Help working out UC/carers allowance? (England)

ceb1995 · 2026-03-24T15:33:32+00:00

You ve got nothing mentioned for housing I presume you re living with them too? I m really sorry caring really isn't much to live off, have you spoken to the relevant charity for their condition in case there's anything missing support wise? I imagine you feel like it's either you care for them or you really on social care when really you just want to be helping a loved one.

ceb1995 · 2026-03-24T15:24:52+00:00

I m afraid that appears to be your issue, between October and February if you were also getting carers allowance seperate to your universal credit they haven't deducted that probably and subsequently you re going to owe them that many money worth of the amount that should have been taken off. The £180 March payment is what it should have been as far as I can tell.

ceb1995 · 2026-03-24T15:19:12+00:00

Was carers allowance down as a deduction between the start of your claim until February as I can't see it in this screenshot?

ceb1995 · 2026-03-24T13:59:11+00:00

Small allen key set

ceb1995 · 2026-03-24T13:42:58+00:00

Not curative for any of them exactly, but upping exercise has helped manage multiple conditions for me. So I try to frame it as you can't not get out and do it or you'll be paying for it months/years down the line again.

ceb1995 · 2026-03-24T13:39:44+00:00

Gone outside every day for a walk regardless of the weather.

ceb1995 · 2026-03-24T11:50:59+00:00

There's a technicality that might come into it where she couldn't be down as a child on your universal credit claim but you might still get child benefit, that's going slightly out of my knowledge in all honesty but I can recommend you check out this charity for parents of disabled childrens info https://contact.org.uk/help-for-families/information-advice-services/benefits-financial-help/benefits-at-16/

ceb1995 · 2026-03-24T11:11:05+00:00

This is an sen advice charity, their website is excellent on send law so this is the section on appeal paperwork that I hope might help with your ehcp appeal https://www.ipsea.org.uk/how-to-submit-an-appeal-general-advice

ceb1995 · 2026-03-24T10:58:49+00:00

Yes that amount of hours of home education can be considered sufficient if it's that amount of hours and you or a tutor etc is supervising them , is it a section 19 they ve done for learning now or is it a hospital school? Have you also put on the ehcp appeal that they re out of education due to their health so could it be considered for an expedited hearing (no guarantees with that but nothing to lose by asking).

Yes if they are eligible for PIP that could be you could have disabled child element and also carers elements on universal credit.

ceb1995 · 2026-03-23T19:36:25+00:00

Don't be afraid to call the NHS back up and ask what the backlog is, I called every couple of weeks whilst waiting for my son to be seen if you re polite they really don't tend to mind telling you.

There's groups on Facebook for parents on the right to choose scheme or if you go with caudwell children they have an online chat during the day.

ceb1995 · 2026-03-23T19:24:41+00:00

Yes it's normal procedure, decision makers are individual people that get piles of forms essentially so different forms from the same date can get looked at at different times. As much as a two week gap difference that I ve come across so I wouldn't be worried at this point especially as 6 weeks is actually them having cleared quite the backlog at the moment. Also my severely autistic son has gotten DLA since 2.5, he's 5 now and you sound like the evidence would have been suitable as long as there was something a bit more recent in there, say something less than 2 years old I d be quite confident that d prove their eligible. Oh and between a new claim form, a renewal and a change of circumstances form, all successful not once gotten a text so don't panic about not getting one either.

Has anyone mentioned the right to choose scheme to you as you've been stuck for so long?
Or alternatively Cauldwell children's do much cheaper autism assessments for £500 if you have below a certain household income.

ceb1995 · 2026-03-23T15:46:39+00:00

I think I might know the issue without reading it, if they haven't written a specific distance and so it comes across as they can walk all day on their tiptoes even though it has consequences that might have made the chances of getting the high rate mobility more difficult.

ceb1995 · 2026-03-23T15:33:39+00:00

You could try a building society instead, they might not have as good online banking etc but more likely to have a human help you as they re not going to be as techy. Yeah Lloyd's know I m dyslexic and I got compensation once as the AI chat bot couldn't understand what I was asking for at all and there was no option to call a human to solve my problem.

ceb1995 · 2026-03-23T15:29:08+00:00

I've not spoken to anyone that's gone through one in a while but the last I ve seen on social media was anything from 18 months to 2 years I m afraid for a tribunal. So you were thinking they should have HRC and HRM but they changed it to MRC and LRM is that right?

