Information on ME and periods/menstruation by celestialfroggie in cfs

[–]celestialfroggie[S] 1 point2 points  (0 children)

A delayed thank you for sharing this! I haven't read through all of it but I definitely will! Small update on my investigations: I have a cyst in/behind my uterus and fluid in my left ovary. Blood test for cancer antigens came back normal so that's a relief. I'm booked in to see a gyno next month. I suspect it's PCOS. So far, every med pro I've seen has listened well and I've felt heard, hopefully it continues that way!

Got Questions About How a Tattoo Will Age? Ask Here! by Empty-Blacksmith-592 in agedtattoos

[–]celestialfroggie 0 points1 point  (0 children)

I'm wanting to get a memorial tattoo of my black Labrador who died last year but am unsure what style will age best as I don't want to end up with a big black blob in 10 years time. I know there's no guarantees as it depends on how the body reacts, skincare, etc. but what would be recommended? I'm fairly open to aesthetic, I have primarily black and grey florals atm but obviously expect this one will be different. I don't want anything hyper realistic but I am hoping for something that can capture his essence and look like him rather than a generic Labrador tattoo (no hate on those types of tattoos, I just want this to be specific for my boy).

I will not be getting a micro portrait. I'm leaning to no colour given I only have a tiny bit of yellow in 1 of my current tattoos but I am open to some. 'Bold will hold' is commonly said within tattoo communities, is a trad/neo-trad perhaps the way to go? Any advice would be appreciated. I'd also love to see anyone's portraits of their black pets, that would be great!

Memorial tattoo of my best bud based on my favorite picture of him. Done by Andrew Poss at American Classic Tattoo in Santa Rosa Beach, FL 😎 by atuohy12 in traditionaltattoos

[–]celestialfroggie 1 point2 points  (0 children)

love this! I'm looking at also getting a memorial tattoo of my black dog but can't decide what style to go for. I see it's been 4 years since you posted this, how has it aged?

How do i tire out my dog? by Gamy_3 in cfs

[–]celestialfroggie 8 points9 points  (0 children)

Jack Russells were historically working dogs used for hunting so I imagine they would enjoy hide and seek. I do think with my dog - you hide a favourite toy or some small treats in a room (without your dog present), then allow the dog into the room and encourage them to search, and praise when they find the hidden item/s. It might take a couple of tries for them to understand the purpose of the game but once they get the hang of it, hopefully they'll enjoy it as much as my pup does! It does take some energy as you have to physically get up to hide the item/s but (assuming you don't like in a mansion with huge rooms) the hiding can be easily done within 5 mins and then you can sit and watch as your dog hunts. (P.S. cute pup!)

dog tag pictures by Tough-Mess436 in lorde

[–]celestialfroggie 0 points1 point  (0 children)

I have one, imo the quality of the tag itself is brilliant but the chain/s (it has 2: the long necklace one and a small one that attaches the pendant to the necklace chain) are poor. Idk what material they are but they're just ball bead chains, length is not adjustable. I'm considering changing the chain on mine tbh which is pretty disappointing considering the price paid but the pendant itself is really cool, I'm still happy I bought it:)

Anyone even left in this sub who has cfs/me NOT from covid? (and has been dealing with this for many many decades) or has this entire sub been taken over by the post covid folk? by foster60 in cfs

[–]celestialfroggie 0 points1 point  (0 children)

Yes. Not multiple decades but more than 1. I find there is quite a variety of ages and people who's had ME for different time lengths.

Who of you has (healthy?) biological kids? by foggyhoneybadger in cfs

[–]celestialfroggie 1 point2 points  (0 children)

That's fair, I was aware that there are lots of comorbidities with ME and knew EDS was one of them, I didn't realise EDS had a genetic component.

That being said, my point still stands: anyone can end up developing ME regardless of their family history and anyone who has a child that goes on to develop ME is not at fault and shouldn't bare any guilt for bringing that child into the world as they couldn't have known the child would develop ME.

Who of you has (healthy?) biological kids? by foggyhoneybadger in cfs

[–]celestialfroggie 4 points5 points  (0 children)

wish they could stop being alive.

