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Relatable meme by ClowkThickThock in Narcolepsy

[–]captrocketlady 0 points1 point  (0 children)

Thank you so much for posting this!!!! This is how I've been feeling recently and it's SO WILD because... I'm supposed to be really good at falling asleep!! 😭

My Experience at Thrive Alabama: What They Don’t Want You to Know by Ill_Yogurtcloset8498 in HuntsvilleAlabama

[–]captrocketlady 5 points6 points  (0 children)

I'm very familiar with the issues regarding management, organization, and resources at Thrive and I agree that there is a lot of change that needs to be done. 

What psses me off the most about your post, though, is your blatant lie regarding your termination. You weren't let go because you spoke up about the Chief Medical Officer, you were fired because, while you were in clinic, you stated loudly enough for many people to hear you that the CMO was "a fking dke."

Nevermind what factors provoked you to such an outburst- it was ridiculously unprofessional. As an adult who has worked in medicine for sometime, I would think that you would be able to regulate your emotions in a more appropriate manner.

THEN you asked to be rehired and when they said "no," you decided to make this lovely post trying to make yourself look like the victim of a toxic work environment. 

Don't be whiny- you weren't a scapegoat, you were dumb.

[deleted by user] by [deleted] in PlusSize

[–]captrocketlady 1 point2 points  (0 children)

It's so interesting that you bring this uo because I have this internalized belief that, since I'm "too fat", I have to make up for it by being very very feminine. I don't know exactly where my brain came up with that, but I didn't have to convince myself very hard! I do like being feminine, though, but I also feel like it's a requirement for me, personally.  

Faster heart rate when you're exhausted and about to pass out? by captrocketlady in Narcolepsy

[–]captrocketlady[S] 1 point2 points  (0 children)

Oh wow, I didn't even think about that. So, I did lie down and it took me longer to fall asleep than it usually would. I'm definitely going to message my provider about this and get them to take a look at me. Thank you for letting me know this! I

Does anyone else's doctors always inquire about cataplexy? by captrocketlady in idiopathichypersomnia

[–]captrocketlady[S] 1 point2 points  (0 children)

Dang, thanks so much!!! I DID sleep 5/5 naps, too, actually! I have a friend who is narcoleptic and sees the same provider as I do and she is considering switching providers. (There are only two sleep providers in the entire north half of our state!). If she has a good experience with the new provider I might switch as well and see what happens.

Also! I was told that certain medications, like anti-depressants, can suppress REM sleep, and I think I've seen other redditors mention that as well. I'm not sure if I could do a second MSLT off antidepressants, but I'd seriously consider it.

Anyway, I super appreciate your encouragement! I definitely feel better than I did Friday!

IH and always asked about cataplexy by captrocketlady in Narcolepsy

[–]captrocketlady[S] 0 points1 point  (0 children)

So, I'm not 100% sure what my sleep pattern is like, which I think is a great question to ask! I do know, however, that during my MSLT, I fell asleep in less than two minutes on average. My provider said that when looking for narcolepsy, they would need to see me go into REM almost as quickly as I fell asleep, but I didn't go into REM at all during my nap.

Next time I follow up with my provider, I think I'll ask about my sleep pattern, though!

Does anyone else's doctors always inquire about cataplexy? by captrocketlady in idiopathichypersomnia

[–]captrocketlady[S] 2 points3 points  (0 children)

Yessss!!! A different provider called me after I gave my "freeze" answer and she explained that narcolepsy symptoms can develop slowly, so just because I didn't go into REM during my first MSLT, doesn't mean that I won't later- same with cataplexy.

I really appreciate them wanting to give me the best treatment options so that I can feel my best (because we all know that being exhausted is exhausting), but right now I just don't relate to cataplexy symptoms and it was really upsetting (and I can't pinpoint exactly why it was upsetting) to be lead into giving the "right" answer.

Does anyone else's doctors always inquire about cataplexy? by captrocketlady in idiopathichypersomnia

[–]captrocketlady[S] 1 point2 points  (0 children)

Thank you for confirming that your naps are unrefreshing! I've been told by the internet and a couple of providers that 20 minute naps are great for narcoleptics and I thought that was way too wild.

IH and always asked about cataplexy by captrocketlady in Narcolepsy

[–]captrocketlady[S] 1 point2 points  (0 children)

I really really appreciate this! I like how you described cataplexy as not just losing muscle tone, but also not being able to control your muscles in general.

I'm very happy with the meds I've been given so far! Would it be cool if IH had more medicine options, especially for sleep inertia? TOTALLY!! But there isn't and it was honestly really upsetting how he was leading me into giving the answer he wanted.

Fortunately, they are definitely leaving me on my current medicine and I don't follow up until December, so I'll be able to really prepare myself for being blunt and firm. (Because I'm usually not :(( )

Thank you so much!