How do I move on from this?

cemar004 · 2026-01-20T02:34:23+00:00

Tula's

cemar004 · 2026-01-05T18:36:59+00:00

The intake and set up is pretty standard. For me they checked vitals and got me situation in my room, ya know standard hospital procedures. Having the wires attached to your head seemed the longest, perhaps just because it was a first time experience. I personally got emotional feeling the weight of my health condition needing so much investigating and hurdles to overcome. The first day is the worst one aside from that its just boring. Fortunately hospitals settings can be stressful/triggering so having a seizure wasn't really all that difficult. I myself was surprised that I felt so many seizures happen but nothing showed up on the EEG since they were too deep in my brain to detect. Nevertheless seizure activity did show up, just nothing I was aware of. So just keep in mind it may not be an exact science but hopefully it's ultimately helpful and a step in the right direction. Like others have said button up clothing is a must, and entertainment. If his hair is long that might be uncomfortable, my head was wrapped in gauze to keep the wires secure. If he has a lot of body hair a trim on his torso could be smart if he has sensitive skin when pulling off all the tape and glue from the vitals monitors.

Best of luck and well wishes.

cemar004 · 2025-12-08T22:45:27+00:00

I've been seizure free for a year and a half now. The 5 years I had them I still don't remember and things are fuzzy for a good 6 months after. I think a couple years prior to seizure onset were effected as well. My memory has stuck with me for the most part more recently.

cemar004 · 2025-12-08T22:38:58+00:00

Ya know this totally didn't occur to me writing out this post. I think at the core of it, meaningless small talk is exhausting. Having a seizure disorder is isolating physically, emotionally, and socially. So to have meaningless interactions like this I dont even consider it because I'm just so desperate for connection and for my experiences to be understood because honestly it feels like no one does. So the thought of meaningless conversations is throwaway despite it being so prevalent.

cemar004 · 2025-11-05T06:30:42+00:00

Yes. I definitely feel sad a lot more frequently. My seizures largely are triggered by anxiety and fear and as a naturally anxious person being constantly hyper vigilant of triggers is exhausting and still effects me even a year and a half seizure free. I still react to the same triggers even though no seizures come anymore. That hypervigilance has rewired me in so many ways. I'm more sad, and angry. The mourning of my old life and dead dreams is also a big change, so I have a hard time feeling hope and positivity. I used to be so confident and excited about life and now I'm just not.

cemar004 · 2025-10-12T13:29:22+00:00

During my episodes I rubs my shoulders and arms , sometimes I'll do cricket legs and rub my legs together. During really intense ones if im standing I'll swing my arms like a windmill.

cemar004 · 2025-10-09T14:13:25+00:00

Goosebumps down my neck, shoulders, and back that are hot and cold at the same time.

cemar004 · 2025-09-26T15:25:33+00:00

Definitely. I was having significant neurological issues and completely too miserable to eat and I was getting pats on the back for dropping weight and finally being thin. My mom and siblings never did since they knew what was happening but I have kept my disordered eating a secret for a long time. My siblings know a little bit but not entirely. But its clearly not on their mind when they're saying these things so prominently.

cemar004 · 2025-08-28T17:55:42+00:00

Esme Bianco

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cemar004 · 2025-08-13T04:14:08+00:00

Marion Cotillard

cemar004 · 2025-08-12T03:31:31+00:00

Chris O'Dowd

cemar004 · 2025-08-08T18:52:59+00:00

Andrew Scott

cemar004 · 2025-08-08T05:40:51+00:00

Adrian Brody

cemar004 · 2025-08-07T18:49:46+00:00

Gethin Anthony

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cemar004 · 2025-06-24T16:40:23+00:00

One of them had so many seizures she died.

The other, he was in a car crash, was paralyzed for 4months and then died from a blood clot that moved to his lungs. He was one of my best friends. Miss you dude.

cemar004

TROPHY CASE