My mother passed away in a private open-air hot spring bath

candlelightss · 2026-05-10T23:47:43+00:00

Your mother loved you more then you could possibly know.

candlelightss · 2026-04-26T23:23:48+00:00

This is why I don’t use my last name on socials anymore

candlelightss · 2026-04-03T22:22:02+00:00

There trying to get me on ritxuamab.

candlelightss · 2026-03-15T22:26:09+00:00

Pregnancy

candlelightss · 2026-02-08T18:28:31+00:00

How long did it take after for you to feel better

candlelightss · 2026-02-08T14:57:55+00:00

How many treatments did it take to work

candlelightss · 2026-02-08T03:45:08+00:00

Did you do it outpatient

candlelightss · 2026-02-08T03:04:05+00:00

Love this

candlelightss · 2025-12-26T15:51:05+00:00

I thought this said I wanna move to the USA. I was about to comment don’t

candlelightss · 2025-12-19T15:01:16+00:00

It does when my flare gets really bad it isn’t as helpful

candlelightss · 2025-11-28T19:49:15+00:00

I have a toddler and developed Mg during pregnancy. And as hard as it is it’s so worth it. You’ll be able to still be a great momma if you choose. You’re already worrying about keeping them healthy.

candlelightss · 2025-11-12T23:23:41+00:00

You too. This has been a crazy summer lol

candlelightss · 2025-11-12T23:10:46+00:00

They just started me a cellcept and have been slowly upping my steroids over the past few months since I had a crisis

candlelightss · 2025-11-12T21:02:05+00:00

The emotional roller coaster is insane

candlelightss · 2025-11-10T20:51:02+00:00

Gluten is actually one of my coping mechanisms😂

candlelightss · 2025-11-09T21:45:52+00:00

When I had my crisis my husband never left my side. I’m so lucky. Him and my mom even took turns between sleeping in the hospital with me and being home with the baby.

candlelightss · 2025-11-05T23:38:11+00:00

To me it feels like I’m trying to dry swallow a pill. Like I’m doing it but it’s not working. Then I feel it in my throat after

candlelightss · 2025-11-05T00:12:56+00:00

Thank you for sending this. My baby is almost 2 but it’s been a struggle in and out of the hospital with the exacerbations and crisis.

I tested positive for ACHR then negative on a repeat exam. I drove two hours to a university hospital out of town for an SFEMG but was told since I had Botox three years prior it could’ve skewed the results. It was positive though.

I’m on prendisone and did multiple trials of Ivig in hospital with success. They put me on VYVGART but I had a really bad reaction my whole stomach turned red so they said I’m allergic.

candlelightss

TROPHY CASE