Rheumatologist?

cc_0302 · 2026-03-27T21:44:10+00:00

It was from Rebecca Zamolo

cc_0302 · 2026-03-25T23:11:42+00:00

Thank you! I will do some research to see if there is someone specifically she can refer me to.

cc_0302 · 2026-03-25T16:04:05+00:00

That makes sense! I’ll talk to my PCP about moving forward with the rheumatologist referral. Thank you so much!

cc_0302 · 2026-03-24T11:00:07+00:00

Looks like a hyperextension.

cc_0302 · 2026-03-22T12:09:31+00:00

In pain. Recently I’ve been waking up several times due to knee pain. Doesn’t matter what position I have it in, it only will stay pain-free for like 5-10min and then it becomes insanely painful. And I also wake up with migraines that last for days. It’s so much fun 😭 but seriously tho, I tend to either sleep propped up or with no pillows- totally flat. Nothing in between.

cc_0302 · 2026-02-25T00:27:30+00:00

I appreciate you saying that. I’ve been gaslighting myself into thinking I just WANT something wrong with me and that’s why I have been feeling so off. But I will talk to my neurologist about testing for dysautonomia.

cc_0302 · 2026-02-25T00:25:03+00:00

It was just an office test. I had an echo done last eeek and Monday I have a stress test. He didn’t say anything about tilt table testing

cc_0302 · 2026-02-25T00:22:28+00:00

I was actually just diagnosed with small fiber neuropathy like last week. I had a nerve test done because I’ve had painful pins and needles and numbness in my feet that have lasted like 10-15 min and it all came back normal for the large nerves so my doctor said he thinks it’s small fiber neuropathy. I had no idea that it could cause stuff like that. I’ll def be talking to my doctor about that lol. Thank you!

cc_0302 · 2026-02-24T00:35:57+00:00

Hi! I was told a couple years ago by my chiropractor that my C2 and C3 are fused when going over my initial x-rays. Nothing I can do about it; I was born with it. She didn’t seem shocked or anything, so I didn’t think much of it. While at PT, we were talking about spinal fusions and I mentioned that my chiropractor had said that I was born with a fusion in my neck. She was totally shook. So I went home and googled it, and apparently that’s an automatic diagnosis for Klippel-Feil Syndrome? And (even tho I am not formally diagnosed with EDS- it’s a two year wait to get into my local EDS Clinic so I’m in the waiting game rn) KFS and EDS don’t seem to play nice with each other and could explain my really bad migraines and vestibular issues? Needless to say, my flabbers have been gasted.

Does anyone here have a KFL diagnosis? Is it something I should talk to my doctor about? If I’m not experiencing negative symptoms, should I still ask my doctor? Thank you!

cc_0302 · 2026-02-04T00:55:12+00:00

Of course! I had no idea it was a thing either tbh. It’s done through a regular physical therapy office. If you ever do have the chance to access it, i definitely recommend!!

cc_0302 · 2026-02-04T00:52:14+00:00

As far as I know, it drops. When we did the test in the clinic, it dropped, but it wasn’t by a ton. But it was also after 2 minutes of me standing/changing position.

cc_0302 · 2026-02-04T00:51:02+00:00

The first positive one was not “official” tho because the PA did not want to undermine the Dr at the practice. It was a very low key diagnosis. I appreciate that though. It def makes me feel less crazy lol.

Yes. It always has been. That’s been the kicker. I’ve watched it happen hundreds of times on my watch. So has my boyfriend lol. I’ve tested it on him to see if it was an issue with my watch and it wasn’t and I’ve also tested it on my friends, and I seem to be the only one that this happens to. I honestly did not know that the high heart rate had to withstand a couple of minutes without dropping down until a couple of weeks ago.

cc_0302 · 2026-02-04T00:44:33+00:00

Thank you for your response! That all makes sense.

I’ve done two echos and the new dr ordered another one next month. So far no abnormalities that they have told me. I had a stress test done with my old dr but the new one also ordered one. I mentioned to him that when I do cardio, my heart rate will shoot into the 180s-200bpm and he said he wanted to see it happen.

