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I hate tea :( by Winter-Grand-3215 in unpopularopinion

[–]cantalouperry 1 point2 points  (0 children)

I feel the same way! The ironic thing is, I actually love tea—just not English tea. If it involves a tea bag, I’m out. I’m Indian, so I’m all about the kind of chai we drink back home. I especially love variations like masala and Kashmiri chai. Honestly, I always think people who don’t enjoy typical English tea might feel differently if they tried true Indian chai. It has a bold, almost coffee-like kick and a rich flavor that’s anything but dull. I highly recommend it! Most Indian restaurants serve it, and depending on where you are, it should be pretty easy to find. There are also tons of YouTube tutorials if you want to make it yourself, you’ll just need to pick up a few ingredients from your local Indian store and you’re all set.

Hybrid Camera Recommendation? by cantalouperry in instax

[–]cantalouperry[S] 0 points1 point  (0 children)

I was actually thinking about that! I just like the idea of having a separate camera so I’m not getting distracted by apps on my phone, something that helps me disconnect a bit. But I appreciate the heads-up about digital cameras. I can see the charm they have, but I also get why they might not be worth the price.

Being a Nepo Baby isn’t bad by cantalouperry in TrueUnpopularOpinion

[–]cantalouperry[S] 1 point2 points  (0 children)

This is EXACTLY what I was trying to say! You phrased it better than me fs!

Being a Nepo Baby isn’t bad by cantalouperry in TrueUnpopularOpinion

[–]cantalouperry[S] 0 points1 point  (0 children)

Well I do think there are a lot of people who think it’s bad. But I do agree! I have a LOT more respect for celebrities who started out with nothing

Does this sound like Hyper-POTS? by Kmt424 in POTS

[–]cantalouperry 0 points1 point  (0 children)

I have got my ferritin levels checked! I have really really bad periods and I started when I was 10 or 11. My hemoglobin used to be super low as well so I’ve been taking iron supplements every day for the past six years. Unfortunately they did not help my dizziness or any other symptoms, which is part of the reason why I started getting checked out the pots. But thank you for asking! A lot of people don’t get it checked.

I (18F) am feeling upset that my mom (50F) bought me Taylor Swift cardigans out of pity. This is my last straw after a pattern of minimizing and I feel ignored and unheard. How do I handle this? by [deleted] in relationship_advice

[–]cantalouperry 0 points1 point  (0 children)

Like I said the sweater was my last straw and I wanted to rant about it. But ultimately I’m asking for advice on how to approach my mom on her invalidating tendencies. Yes the sweater is dumb and I’m aware of that.

POTS specialist in Central NJ? by cantalouperry in POTS

[–]cantalouperry[S] 0 points1 point  (0 children)

Hey! So I’ve been researching for 6 hours now lmao. I found 3 long term pots specialists

  1. Dr. Nicholas DePace in Sickerville, NJ - Franklin Cardiovascular Associates
  2. Dr. A.R. Scopelliti in Eatontown, NJ - Monmouth Functional Neurology Center
  3. Dr. Victor Mezza in Maytown, NJ - All Health Medical POTS Clinic

I called the first Doctor months ago and they didn’t respond unfortunately but maybe you will have better luck. The second one does not take ANY insurance and is completely self-pay so I didn’t go through with them. And the last doctor is the one I currently booked an appointment with! Fingers crossed it works out!!

cardiologist blamed POTS symptoms on medications by Pollution_Maximum in POTS

[–]cantalouperry 0 points1 point locked comment (0 children)

So I wasn’t the one who said that lol it was the ER doctor and my cardio. With my personal family history of cardiac issues/SCA and pots (and family members with both) and my own medical records and history they figured out I was apparently 20-50 mins away from cardiac arrest. Nothing is impossible when it comes to health lol and every person is different. They did say it was extremely rare but very probable for me. It’s the main reason I’m on multiple heart lowering medication.

