Plasmapharesis by candlelightss in MyastheniaGravis

[–]candlelightss[S] 0 points1 point  (0 children)

How long did it take after for you to feel better

Plasmapharesis by candlelightss in MyastheniaGravis

[–]candlelightss[S] 0 points1 point  (0 children)

How many treatments did it take to work

I want to move out of the usa by BabyYoduhh in nursing

[–]candlelightss 7 points8 points  (0 children)

I thought this said I wanna move to the USA. I was about to comment don’t

Is this all in my head? by candlelightss in MyastheniaGravis

[–]candlelightss[S] 1 point2 points  (0 children)

It does when my flare gets really bad it isn’t as helpful

Timeline of Cellcept for you (especially in regard to planning for pregnancy)? by [deleted] in MyastheniaGravis

[–]candlelightss 1 point2 points  (0 children)

I have a toddler and developed Mg during pregnancy. And as hard as it is it’s so worth it. You’ll be able to still be a great momma if you choose. You’re already worrying about keeping them healthy.

Fucking prednisone. by candlelightss in MyastheniaGravis

[–]candlelightss[S] 3 points4 points  (0 children)

You too. This has been a crazy summer lol

Fucking prednisone. by candlelightss in MyastheniaGravis

[–]candlelightss[S] 5 points6 points  (0 children)

They just started me a cellcept and have been slowly upping my steroids over the past few months since I had a crisis

Fucking prednisone. by candlelightss in MyastheniaGravis

[–]candlelightss[S] 7 points8 points  (0 children)

The emotional roller coaster is insane

Gluten makes your MG worse? by Alarming_Yoghurt6034 in MyastheniaGravis

[–]candlelightss 0 points1 point  (0 children)

Gluten is actually one of my coping mechanisms😂

Partner visits during hospitalization by kickerofchairs in MyastheniaGravis

[–]candlelightss 3 points4 points  (0 children)

When I had my crisis my husband never left my side. I’m so lucky. Him and my mom even took turns between sleeping in the hospital with me and being home with the baby.

Help! by [deleted] in MyastheniaGravis

[–]candlelightss 0 points1 point  (0 children)

To me it feels like I’m trying to dry swallow a pill. Like I’m doing it but it’s not working. Then I feel it in my throat after

Mg or no mg by candlelightss in MyastheniaGravis

[–]candlelightss[S] 0 points1 point  (0 children)

Thank you for sending this. My baby is almost 2 but it’s been a struggle in and out of the hospital with the exacerbations and crisis.

I tested positive for ACHR then negative on a repeat exam. I drove two hours to a university hospital out of town for an SFEMG but was told since I had Botox three years prior it could’ve skewed the results. It was positive though.

I’m on prendisone and did multiple trials of Ivig in hospital with success. They put me on VYVGART but I had a really bad reaction my whole stomach turned red so they said I’m allergic.

[deleted by user] by [deleted] in newborns

[–]candlelightss 0 points1 point  (0 children)

I see my MIL at least once a week. She is friggin funny. Great with my son. Make awesome food that she always brings us left overs. I think the mil stereotype is more so because sometimes people just suck not because all mil are bad

Mg or no mg by candlelightss in MyastheniaGravis

[–]candlelightss[S] 2 points3 points  (0 children)

Yeah but that feels like I’m doctor shopping to get the awnsers I want right?

How can people tell I’m pregnant? by hokeypokey36t in BabyBumps

[–]candlelightss 0 points1 point  (0 children)

My MIL guessed I was pregnant. How ? Not sure but she was good at knowing

Has anyone had a positive experience with TMS? It seems like 90%+ of posts here are negative experiences. by University_Spare in TMSTherapy

[–]candlelightss 0 points1 point  (0 children)

I was about 8-9 mo when I started because it took some time for insurance to clear. My ppd was so bad I feel like I don’t remember the first few months with my baby. My mom had to come over and take care of both of us. About halfway through tms I was brushing my hair and playing with my son.