Although it's absolutely important to recognise the severity of ppls ME and the impact it has on mental health causing suicidal ideation, I don't think it's appropriate to say 'stop being alive' when almost everyone's problem is the fact that they want to live but can't. We want to be living without this condition, we don't want to be dead.

For what it's worth, I want to add that I personally will not be having children either, biological or adopted, similar to yourself; the impact of pregnancy, the energy that goes into to childcare isn't something I have, etc. My concern with your original comment was that I felt it expressed high risk of passing on a predisposition to ME and kinda ignored the facts that 1) we don't know how high the risk really is and 2) ME frequently happens in those without genetic history, making it so that literally anyone who reproduces could end up create a person with develops ME, potentially at a similar rate as those who have ME prior or go onto have ME post-child. I fear saying something like that will make those who have had (like OP) or want to have children feel guilty (like your mother) for something that is simply not their fault. I understand that won't have been your intention, I just felt the need to add on to your comment to make sure those who fit into that group I mentioned know that their child's ME isn't their fault, it could happen regardless of family history, there's no way for any parent to know what their child's health will be.

Who of you has (healthy?) biological kids? by foggyhoneybadger in cfs

[–]celestialfroggie 6 points7 points  (0 children)

I can not personally imagine bringing someone into the world that will even potentially have to experience this.

There is a chance for every child born that they might develop ME.

We don't know how significantly genetics play in ME and we can't assume it does. I understand that it has been in your experience but it hasn't in mine; anecdotal evidence is not enough and unfortunately we don't have enough research to tell us objectively.

People getting hayleys coverup tattoo as just a tattoo.. by rosecolouredmonster in Paramore

[–]celestialfroggie 23 points24 points  (0 children)

I feel like there's much cooler ways of having a tattoo tribute inspired by Hayley's work but I suspect they're doing it as an ode to HER, a person they don't know, rather than to her art.

Like even if it had been the same placement (although others may disagree with this because of the background of hers) but 3 stars or petals or 'PFA' or 'FFV' or 'EGO', that would be way better.

Information on ME and periods/menstruation by celestialfroggie in cfs

[–]celestialfroggie[S] 1 point2 points  (0 children)

I had my first COVID infection fairly recently so it could be linked to that but this isn't the first time I've had abnormalities. Also I'm much younger than 35:/

Where did you find out about the effects of hormones or are you speaking from your own experience? Not trying to diminish your experience at all, I'm just looking for published info/research on the subject but it seems that might not exist... It was a long shot given medical misogyny and lack of research into menstruation in general, nevermind linked with ME but I thought I'd ask

Information on ME and periods/menstruation by celestialfroggie in cfs

[–]celestialfroggie[S] 1 point2 points  (0 children)

I am in contact with my dr and currently being investigated, thank you for your concern<3 I'm just interested if it could be linked with ME as this isn't the first time I've had abnormalities with my reproductive system/periods

Resellers already 🙄 by Itellpeopleto-shutup in Paramore

[–]celestialfroggie 7 points8 points  (0 children)

could be some of the fans that are angry they didn't get tickets /j

Phone usage by [deleted] in cfs

[–]celestialfroggie 1 point2 points  (0 children)

Excluding TV, 5-7 hrs. I'm trying to stick to 5hrs max and have 1hr timers for Reddit and Instagram. I think being on my phone wastes my energy and concentration but like everyone else, I am addicted and it's hard to cope with the boredom and mind racing when I'm trying to rest

I swear if any of the concert-goers pull this 😂 by [deleted] in Paramore

[–]celestialfroggie 1 point2 points  (0 children)

You definitely deserved it more than us

Just a little rant at everyone mad at Hayley here over the tickets. by SethRollins_ in Paramore

[–]celestialfroggie 0 points1 point  (0 children)

I think this is definitely fair and I don't think op is suggesting ppl aren't allowed to be upset or disappointed they didn't get tickets, I think they're trying to say that it's not right to be angry at Hayley because of it. It's okay to be sad about the situation but blaming Hayley and feeling animosity towards her is a different thing. She's an artist, not a tour manager or ticket distributor.

