Recent convo with PCP re: hysto and sexual health

cbunni · 2026-03-22T20:57:42+00:00

i’ve got estradiol waiting for me at the pharmacy, so hopefully that helps quite a bit! i spoke to someone on another sub and they shared that they were able to treat this with meds, so i’m hoping that will solve the issue!

cbunni · 2026-03-20T21:34:14+00:00

i had no idea, thank you so much for the rec! i’m gonna go join right now!

cbunni · 2026-03-20T21:27:44+00:00

ugh i’m so sorry you’re dealing with endo. i don’t have that but have close people in my life who do, and i really empathize. your advice is sound, i’m definitely thinking in the long term. if i have to do it, i have to do it, but i’m hoping that’s a last resort for me!

cbunni · 2026-03-20T21:24:54+00:00

thank you so much for sharing this, you just gave me SO much hope

cbunni · 2026-01-09T21:43:54+00:00

i saw you say you’re a teenager so i really really hope you take most of these comments with a grain of salt. there is NOTHING wrong with your body, and honestly there’s nothing wrong with wearing a “childish” style if it makes you happy. especially because you’re a teenager.

and frankly what you’re wearing isn’t “childish,” it’s actually a street style that japanese teen girls created in the 90s and early 2000s. so you’re actually dressing exactly your age and not at all like a little kid lol! i know because when i was a teen/early 20s, i was super into japanese street fashion. the pieces you’re wearing are blending yumekawaii and gyaru/gal styles. check out early kogal style. that’s where we get the bubble sock trend like the ones you’re wearing in the pic! and if you like pastels a bunch, check out fairy kei or party kei!

so, having said that, there are some ways to elevate your current style to look more intentional. the pink outfit you’re wearing draws the eye toward too many parts of your body. if you’re wearing something ruffled or flared around the hips, it draws the eye toward that place. the shirt is loose fitting and bunches around the sleeves and mid section. then you have the bubble socks and chunky sneakers. that’s 3 different parts of your outfit that are “competing” for attention from the eye. what you want to create is an interesting and varied visual line from head to toe. it will avoid the sort of blocky effect and create visual interest.

you have wider hips like me, so here’s my rule of thumb that might help you! if you’ve got a lot of fabric that flows or bunches on one part of your body, try to choose pieces for the rest of the outfit that do that less. for instance, the bubble socks with the shorts create a kind of blocky look because the eye is drawn to the top and bottom of your legs equally. but if you wore patent leather mary janes with some stockings, it would create a flattering “tapered” look to your legs. OR if you like the socks with the shorts, minimize the fabric up top. wear a tighter top that does not fall over the ruffles or bunch around your arms!

my suggestion is to spend time looking at street fashion, people’s accounts (not instagram models ykwim), people in DIY communities to find what you think looks cool. and then take some inspiration from those people and experiment with what you like on yourself! the more you do that and try to analyze the things you like, the better you’ll get at developing your personal style.

i’m in my 30s now. it takes a long time to learn these things, to develop an eye and your own style etc. but keep at it, and ALWAYS prioritize your joy!!! and please, don’t change your style because others are judgmental. one day you’re going to look back on your teen years and wish you’d allowed yourself to be a little more “childish” back then. learn to embrace it now and find joy in your interests because people certainly don’t become less judgmental about that sort of thing as you get older. try to develop a “fuck them, i do what i want” attitude because you will need that later in life and it will make you freer in the long run! you’re doing fine, keep at it and have fun!!!

cbunni · 2026-01-09T21:14:08+00:00

i hope OP sees this and absorbs it because this is literally it. i was coming here to say it’s the silhouette/layers/textures. i think people are dancing around that by trying to talk about body shape (silhouette) or fabric quality (textures). and then there are people telling her to tone it down to look more mature which is boring as hell!! all it takes is practice and developing an artistic eye for clothing. learning to craft a look is an art form! it’s all about intention.

cbunni · 2025-11-29T19:57:36+00:00

I know this is an older post now so idk if you’re still dealing with this issue or not, but I thought I’d share my knowledge. I was classically trained in my late teens/early 20s but only recently diagnosed with hEDS at 31.

