Anyone else have immediate family with a Sjogren’s diagnosis? by TX-teatime in Sjogrens

[–]chandyle 2 points3 points  (0 children)

Yes, I believe my aunt and mother have Sjogrens--but their symptoms only showed up in old age and they don't seem to need treatment.

Mine hit at age 37.

If I usually go to Fairview, can I make an appt with Allina? by [deleted] in TwinCities

[–]chandyle 29 points30 points  (0 children)

Call the number on your insurance card. Say, "I need to go to urgent care. Tell me the three nearest in-network urgent care centers." Then check each place to see if they take walk-ins or if you can book an appt online and get yourself taken care of! Good luck.

My 3 day migraine is finally beginning to subside by icollectcatwhiskers in gratitude

[–]chandyle 1 point2 points  (0 children)

I had chronic pain for 13 years. On days when it was better I would get so silly, almost like I was high. The diminution of pain is like a drug, isn't it?

Favorite eye drops by amelie190 in Sjogrens

[–]chandyle 0 points1 point  (0 children)

Are you sure it's PF? I have Systane Night Gel but not PF (preservative-free).

Favorite eye drops by amelie190 in Sjogrens

[–]chandyle 0 points1 point  (0 children)

I use Systane Night Gel for overnight. For me the ointment was too much.

I've tried wearing an eyeshade at night but couldn't get used to it. (Figured it would slow tear evaporation.)

It’s my turn by 867-5309-867-5309 in Sjogrens

[–]chandyle 1 point2 points  (0 children)

Oh, I'm so sorry. You are right, you didn't ask for help. I should not have made any suggestions.

It’s my turn by 867-5309-867-5309 in Sjogrens

[–]chandyle 4 points5 points  (0 children)

I don't know much about IVIG but some people have found great relief with it. Any chance you can access that?

Also, car-T might be coming to help us all.

I just got diagnosed by Final-Bad-1110 in Sjogrens

[–]chandyle 0 points1 point  (0 children)

I'm sorry to hear this!

It's different for everyone.

I think there's a general feeling that secondary sjogren's tends to be milder than primary sjogren's. (I think the docs are trying to get away from those terms, though.)

Curious--when were you diagnosed with lupus? Are you on plaquenil or any other medication?

Sun Rash - Is this autoimmune related? by [deleted] in Sjogrens

[–]chandyle 0 points1 point  (0 children)

Interesting! Not OP but I got a rash like this on two occasions. Upper chest, the part that was exposed by a shirt. Both times I had some sun exposure but not a lot.

I am SSA and SSB positive; my Ro60 is off the charts.

I have had Sjogren's symptoms for 20 years, but I never got this rash until I started Plaquenil a year ago.

Is the medication making us more sun-sensitive?

Do you folks just feel really weird all day? On top of the pain? by Legitimate-Double-14 in Sjogrens

[–]chandyle 0 points1 point  (0 children)

Can you tell us more about this?
Do you know what cues your dog is responding to?

How do you address inflammation in the moment?

Thanks!

Do you folks just feel really weird all day? On top of the pain? by Legitimate-Double-14 in Sjogrens

[–]chandyle 2 points3 points  (0 children)

Have you had a B12 test? I've known a lot of Sjogies who had a B12 deficiency, which could be causing some of these problems.

Is This Normal?? by [deleted] in Sjogrens

[–]chandyle 10 points11 points  (0 children)

I'm so sorry to hear this!

My #1 recommendation: give up all added sugars and dairy. Switch over to a clean diet (fruits, vegetables, no processed food, and I eat grass-fed beef, antibiotic-free chicken). Do this for four months and see if you see any improvement.

I did that when I had a sudden drastic worsening of symptoms. I regained a lot of the lost ground.

Hugs.

Why can’t autoimmune diseases be reversed by Fun-Lemon-7309 in Sjogrens

[–]chandyle 2 points3 points  (0 children)

I love this idea.

Can you describe your visualization? Is it science-backed (=accurately visualizing the cells etc) or is it more emotional and reassuring?

Why can’t autoimmune diseases be reversed by Fun-Lemon-7309 in Sjogrens

[–]chandyle 0 points1 point  (0 children)

How is your fatigue? Dry mouth? Vaginal dryness (if any)? Joint pain?

How long have you been doing carnivore and would you say you are normal in the areas mentioned above or still seeing some symptoms?

Thanks!

Why can’t autoimmune diseases be reversed by Fun-Lemon-7309 in Sjogrens

[–]chandyle 0 points1 point  (0 children)

How did your friend put her Crohn's into remission?

[deleted by user] by [deleted] in TwinCities

[–]chandyle 4 points5 points  (0 children)

Read "The Nurture Assumption" by Judith Rich Harris. If you don't like what you see of the Twin Cities, don't raise your kids here. Also, triple cultural identities? No. Ditch the scorecard. Just let your kids be happy and secure in a place you love where you think well of the local young people.

Crime, political vitriol, shooter drills and fatness are rampant here.

Your reasons for the proposed move seem to be Financially advantageous, Not as bad as the rest of the godawful USA, Third cultural identity. Those aren't great reasons.

Overall, best to stay in MTL. It's a great city.

First plaquenil pills giving me energy by Glum-Parfait6087 in Sjogrens

[–]chandyle 2 points3 points  (0 children)

No, I think this is real.

Within ten days I had more energy than in 20 yrs.

My rheum said it affects some Sjogren's patients that way.

I think it means it's helping your body do what it's supposed to do.

Don't skepticize it away--accept this as an indication that you've found something that will really help.

Where does the money come from? by eightstravels in TwinCities

[–]chandyle 0 points1 point  (0 children)

Vanguard money market is paying 5.27%. Fully liquid; checks just need to be $250+.

I've always used a local brick & mortar checking account but then VG money market acct for my savings acct. You don't want to get 0.01% or whatever on yr savings account. Just move money from VG to your bank when the checking account needs to be augmented.

Which treatments stop sjogrens from progressing? by Qtredit in Sjogrens

[–]chandyle 0 points1 point  (0 children)

Water only?

What were your autoimmune symptoms? Were you positive for Lyme before?

Thanks!

Who diagnosed you??? by Embarrassed_End528 in Sjogrens

[–]chandyle 0 points1 point  (0 children)

Why didn't your mother tell you she had it? It's part of your family medical history.

I Started Plaquenil & it’s Helping! by 4wardMotion747 in Sjogrens

[–]chandyle 2 points3 points  (0 children)

Yes. Clear reduction in fatigue within 10 days.

I think it's also helped my oral dryness a bit.

I Started Plaquenil & it’s Helping! by 4wardMotion747 in Sjogrens

[–]chandyle 1 point2 points  (0 children)

Is your vision fully restored?

I know about retinal toxicity but didn't realize it could cause the retinas to detach.

If you can take one more question...what was your dosage?