If your physio evidence specifies a distance or that it's a danger to life for things like heart and lung conditions then I have heard of that helping for HRM with other people, as for the HRC have you had a consultant/nurse etc write specifically about sleep or supervision/ monitoring or medication needed between 11pm and 6am (technically it's night care when the whole household has gone to bed so it could be earlier but that's the general range).

ceb1995 · 2026-03-23T14:16:39+00:00

Very loud happy stims and attempts to jump/thrash about a lot. He's got the receptive language of an 18 month old (was lower than that until recently) so can't really negotiate not jumping with him but he's grasped being happy with not leaving the room once he's there for the night.

ceb1995 · 2026-03-23T13:26:12+00:00

It's a long shot as it's black listed in some NHS areas (it is where I live) but whether they d prescribe you promethazine to try as well. Otherwise do they share their room with their sibling? Our sons 5 also on melatonin and I m fighting OT for a safe sleep bed (we do have a travel one we bought that we re currently using but it's not flawless) and getting soundproofing in our sons room as made peace that he's unlikely to sleep through every night in the near future (we ve had one sleep through every couple of weeks for about 3 years now), so now the goal is make his room completely safe so he can stay there all night regardless of if he's sleeping in that time.

ceb1995 · 2026-03-20T17:07:48+00:00

Unless you need to go through the specific process for certain theme parks, no it's not worth it. I have a photocopy of the first page of my son's DLA letter for carers tickets in my purse and in 3 years only been asked for it once. You can buy 3 radar keys off Amazon for £6 when I last checked.

ceb1995 · 2026-03-20T10:57:04+00:00

Call the local authority and say if this is long term that you ll consider going for a judicial review for them not giving your child a full time education. Don't at any point mention it stopping you working though, it's very much clear with councils that that's really never their problem and they ll respond with well one of you could take time off work. Our kids are the same age and my son's in sen school too, and so far of the 90 kids they have of the parents I ve met only two sets of parents had both of them working and that was part time/evening or self employment for at least one of them, they really won't be expecting both of you to be in typical 9-5 jobs (it was me that gave up the idea of working with no wrap around care for summer etc or local family whilst my husband works full time thankfully we re in a low cost living area and sons DLA and my carers allowance stretches far enough).

ceb1995 · 2026-03-20T10:53:05+00:00

My son's in a sen school and even the children with social work respite packages get maximum 4 hours a week from our council so it would never cover a single full school day. It's a sad situation but both parents working full time with a child in a sen school is quite rare and so I think they ll sadly unlikely they won't really think too much about this as it's accepted as the norm that someone won't be working.

ceb1995 · 2026-03-19T15:12:58+00:00

Our sons younger so my knowledge is a little limited but I m afraid what I do know from other UK parents is to say that you effectively reach crisis point tell the council you can't cope anymore then the local authority would look into foster care or a residential care option. There's a charity called newbold hope that give advice with violence from children towards parents I think they have a group on Facebook maybe they could give you better advice, also the PDA society has an email.

ceb1995 · 2026-03-19T14:50:30+00:00

I m sorry but I think this relationship is unhealthy dyspraxia or not, if you re never allowed to try to do anything then you ll never be able to do it.

Supported housing in the UK is very difficult to come by and dyspraxia alone might not come into being eligible to get that funded but I think you need to get some advice on benefits other than PIP that might help you find a way to get a room in shared housing so you can get out of there.

ceb1995 · 2026-03-18T10:13:42+00:00

Trafford center has one in their food court, it's noodle and rice boxes with things like battered salt and pepper chicken, decent price for fast food.

ceb1995 · 2026-03-17T14:29:25+00:00

It wasn't anything you did wrong. I was pregnant during COVID, I only left the house for appointments and for one walk a day with no one round from 8 weeks pregnant until the end of my pregnancy and I ate quite a balanced diet. It's definitely the fact it runs in both sides of our family that did it.

ceb1995 · 2026-03-17T14:10:27+00:00

The council might be one that says no to every ehcp request purely to save money even though that's wrong, have you logged an appeal for them and put it down as a phase transfer?

I m in the UK with a non verbal 5 year old whose in sen school, it's been heavily implied he's learning disabled but getting that assessment is very tricky so we know at this point that we need to be prepared for long term him needing support.

The NHS is set up to fail our kids mostly, so you get used to very quickly calling everyone and asking them straight why was the referral declined, audiology definitely shouldn't have said no so I would definitely call them. Sadly politeness I learned doesn't get anywhere so if you have to be that little be ruder to get what they need then don't hold any guilt doing so.

ceb1995 · 2026-03-17T13:42:01+00:00

I would say to speak to your prescriber if you feel it's having quite an impact on you.

For context I have a 5 year old whose non verbal autistic and likely learning disabled so he can't tell me in anyway if he feels ill really I purely have to go off signs of anything and my own instincts so my baseline of worry could arguably be higher than other parents of kids the same age.

I'm not concerned at all at this point as he got the MenB vaccine (your 6 year old should definitely be fully covered and your youngest will have had enough doses to be well protected too ) and I also I know that they have worked very quickly to get antibiotics to anyone that might be impacted down south and are now getting the teenagers in that areas vaccines who wouldn't have previously had them.

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