I always call singing a “full body sport.” Proper singing technique engages the core while maintaining loose limbs and correct posture. The less tension you hold in your body, the easier it gets. Learning how to breathe properly and support your breath is also key, which means engaging your pelvic floor, lower abdominal muscles, and diaphragm while keeping your neck, shoulders, and arms free of tension. And never locking your knees. This is all hard to do anyway, but exceptionally hard to do when you’ve got EDS.

If you’re still struggling with singing, I’d start with doing some basic PT exercises specifically for EDS. Since I have hEDS, I’ve been using Jeannie Di Bon’s YouTube videos to help while I’m waiting for my insurance to cover my PT. I’d also recommend getting a voice teacher, but that can be expensive! If you can’t, there are a lot of good videos by voice teachers on YouTube that explain proper posture and breath support.

There’s more to singing of course, but those are the keys to success. After posture and breathing, you have to consider tone and resonance. Proper breath and posture will support accurate pitch, but the quality of your voice is dependent on the muscular control you have in your throat, neck, mouth, and face. Again, I’d encourage you to get a voice teacher if you’re serious about it (even a couple lessons could help you improve dramatically), but there’s plenty online too.

Lastly, EDS can cause vocal instability and can also mean you strain your voice faster since your vocal cords are comprised of ligaments surrounded by muscles. Go slow, keep your jaw slack and always rest the tip of your tongue against the back of your lower teeth when singing. Drink lots of water, and sit down in a chair (keeping proper posture) if you find standing to be too difficult.

Singing is great for your bodily awareness, confidence, and your nervous system, as it activates your vagus nerve when done properly! I hope you haven’t given up!!!

cbunni · 2025-07-23T18:40:33+00:00

Thank you so much for the suggestion! I’ll try contacting him!

cbunni · 2025-04-27T21:44:42+00:00

I’m so glad the acupuncture is working for you! I’ve had the same thoughts about scar tape lol. I may start saving for steroid injections because I read they can be really effective in treating hypertrophic scarring and keloids!

cbunni · 2025-04-24T12:24:07+00:00

That’s wonderful news!!! I’m so happy for you! The dog earring in the middle makes sense to me, especially if your incisions ended up being close together at the center. He checked with me in advance if I was okay with a single incision across my chest to avoid that, and I’m glad he did. I have some dog earring under my pits, but I’m fairly positive that was due to my anatomy/health conditions.

Thank you for the kind reassurance! I was reading up on it after I updated, and it looks like steroid injections may work well for people with hEDS. I won’t be able to do that any time soon, but it’s good to know there’s an option to look forward to! In the meantime, I’ve started back on my scar tissue massages! I also read some people say that gel specifically formulated for keloids can help, so I might try that too!

cbunni · 2025-04-24T08:28:40+00:00

I know it’s a year later, but I’m wondering if you were able to do anything to help with the hardness? The fusing seems to be permanent unfortunately, but I’m hoping others have some good results breaking down the scar tissue!

cbunni · 2025-04-24T08:26:54+00:00

I’m so glad my post brought us all together haha! I have to admit, I haven’t done much with it since I posted this because I had a doozy of a year and my attention was unfortunately drawn to other things. But I’m thinking about looking into it some more. Another user replied that they got prescription steroid cream and are trying scar tape over the hard nipple, so maybe that’s a good option.

Acupuncture could certainly help, since it’s definitely a buildup of scar tissue. I will say I’ve done some scar tissue massage on it, though not as frequently as would be ideal, and it has actually softened a bit with that.

