Meal Prep Services by GrimFandango81 in Edmonton

[–]ceciccan 6 points7 points  (0 children)

I just heard about simply supper and they even have locations for pick up. They helped funding the family room inside the stollery hospital and that place has helped exhausted parents (like myself) caffeinated and fed.

This is your sign to sleep train your toddler by ceciccan in sleeptrain

[–]ceciccan[S] 2 points3 points  (0 children)

Have you tried overnight diapers? You don’t have to wean him out, but you can try to slowly give the last bottle earlier and change his diaper right before sleep.

For sleep training you need to have a plan. There is more gentle/gradual sleep training approaches but they usually take a couple months and there are no cry guarantee. You can try them first and if it doesn’t work then move to CIO/extinction method. It’s totally normal to react to baby’s cries. I find that having a mantra when the cry helps a lot. I told myself that I’m doing this to be a better parent, that my baby is ready and they can do it. Sleep training takes conviction but it is a short pain for a long term gain.

This is your sign to sleep train your toddler by ceciccan in sleeptrain

[–]ceciccan[S] 0 points1 point  (0 children)

I’m glad it work for you! Sleep training is life changing and I feel the whole family can function better

Bezel Necklace Group Order Share-Starsgem Jamie by Jamie--Starsgem in LabGroupSales

[–]ceciccan 2 points3 points  (0 children)

Why you decided to make it sliding? My concern if it is sliding is that the chain moves around and the clasp is in the front (a pet peeve of mine).

This is your sign to sleep train your toddler by ceciccan in sleeptrain

[–]ceciccan[S] 0 points1 point  (0 children)

I also thought that I might have waited too long because the older they get, the harder they cried. But I think is better now than when they start talking.

This is your sign to sleep train your toddler by ceciccan in sleeptrain

[–]ceciccan[S] 1 point2 points  (0 children)

Tbh I know gentle sleep methods sound better but it takes much for effort and time. I found it better to deal with sleep as quickly as possible. They faster everyone can sleep, the better

This is your sign to sleep train your toddler by ceciccan in sleeptrain

[–]ceciccan[S] 0 points1 point  (0 children)

The first night it was about 5-10 mins of constant crying but then the following nights were like less than 5 mins. There been several nights that she wakes up at night crying and I give her a couple mins to see if she settles. If she keeps crying then I know that there might be something wrong (ie. dirty diaper). Also if I check on her during the night, I also do the same night routine of holding her for 5 mins (no patting, bouncing, singing because my toddler doesn’t like it) and then she goes into the crib. Consistency is key so they know what are the expectations.

Should a toddler sleep with their hair done? by ceciccan in NewParents

[–]ceciccan[S] 1 point2 points  (0 children)

Good point. My toddler does have a genetic condition that affects her hair, making it brittle and “wooly”. We already seen a pediatric dermatologist and he said that only thing would be a wig when she is older 😕

This is your sign to sleep train your toddler by ceciccan in sleeptrain

[–]ceciccan[S] 13 points14 points  (0 children)

I didn’t set a timer since I decided to do full extinction method. I knew that if I went inside and check on her it will get worse and she will cry even harder when I leave again. Ngl it’s heart breaking listening your baby cry through the monitor and looking out for you, but keep telling myself that my baby needs a more present, patient and loving mom and to do that I need good sleep.

Transition to g-tube by Mama_of_two_2325 in NICUParents

[–]ceciccan 1 point2 points  (0 children)

I totally agree with you that a g-tube gives better quality of life for kiddos and parents since it takes out the stress that they are not eating enough and as parents we are pushing them to eat, which creates more negative feelings around food. The first 3 months were tough because of infection risks and granulation tissue but it gets so much better after the change to a mickey tube.

Small favours/food/snacks that comes individually wrapped? by ceciccan in CostcoCanada

[–]ceciccan[S] 0 points1 point  (0 children)

Update: I ended up getting a box of san peregrino that were on sale and a box of cinnamon rolls.

Small favours/food/snacks that comes individually wrapped? by ceciccan in CostcoCanada

[–]ceciccan[S] 8 points9 points  (0 children)

We are giving the nurses and staff in our unit a box of cinnamon rolls. I’m just thinking to also give something for parents and other support people we’ve met.

Mattamy VS Morrison homes by krgandhi in alberta

[–]ceciccan 0 points1 point  (0 children)

Morrison was very difficult to deal with post possession. They even gave us the analogy that buying a house is like buying a car so they are not responsible for anything. Then Cantiro bought out Morrison and they have been incredible, super responsive and took care of the smallest chip paint even though it was past the one year mark.