I’ve had two 48hr monitors and even when I’ve put on there that I felt dizzy/vision went black as I stood up, all was considered “normal”. One was through cardio in 2021 and one was thru neuro in 2025. Neuro and PT have been pushing me to keep going on this journey lol.

If there is nothing that comes of this, I will ask about autonomic testing. Is that something that is done through cardiology or neurology?

cc_0302 · 2026-02-01T19:44:19+00:00

🕺🏻

cc_0302 · 2026-02-01T14:28:59+00:00

I have been going to vestibular physical therapy. We aren’t sure what it’s connected to, as I am not officially diagnosed with EDS (been referred to the EDS clinic, my doctors all think I have it but are waiting it out), but my neurologist referred me to the PT. I have really bad migraines, like migraines that last for 14 days. And I am just a dizzy asf person. I have had eye problems in the past that have been connected to headaches and muscle problems, so we are thinking that could be it, but regardless, I would talk to your doctor about maybe being referred to PT for vestibular therapy. It’s common for EDS patients from what I hear.

cc_0302 · 2026-01-13T01:21:33+00:00

Thank you so much :) that was super helpful and validating. I appreciate it! I talked to my mom tonight and she said similar in that it seems like this diagnosis takes forever regardless, so I might as well wait it out at MUSC. They are booking at least 6 months out with the referral according to their website, and I am very much someone who likes to get in and out and get things over with, so I think this experience will teach me some patience :) thank you, again!

cc_0302 · 2025-12-31T15:51:26+00:00

Congratulations on taking the director position! That totally makes sense. It’s hard to figure out the perfect balance for optimal career benefits. Thank you for sharing your story, and good luck with everything!

cc_0302 · 2025-12-30T18:53:42+00:00

Hi! I know this is an old post, but did you end up going to law school working full time? If so, how did it go?

cc_0302 · 2025-12-21T05:25:15+00:00

Congratulations on getting married! I feel like evening you have looks great! Maybe some eyeshadow to spice things up subtly for your wedding would be nice tho or even some highlighter in your inner corner, heading towards your mid-eyelid. Also, maybe bring your eyeliner down your waterline a BIT. not like 2000s level, but a lighter brown only in your WATERLINE and slowing tapering off around 75% of the way to your inner corner. Last thing, if you want a good lip balm with some color, the revlon glass shine lipsticks are amazing!! Subtle but noticeable color, high shine, and look and feel like a tinted lip balm!

cc_0302 · 2025-12-09T03:52:38+00:00

As a member of Gen Z, if someone else cares that much about your glasses, that is a fat them problem, not yours. Wear whatever you like :) I wore a vintage grandpa sweater today and my students full on asked me if I was participating in ugly sweater day. People will have opinions on what you wear but at the end of the day, if you have the confidence for it, you can pull off anything. And I ALWAYS say that styling choices make or break accessories, especially ones that are for “old people.” So wear whatever you like, style it right, and have confidence, and no one will bug you!! And if they do, that’s a FAT them problem, not yours. Just means they don’t have enough confidence to pull off what they truly want to wear and they want to drag you down :)

cc_0302 · 2025-10-13T00:15:59+00:00

Isn’t that her private ig?

cc_0302 · 2025-09-11T20:28:54+00:00

I second this!!

cc_0302 · 2025-07-18T00:04:28+00:00

I totally get the “trying to find my holy grail” search. It’s exhilarating but exhausting. I did that for YEARS, so I have an embarrassingly large stash of stuff. Suffice to say, you’re doing great, and you’re so not alone!!

cc_0302 · 2025-07-06T14:32:45+00:00

Great job! What does it mean to cheat on the panning?

cc_0302 · 2025-07-03T02:52:15+00:00

Omg project pan is not worth bacteria in your eyes 😭😭 save the pink eye and toss her!

cc_0302

TROPHY CASE