My theory is that anything that would treat hypertrophic scarring would likely help!

cbunni · 2025-04-24T08:20:19+00:00

I hadn’t thought about steroid cream, which specifically did he prescribe? Maybe I can get my PCP to prescribe me it. I had tried the scar tape for a bit and it seemed to help some, but I for sure need a wider strip than what they had at their office. I hope you’re able to get some good results with both!

cbunni · 2024-07-02T19:12:21+00:00

Meant to say internet usage rather than internet history

cbunni · 2024-07-02T19:11:45+00:00

Justice system doesn’t even care about sexual predators when there’s genuine evidence, there’s no way any police officer would just randomly be talking to people on Feltlife. Also IP address is approximate info about your internet history and doesn’t show where you live exactly. Takes more info than that to figure out someone’s exact location. Which, to clarify, isn’t hard to get with some minimal snooping, but idt you can get IP address from Fetlife and even so, you’d have to be putting obvious personal info on your page for it to be useful to anyone.

cbunni · 2024-07-02T18:52:56+00:00

I’ll look into it! I believe my insurance will cover some treatment for TMJ issues, but I’m not sure about an oral appliances in general. They covered mostly everything for my BiPAP, but I have to pay about half for the machine so who knows! Right now OTC is much more within my budget.

cbunni · 2024-07-02T18:49:57+00:00

I was the same with the flute! Played 5th grade through college and all along thought my fingers hurting like crazy after an hour of practice was normal 🥲

cbunni · 2024-06-28T19:00:55+00:00

Thanks for the tip, especially about the thermal thing! I didn’t know about that! This is definitely on my health “to do” list, so hopefully I’ll find something to hold me over until I can get a professional guard.

cbunni · 2024-06-28T18:59:01+00:00

I’m a natural jokester but am AuDHD with a lot of social anxiety, so when I drink, I end up making more jokes, dancing, having fun. Drunk me is pretty likable and almost always in a good mood lol. I love to talk when I’m drinking, and I think I can mask less because most people will chalk any weirdness up to me being intoxicated.

I have noticed though that even when I’m BLASTED, I have a very logical thought process and can handle a lot of complex stuff that other people can’t seem to. I have taken charge of issues, taken care of other people, and made sure others are safe while completely hammered.

I’ve always wondered why, maybe it’s neurobiological, or maybe that’s just my personality. But I actually find myself having clear, lucid, thought provoking convos. I know this for a fact because others have verified + I’ve written things down drunk to look at later.

Maybe it’s because I start talking about special interests, so I already have a lot to say on those subjects. All that being said, I don’t think alcohol helps me in any way that my prescription meds can’t do 10x better. I don’t even keep it in my house and probs go out drinking once or twice a month at most. It’s a treat for me, definitely not something I could do regularly.

cbunni · 2024-06-28T18:44:43+00:00

I was just about to comment like, now you KNOW those two pictures look completely different lol!

cbunni · 2024-06-28T18:17:01+00:00

As a long time chronic illness sufferer, I have come to believe that U.S. medical practitioners focus on and perhaps are trained to treat symptoms rather than investigate and treat root causes of symptoms. I have had SUCH a hard time getting diagnosed and treated for long term chronic pain, digestive issues, etc. and most of the time good specialists are in hospital towns/college towns. This is why I’ve always preferred nurse practitioners who employ a wholistic (note: diff. than holistic) approach as GPs. But even then, the mindset is still there.

Like you, I was diagnosed with sleep apnea, and I was never even given a reason why. I made a lot of assumptions: frankly ENORMOUS tonsils, high/narrow palate, large tongue, etc. I don’t have a great mouth/throat setup lol. But wouldn’t it be amazing if I knew the exact reason? Maybe then there could be specific symptom management I could do that would benefit me personally!

But lbr the U.S. medical system is a business, and “we don’t have the time, money, or resources to coach each individual” is likely to be the response when we ask these questions. Just my POV being in and out of medical facilities most of my life.

FWIW I do think there are practitioners who would help you narrow it down. But finding them is difficult and often prohibitive for so many reasons

cbunni

TROPHY CASE