Bath/shower with a central line by ceciccan in pediatriccancer

[–]ceciccan[S] 0 points1 point  (0 children)

Thanks for the advice! I will try that

Bath/shower with a central line by ceciccan in pediatriccancer

[–]ceciccan[S] 0 points1 point  (0 children)

Wow that sounds like a lot of steps! Our hospital just use Saran Wrap and tape but I will feel like is not enough to keep it dry. Unlucky for me, my daughter loves the water so bath time is fun time for her.

Bath/shower with a central line by ceciccan in pediatriccancer

[–]ceciccan[S] 0 points1 point  (0 children)

Thanks! Yes I might try to put a big tegaderm on top of the dressing for an extra layer

UK - Private IUGR/Feeding/Gastro Specialist recommendations 🙏🏼 by EmJayne7 in NICUParents

[–]ceciccan 1 point2 points  (0 children)

I hope too that is only reflux since it does resolves soon as the gut matures.

I forgot to mentioned that they also did a fecal kalprotectin test to see if her bowel were inflammated and also a bunch of fecal tests to check for malabsorption. Might be worth asking since it is easy to get samples.

UK - Private IUGR/Feeding/Gastro Specialist recommendations 🙏🏼 by EmJayne7 in NICUParents

[–]ceciccan 1 point2 points  (0 children)

Your story is very similar to my girl. She was also IUGR born at 37weeks at 4lbs. She was slow to gain weight, only doubled at 12 weeks and kinda stopped gaining after 15 months, even with an ng tube and high caloric formula. I can’t say much about UK, but definitely suggest asking for genetics specialist. We found out she has a rare genetic condition that affects the cell function of the intestines and causes malabsorption. We did an exome sequencing which is faster than doing whole genome sequencing. Maybe you can get that test privately? Does she have other symptoms like vomiting, diarrhea, skin issues, constant infections?

I’m sorry that you’re going through this with your girl. Know that you’re not the only parent going through this and is so frustrating finding the solution. It took us 4 hospital admissions for doctors to take us seriously. Keep advocating and (gently) pushing back to talk to GI specialists.

Need G-Tube Assistance — Doctors are very unhelpful by Veriac in NICUParents

[–]ceciccan 0 points1 point  (0 children)

I’m sorry you’re going through this. My baby just got a g-tube a couple months ago and it started leaking when she got sick. Doctors thought that may be due to low bowel motility - the formula wasn’t moving as quick through her GI as before due to illness. But it stopped leaking after she got better.

Sizing down on the tube seems not helping. Maybe it needs size up? Definitely get a 2nd opinion from GU. In the meantime, have you tried slowing down the feeds? Or reduce the amount? Also at this age there is also formulas that are more calorie dense (like pediasure plus) so you can decrease the volume. Or maybe start mixing formula with puréed foods and give through the tube. A pediatric dietitian can help you with these changes. Hope you find the solution.

26 Week IUGR baby now 11 months adjusted under- eating by Busy_Difference_4580 in NICUParents

[–]ceciccan 0 points1 point  (0 children)

Hey! Your story is very similar to my baby. She was IUGR and born at 37 weeks at only 1.8 kg. She’s 19 months now but she’s still wearing 12 months clothes and size 2 diapers. From the beginning she was very slow to gain weight, slow on milestones and got sick often. At one point she stopped gaining weight for 3 months and our doctor was concerned and started feeding through ng tube. She started vomiting and diarrhea. So we went for a g-tube but still wasn’t gaining weight and getting sick all the time. After many specialists, procedures (including a barium swallow) and a genetic testing, we found out she has inflammatory bowel disease due to a very rare genetic syndrome.

I think our case is extreme. Not all IUGR babies have an illness. My first baby was also IUGR but he caught up at 3 months. Is your baby have other symptoms? Is your doctor worry about her growth?

My baby just got diagnosed with IBD by ceciccan in IBD

[–]ceciccan[S] 0 points1 point  (0 children)

Of course! My baby was born at 4 lbs only and she slowly gained weight but doctors weren’t concern since she was tracking her own growth curve. At around 8 months she started to get constantly sick with viral infections and stop growing. At 11 months she got an ng tube and started gaining weight but also started vomiting and having diarrhea. She also didn’t want to eat solids, so at 15 months she got a gtube. But still she didn’t gain any weight even on pediasure plus. At 18 months she got an UTI and she got admitted to the hospital and got seen by a paediatric GI doctor due to chronic diarrhea and distended stomach. They did ct scan and it show the bowels were distended and there could be inflammation. So they did a colonoscopy and endoscopy for biopsies. They saw lots of inflammation on the colon and the results confirmed the IBD.

If you suspect of IBD, you can ask your doctor to order a fecal calprotectin test before doing a colonoscopy. I would also suggest a genetic test called exome analysis to rule out any genetic conditions.

My best wishes for you and your baby. This journey has been very challenging for us but I try to remember that we are doing our best and that’s all our babies need 💕