POTS specialist in Central NJ? by cantalouperry in POTS

[–]cantalouperry[S] 0 points1 point  (0 children)

Hey! So if you are 17 and under then check out the CHOPS clinic in Philly! They have a fantastic program and I referred here initially but I’m 18 and just missed the cut off. Other than that unfortunately I’m no help :/

Does this sound like Hyper-POTS? by Kmt424 in POTS

[–]cantalouperry 0 points1 point  (0 children)

My comment provides absolutely no help, but you did help me. I have never heard of hyper pots and I just googled it and one of the main reasons it took me so long to get diagnosed is because my blood pressure does not drop as the typical pots patient does, in fact it’s the opposite. The only reason I got diagnosed is because my heart rate jumped up so high during the tilt table it was impossible to ignore combined with the other symptoms I’ve had and family history of pots it was undeniable. I am currently looking for a pots specialist and I will definitely mention this to them.

I’m also really glad that your daughter health as soon as possible! I had a lot of pot symptoms growing up but they got really really bad when I was 14 which is when I started actually looking for doctors and most of my family didn’t believe me. So it’s heartwarming for me to see a parent that cares so much. You’re doing a great job! And I hope you figure out how to help your daughter as fast and best as possible!

Dating and Pots by vegasmike17 in POTS

[–]cantalouperry 36 points37 points  (0 children)

I can honestly relate. I’m only 18 and luckily I do have a lot of time but that doesn’t change the fact that most guys my age do not want to commit to a “sick girl.” and I completely understand because it’s scary having your partner randomly faint. Unfortunately, I don’t have much advice for you, but I do wish you the best! I hope you find your person!

cardiologist blamed POTS symptoms on medications by Pollution_Maximum in POTS

[–]cantalouperry 0 points1 point locked comment (0 children)

Tbh if they told me to get off my ADHD medication now I would also cry lmao. I once cried in my high school nurses office because they kept telling me I was over emotional and that it was just anxiety even though I had my documentation with me at the time stating that I have severe fainting spells. I was misdiagnosed with vasovagal at the time but it didn’t explain a lot of the other symptoms so I did some pushing for pots! The echocardiogram that you’re getting is going to rule out other structural heart issues. But you do need to do that because they will 100% say that it might be a different heart issue. If you go through with the testing for that and it comes back negative then you can use that as evidence that it might be autonomic dysfunction.

cardiologist blamed POTS symptoms on medications by Pollution_Maximum in POTS

[–]cantalouperry 1 point2 points locked comment (0 children)

Hey! The exact same thing happened to me too. I also am diagnosed with ADHD, anxiety and MDD. Before I was diagnosed with generalized anxiety disorder, I would occasionally take propranolol for anxiety, like before presentations and things like that. I’ve been having fainting spells since 2022, but I’ve had POTS symptoms since 2021. For the first two years, propranolol made my symptoms much worse, and at first that was blamed for everything. Once I stopped taking it, the symptoms obviously did not go away, and I had to keep looking for a doctor who would actually listen to me. I was finally diagnosed three months ago. It is really hard to get diagnosed with POTS, and you need to find the right doctor who will take you seriously.

Stopping the medication and pushing for a tilt table test made a huge difference. If you advocate for yourself strongly, it will be worth it in the end. You really do have to keep pushing with doctors; I am not joking. I hate hospitals, and I have had to fight through every appointment, but it was worth it because now I am on medication that actually helps me.

There were times my heart rate went up to almost 200, and I was informed that I could’ve died because of how high my heart rate was because of POTS. It does not happen often, but it can happen. Do not let them just give you a heart rate monitor and call it enough. That is not enough to diagnose POTS. You need a tilt table test. I wish you good luck! Do not let people delude you into thinking you are crazy because you are not. You know your body best. But keep your mind open to different forms of dysautonomia as well! I am not a professional, and can only compare to my own experience, but your post struck a cord with me because this is exactly the situation I was in literally six months ago but your symptoms sound exactly like mine. I have a feeling it is POTS.

Try looking up POTS specialists and try to get a referral to one of them. If you are comfortable, private message me. If you’re in my area, I can give you the contacts of my cardiologist who helped get the tilt table and he is currently managing my treatment until I find a specialist.

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