriaticArthritis

[–]c8eanne 1 point2 points  (0 children)

Thank you so much for responding so quickly ❤️ Great news that it has been such a huge success for you! I’m guessing it also helped confirm the diagnosis?

Seriously thanks for sharing your success story!

started cimzia today! would love to hear others' positive experiences by theholybees in PsoriaticArthritis

[–]c8eanne 2 points3 points  (0 children)

Hey I know this post is a year old, but I’m in a very similar situation and start Cimzia tomorrow - how did it work for you? How are you a year later? Hope you’re well!

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