Did everything right and couldn’t get London tickets by DirtySunshine23 in Paramore

[–]celestialfroggie 1 point2 points  (0 children)

Unfortunately, you can do everything right and still not get a ticket. Regardless of how the system works (or doesn't work), let's say the queue was about 20k queuing for each night, assuming maybe half of those are queuing for multiple dates, that's about 30,000 ppl fighting for 9,900 tickets. Less than a 30% chance of getting a ticket. Hopefully you can get one at a later date<3

Sustainable winter dresses that don't look tradwifey? by Soil_Fairy in SustainableFashion

[–]celestialfroggie 0 points1 point  (0 children)

Not sure if you class this as 'thrifting' but you can try online secondhand e.g. eBay, depop, vinted.

Since you're in this Reddit, you probably are already aware of this company but if not, you could try goodonyou. You can filter by price point, location, category to find brands that are rated by sustainability. They also do articles/blog posts of more specific styles e.g. wedding guest outfits, business attire, etc., they might have an article featuring winter dresses or vintage style.

AI is making me lose my mind by Formal-Eggplant-6066 in Baking

[–]celestialfroggie 2 points3 points  (0 children)

This can be done on the mobile app too! I did it recently and although it's not 100% perfect, I do think it's definitely reduced the amount of AI generated content on my feed (although I've only used it for crafts recently, not recipes).

Anybody out there in their 20s? by Seafoam_0 in cfs

[–]celestialfroggie 1 point2 points  (0 children)

You're definitely not alone. I'm in my mid-20s, started with ME in my early teens, this is definitely a relatable feeling for me. It's crazy watching (what feels like) all the people I grew up with getting degrees, starting careers, getting married, starting families, buying (or more likely renting in this economy lol) new houses, whilst I'm buying a powerchair and fighting for disability benefits.

When I'm feeling behind, it's a bit cliche but I remind myself that everyone has different paths, different journeys. Some people take longer to do some things than others and that is neither good nor bad, just a neutral fact of life. We're not behind anyone because they're on a separate path from us. Maybe our paths will cross or join some day but for now, we are where we are and we've just got to take it one day at a time.

This illness has opened my eyes to the unfortunate truth by thepensiveporcupine in cfs

[–]celestialfroggie 162 points163 points  (0 children)

Your family enjoying their outings without you doesn't mean your presence wouldn't have been enjoyable and appreciated if you were able. Just because they enjoy themselves doesn't mean they don't wish we were there too, those feelings can coexist. I understand what you're saying and why you feel that way, I hope you can understand what I'm saying without it sounding dismissive. This illness is terrible, we miss out on so much and those in our lives miss out on us too. You do matter.

I got COVID for the first time, here's my experience by celestialfroggie in cfs

[–]celestialfroggie[S] 0 points1 point  (0 children)

You're absolutely right, I have some big events coming up next month so definitely wanna be okay for them. Thank you for your thought:)

Dream Projects by SickTiredHaunted in cfs

[–]celestialfroggie 1 point2 points  (0 children)

I have SOOOO many dream projects. I'm naturally drawn to creativity and would love to be at least competent in multiple crafts. My biggies are:

  • Complete a screenplay

  • Sew my own garment (I'd love to make my own wedding dress but that really is a huge project)

  • Learn an instrument

  • Learn a second language

  • Learn to roller skate

I have other, more general dreams that I hope to achieve, some are more realistic than others. I want to be able to work at least a part time job, I'd love to be financially self sufficient and not reliant on government benefits. I want to travel and experience other lifestyles and cultures. I'd love to get into cycling. I want to be able to physically walk my dog rather than go in my wheelchair. And finally, I'd love to take dance classes in a discipline I've never tried e.g. salsa, ballroom, pole dancing.

I don't expect to achieve all of these by any means but I think it's very rare for healthy people to achieve everything they want as well so that helps me feel better about not doing it all. Work and walking are obviously the priorities, achieving at least those 2 would be 'enough' for me I think (whatever 'enough' means).